dublindolphin.bsky.social
dublindolphin.bsky.social
@dublindolphin.bsky.social
Reposted by dublindolphin.bsky.social
Survey opportunity:
Validation of the Vienna Post-Exertional Malaise Assessment Questionnaire (V-PEM-AQ)

English:
www.soscisurvey.de/V-PEM-AQ_eng...

German:
www.soscisurvey.de/V-PEM-Q/

Questionnaire is estimated to take 20 minutes

Screenshot from latest Science for ME update

#MEcfs #LongCovid
November 25, 2025 at 1:27 AM
Reposted by dublindolphin.bsky.social
Irish Independent: “Long-Covid is still here. I can’t walk, cook, work, socialise or live independently – and I am not alone”

“When Lydia Fischer Dooley got Covid..she didn’t expect to be still dealing with the fallout 3 years later - wants to raise
awareness..”

www.independent.ie/life/health-...
Long-Covid is still here. I can’t walk, cook, work, socialise or live independently – and I am not alone
The country, and the rest of the world, was in the grip of a global pandemic, so when Lydia Fischer Dooley, developed a dry cough, fatigue, weakness and lack of appetite at the start of 2022, she righ...
www.independent.ie
November 10, 2025 at 3:29 PM
Reposted by dublindolphin.bsky.social
For those who still don’t know, Graded Exercise Therapy is not recommended and can be harmful for people with ME/CFS.

www.medscape.com/viewarticle/...
No Evidence Supports Using Graded Exercise for ME/CFS
Studies examining the effects of activity-based interventions haven’t required post-exertional malaise as a core criterion for the now-termed ‘myalgic encephalomyelitis/chronic fatigue syndrome.’
www.medscape.com
November 7, 2025 at 11:04 AM
Reposted by dublindolphin.bsky.social
Every time I hear someone on the media say
"con - TROV-ersy,
in my head, I mutter CON-troversy.
November 6, 2025 at 6:09 PM
Reposted by dublindolphin.bsky.social
Gen AI doth remove commitment from art. Yf an artist ys committed to makinge somethinge trulye weirde, even shockinge, that artist doth neede to crafte the art, at everye steppe thinkinge, "Yes, Ich am drawinge a sexy C-3PO." Wyth Gen AI you kan make a sexy C-3PO wythout caringe, and that ys wrong.
November 5, 2025 at 5:19 PM
Reposted by dublindolphin.bsky.social
Anyway, we need some joy, so here's the Egyptian foreign minister being given a Lego Pyramid by the Danish foreign minister.
November 3, 2025 at 2:35 PM
Reposted by dublindolphin.bsky.social
Communications Policy & Regulation Week 2025 brought together regulatory authorities, government officials, industry experts and academics to discuss regional and global initiatives and challenges, from over 32 countries.

View the official gallery below:
www.iicom.org/event/commun...
November 4, 2025 at 3:36 PM
Reposted by dublindolphin.bsky.social
For the actual fucking love of god.

The person responsible for the gaslighting of thousands of people with ME/CFS with CBT and torturing them with graded exercise therapy, both of which were then tried again on Long Covid patients.

An absolute menace to the sick or vulnerable.
October 6, 2025 at 5:54 PM
Reposted by dublindolphin.bsky.social
The idea that ME/CFS must be psychosomatic or de-conditioning because current testing could not identify a mechanism or marker is *precisely the same* reasoning error that leads to conspiracies like anti-vax or Q.

This is complex & I don’t understand it, so it must be this thing I do understand.
October 6, 2025 at 6:54 PM
Reposted by dublindolphin.bsky.social
Long COVID Linked to Surge in POTS Cases.

"Researchers have found that postural orthostatic tachycardia syndrome (POTS) occurs in almost a third of patients with severe long COVID, making it far more common than in the general population."

Source: archive.md/G46Hg
October 3, 2025 at 11:51 PM
Reposted by dublindolphin.bsky.social
ME/CFS scored lower in quality of life than cancer, stroke & MS in one study. Millions, many post-COVID, are now disabled. This illness is real and requires greater recognition, research, and education. 💙Support these efforts today: https://batemanhornecenter.org/donate/ 

#MECFS #LongCOVID
September 23, 2025 at 2:24 PM
Reposted by dublindolphin.bsky.social
I welcome today’s announcement by the @EIB — a decisive step to accelerate green investment across Europe. 🌱

www.eib.org/en/press/all...
EIB Group to accelerate and simplify green investment, boosting European competitiveness, energy security and tech leadership
The European Investment Bank (EIB) Group is pressing ahead with phase two of its pioneering Climate Bank Roadmap phase two, staying the course as anchor financier of the green industrial revolution, e...
www.eib.org
September 30, 2025 at 12:26 PM
Reposted by dublindolphin.bsky.social
I also always include it in posts about LC out of solidarity for ME sufferers whose condition was ignored at best and lied and disbelieved about at worst for so many years before Covid.
September 23, 2025 at 10:58 AM
Reposted by dublindolphin.bsky.social
Reposted by dublindolphin.bsky.social
I've had ME for 18 yrs. Bluesky is the 1st place I've met other people w ME. With mild/mod ME, I'm lucky to have communities of family, friends and work. Not to disrespect my fellow sufferers, but hanging around with you online is not a barrel of laughs. @meownersclub.bsky.social one for you!
September 17, 2025 at 2:00 PM
Reposted by dublindolphin.bsky.social
London World: 'Thought-provoking photography exhibition captures what it’s like to live with ME/CFS'

'The exhibition reflects the stark realities of daily life for people living with ME/CFS through a collection of more than 50 striking images.'

www.londonworld.com/community/th...
Thought-provoking photography exhibition captures what it’s like to live with ME/CFS
‘Lives We Cannot Live’, a new and thought-provoking photographic exhibition by documentary film-maker and photographer Jeremy Jeffs, presented by The ME Association, will be on display at the iconic O...
www.londonworld.com
September 11, 2025 at 2:26 PM
Reposted by dublindolphin.bsky.social
You know what, I’m still pissed. You can have some data. There’s a problem here, and we’re not it.

news.harvard.edu/gazette/stor...
September 1, 2025 at 9:42 PM
Reposted by dublindolphin.bsky.social
Dude, the inability to exercise and passing out when I tried to *is* the data here.
September 1, 2025 at 10:04 PM
Reposted by dublindolphin.bsky.social
The first IIC India Digital Communications and Media Forum took place today in New Delhi discussing:

✔️ Connectivity and inclusion
✔️ Investment and infrastructure
✔️ Creative economy and content
✔️ Innovation and competition
✔️ Trust and security
August 27, 2025 at 2:23 PM
Reposted by dublindolphin.bsky.social
You knowe how yn legendes someone doth fynde a cursed sworde that bringeth ruin upon them but thei do not cast it asyde by cause *part of the curse* ys that thei believe it ys a powirful magic sworde? Anywaye, Gen AI...
August 27, 2025 at 3:04 PM
Reposted by dublindolphin.bsky.social
INFINITE LOOP
A. Needs diagnostic test to get diagnosed
B. Too tired to get diagnostic test
C. Go Back To A
August 20, 2025 at 8:28 PM
Reposted by dublindolphin.bsky.social
So presumably every doc that’s ever told a patient it was psychosomatic or de-conditioning and sent them for CBT and damaging exercise therapy will apologise to each patient they did that to now, right? Right?
August 6, 2025 at 9:05 PM
Reposted by dublindolphin.bsky.social
No matter what the results , DecodeME has already been very important for #pwME simply by how it has designed the entire process around what we have told them, and made it as accessible as possible to the severe.

I really hope all future ME research follows their lead.

Read prof Ponting's words:
Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal
The co-lead of the world’s largest ever genetic study into ME calls for a radical change in how society deals with the disease.
theconversation.com
August 6, 2025 at 3:54 PM
Reposted by dublindolphin.bsky.social
There’s an implicit assumption in society that disabled and chronically sick people do not have full agency as individuals, and do not count as full persons.

There’s also an explicit belief in many people in society that this *should* be the case.
Today I was told that if I can’t at least cook simple meals for myself I should be institutionalized.

That people on disability should not be allowed to access “luxuries” like food delivery services because they’re unhealthy and expensive.

This is eugenics. 🧵

Feeding oneself is literal survival
July 23, 2025 at 1:23 PM