Dementia Carers Count
@dementiacarers.bsky.social
Dementia Carers Count is a UK charity that supports, advocates and campaigns for dementia carers. We believe that no dementia carer should feel overwhelmed or alone🔗 www.dementiacarers.org.uk
Pinned
💜 We Hear You
Last year:
❤️🩹 9 in 10 carers reached crisis
❤️🩹 3 in 4 had no backup plan
❤️🩹 Most had too little support
Its your turn to share your caring experiences - the 2025 Carer Survey is LIVE!
👉 : ow.ly/bIR150WZZRR
Last year:
❤️🩹 9 in 10 carers reached crisis
❤️🩹 3 in 4 had no backup plan
❤️🩹 Most had too little support
Its your turn to share your caring experiences - the 2025 Carer Survey is LIVE!
👉 : ow.ly/bIR150WZZRR
Today’s Budget didn’t contain any details of desperately needed investment in social care. Unpaid carers are still being taken for granted. This has to stop. It’s high time to make access to social care fairer for dementia carers. #dementiacarers dementiacarers.org.uk/news/stop-ta...
November 26, 2025 at 3:47 PM
Today’s Budget didn’t contain any details of desperately needed investment in social care. Unpaid carers are still being taken for granted. This has to stop. It’s high time to make access to social care fairer for dementia carers. #dementiacarers dementiacarers.org.uk/news/stop-ta...
"Can I talk to you about social care support for dementia carers? Do you want to flip our coin?" We believe social care support should be freely available to dementia carers. If you agree, add your name✍️https://dementiacarers.org.uk/make-social-care-fairer-for-dementia-carers/
November 25, 2025 at 11:39 AM
"Can I talk to you about social care support for dementia carers? Do you want to flip our coin?" We believe social care support should be freely available to dementia carers. If you agree, add your name✍️https://dementiacarers.org.uk/make-social-care-fairer-for-dementia-carers/
We're delighted to be at Dementia Congress today. We're particularly pleased to be here with a carer who's sharing her perspective as part of the panel on the use of technology in dementia care. A great opportunity to share ideas and learnings. Thank you @dementiacommunity.bsky.social #UKDC2025
November 17, 2025 at 11:23 AM
We're delighted to be at Dementia Congress today. We're particularly pleased to be here with a carer who's sharing her perspective as part of the panel on the use of technology in dementia care. A great opportunity to share ideas and learnings. Thank you @dementiacommunity.bsky.social #UKDC2025
Sadly these findings from @carers-uk.bsky.social are not a surprise. We know how much dementia carers are struggling and how many are worried about their finances. We support the recommendations being made for a new social contract for carers.
Unpaid carers are at breaking point.
Our new #CostOfCaring report reveals a system stretched to its limit – and it’s carers who are paying the price.
52% are caring for longer hours
49% have cut back on essentials like food and heating
42% say their health has worsened
Our new #CostOfCaring report reveals a system stretched to its limit – and it’s carers who are paying the price.
52% are caring for longer hours
49% have cut back on essentials like food and heating
42% say their health has worsened
October 21, 2025 at 1:14 PM
Sadly these findings from @carers-uk.bsky.social are not a surprise. We know how much dementia carers are struggling and how many are worried about their finances. We support the recommendations being made for a new social contract for carers.
Listening to Carers: Your experiences are shaping change 💜
We’re hearing from dementia carers about the challenges and dedication behind care—support, strain & guidance matter.
Your voice helps drive real improvement.
Share your story in our survey 👉 ow.ly/IZUt50XeTmJ
We’re hearing from dementia carers about the challenges and dedication behind care—support, strain & guidance matter.
Your voice helps drive real improvement.
Share your story in our survey 👉 ow.ly/IZUt50XeTmJ
October 21, 2025 at 8:53 AM
Listening to Carers: Your experiences are shaping change 💜
We’re hearing from dementia carers about the challenges and dedication behind care—support, strain & guidance matter.
Your voice helps drive real improvement.
Share your story in our survey 👉 ow.ly/IZUt50XeTmJ
We’re hearing from dementia carers about the challenges and dedication behind care—support, strain & guidance matter.
Your voice helps drive real improvement.
Share your story in our survey 👉 ow.ly/IZUt50XeTmJ
Reposted by Dementia Carers Count
Almost there! Our FSB Insurance Service team has hit 83% of our 2025 charity target for @dementiacarers.bsky.social, less than £900 to go!
🙌Thanks to everyone who’s baked, walked, raffled & donated. Let’s hit 100% before year-end!
💙More here: www.justgiving.com/page/dementi...
🙌Thanks to everyone who’s baked, walked, raffled & donated. Let’s hit 100% before year-end!
💙More here: www.justgiving.com/page/dementi...
October 15, 2025 at 1:44 PM
Almost there! Our FSB Insurance Service team has hit 83% of our 2025 charity target for @dementiacarers.bsky.social, less than £900 to go!
🙌Thanks to everyone who’s baked, walked, raffled & donated. Let’s hit 100% before year-end!
💙More here: www.justgiving.com/page/dementi...
🙌Thanks to everyone who’s baked, walked, raffled & donated. Let’s hit 100% before year-end!
💙More here: www.justgiving.com/page/dementi...
Reposted by Dementia Carers Count
Have your say: Share your experience of caring for someone with dementia
@dementiacarers.bsky.social want to hear from you - if you provide, or previously provided, care to someone with dementia, fill in this survey.
www.alliance-scotland.org.uk/blog/news/ha...
@dementiacarers.bsky.social want to hear from you - if you provide, or previously provided, care to someone with dementia, fill in this survey.
www.alliance-scotland.org.uk/blog/news/ha...
Have your say: Share your experience of caring for someone with dementia - Health and Social Care Alliance Scotland
We are supporting Dementia Carers Count to share an important opportunity for family carers to share their experiences of caring for someone with dementia. If you currently provide, or have previous...
www.alliance-scotland.org.uk
September 26, 2025 at 8:27 AM
Have your say: Share your experience of caring for someone with dementia
@dementiacarers.bsky.social want to hear from you - if you provide, or previously provided, care to someone with dementia, fill in this survey.
www.alliance-scotland.org.uk/blog/news/ha...
@dementiacarers.bsky.social want to hear from you - if you provide, or previously provided, care to someone with dementia, fill in this survey.
www.alliance-scotland.org.uk/blog/news/ha...
Incredible to see our 🧡 #WeSeeYou campaign live on billboards across the UK!
A huge thank you to carers who shared their stories & to JCdecaux for helping us shine a light on carers everywhere.
Your voices matter.
A huge thank you to carers who shared their stories & to JCdecaux for helping us shine a light on carers everywhere.
Your voices matter.
October 2, 2025 at 9:21 AM
Incredible to see our 🧡 #WeSeeYou campaign live on billboards across the UK!
A huge thank you to carers who shared their stories & to JCdecaux for helping us shine a light on carers everywhere.
Your voices matter.
A huge thank you to carers who shared their stories & to JCdecaux for helping us shine a light on carers everywhere.
Your voices matter.
💜 We Hear You
Last year:
❤️🩹 9 in 10 carers reached crisis
❤️🩹 3 in 4 had no backup plan
❤️🩹 Most had too little support
Its your turn to share your caring experiences - the 2025 Carer Survey is LIVE!
👉 : ow.ly/bIR150WZZRR
Last year:
❤️🩹 9 in 10 carers reached crisis
❤️🩹 3 in 4 had no backup plan
❤️🩹 Most had too little support
Its your turn to share your caring experiences - the 2025 Carer Survey is LIVE!
👉 : ow.ly/bIR150WZZRR
September 23, 2025 at 10:11 AM
💜 We Hear You
Last year:
❤️🩹 9 in 10 carers reached crisis
❤️🩹 3 in 4 had no backup plan
❤️🩹 Most had too little support
Its your turn to share your caring experiences - the 2025 Carer Survey is LIVE!
👉 : ow.ly/bIR150WZZRR
Last year:
❤️🩹 9 in 10 carers reached crisis
❤️🩹 3 in 4 had no backup plan
❤️🩹 Most had too little support
Its your turn to share your caring experiences - the 2025 Carer Survey is LIVE!
👉 : ow.ly/bIR150WZZRR
Reposted by Dementia Carers Count
Our brokers Danny & Davin took on Tough Mudder this weekend 💪
They’ve already raised £3,800 for @dementiacarers.bsky.social, funding around 72 hours of counselling for those who care for loved ones with dementia.
Help us hit £5k 👉 www.justgiving.com/page/dementi...
#CharityChallenge #ToughMudder
They’ve already raised £3,800 for @dementiacarers.bsky.social, funding around 72 hours of counselling for those who care for loved ones with dementia.
Help us hit £5k 👉 www.justgiving.com/page/dementi...
#CharityChallenge #ToughMudder
September 22, 2025 at 8:31 AM
Our brokers Danny & Davin took on Tough Mudder this weekend 💪
They’ve already raised £3,800 for @dementiacarers.bsky.social, funding around 72 hours of counselling for those who care for loved ones with dementia.
Help us hit £5k 👉 www.justgiving.com/page/dementi...
#CharityChallenge #ToughMudder
They’ve already raised £3,800 for @dementiacarers.bsky.social, funding around 72 hours of counselling for those who care for loved ones with dementia.
Help us hit £5k 👉 www.justgiving.com/page/dementi...
#CharityChallenge #ToughMudder
We welcome research into improving dementia diagnosis, but investment in this must be matched by investment in care and support for families after a dementia diagnosis. Too many carers are left feeling invisible, overwhelmed and alone after a diagnosis. dementiacarers.org.uk/news/we-need...
We need gold standards in dementia care and support
Investment in improved diagnostic tools needs to be matched by investment in the care and support available to families after a dementia diagnosis.
dementiacarers.org.uk
September 10, 2025 at 11:38 AM
We welcome research into improving dementia diagnosis, but investment in this must be matched by investment in care and support for families after a dementia diagnosis. Too many carers are left feeling invisible, overwhelmed and alone after a diagnosis. dementiacarers.org.uk/news/we-need...
Reposted by Dementia Carers Count
💙 1 in 2 of us will become a dementia carer or need care.
We’re raising £5k for @dementiacarers.bsky.social and we’re already at £3,725 thanks to 125 supporters
This month, our own Danny & Davin take on #ToughMudder to help us smash the target
Chip in or share: www.justgiving.com/page/dementi...
We’re raising £5k for @dementiacarers.bsky.social and we’re already at £3,725 thanks to 125 supporters
This month, our own Danny & Davin take on #ToughMudder to help us smash the target
Chip in or share: www.justgiving.com/page/dementi...
FSB Insurance Service fundraiser for Dementia Carers Count 2025
Help FSB Insurance Service raise money to support Dementia Carers Count
www.justgiving.com
September 10, 2025 at 6:58 AM
💙 1 in 2 of us will become a dementia carer or need care.
We’re raising £5k for @dementiacarers.bsky.social and we’re already at £3,725 thanks to 125 supporters
This month, our own Danny & Davin take on #ToughMudder to help us smash the target
Chip in or share: www.justgiving.com/page/dementi...
We’re raising £5k for @dementiacarers.bsky.social and we’re already at £3,725 thanks to 125 supporters
This month, our own Danny & Davin take on #ToughMudder to help us smash the target
Chip in or share: www.justgiving.com/page/dementi...
This September, we’re launching We See You – our new campaign to make dementia care and carers more visible, and to remind carers that they are not alone! We're here to help. dementiacarers.org.uk/news/we-see-...
We See You campaign
We've launched our We See You campaign to make dementia carers visible and to let carers know that we are here to help
dementiacarers.org.uk
September 2, 2025 at 4:15 PM
This September, we’re launching We See You – our new campaign to make dementia care and carers more visible, and to remind carers that they are not alone! We're here to help. dementiacarers.org.uk/news/we-see-...
Caring for someone with dementia can feel overwhelming — but you’re not alone.
We’ve partnered with Amazon to launch a FREE Alexa Guide designed with dementia carers to offer real, practical support.
Download & share: dementiacarers.org.uk/help-and-inf...
#DementiaCare #CarersSupport
We’ve partnered with Amazon to launch a FREE Alexa Guide designed with dementia carers to offer real, practical support.
Download & share: dementiacarers.org.uk/help-and-inf...
#DementiaCare #CarersSupport
August 7, 2025 at 8:57 AM
Caring for someone with dementia can feel overwhelming — but you’re not alone.
We’ve partnered with Amazon to launch a FREE Alexa Guide designed with dementia carers to offer real, practical support.
Download & share: dementiacarers.org.uk/help-and-inf...
#DementiaCare #CarersSupport
We’ve partnered with Amazon to launch a FREE Alexa Guide designed with dementia carers to offer real, practical support.
Download & share: dementiacarers.org.uk/help-and-inf...
#DementiaCare #CarersSupport
Caring for someone with dementia is full of contradictions.
It’s work that matters — but often goes unseen.
Our 2024 Carer Survey captures this emotional reality.
We’re amplifying carer voices and calling for change.
Join us. Be part of the movement. 💙
ow.ly/mUos50WicLc
It’s work that matters — but often goes unseen.
Our 2024 Carer Survey captures this emotional reality.
We’re amplifying carer voices and calling for change.
Join us. Be part of the movement. 💙
ow.ly/mUos50WicLc
August 1, 2025 at 8:56 AM
Caring for someone with dementia is full of contradictions.
It’s work that matters — but often goes unseen.
Our 2024 Carer Survey captures this emotional reality.
We’re amplifying carer voices and calling for change.
Join us. Be part of the movement. 💙
ow.ly/mUos50WicLc
It’s work that matters — but often goes unseen.
Our 2024 Carer Survey captures this emotional reality.
We’re amplifying carer voices and calling for change.
Join us. Be part of the movement. 💙
ow.ly/mUos50WicLc
We’re thrilled to receive a National Lottery #AwardsForAll grant! 🎉
This support will help us reach more dementia carers through peer groups & digital tools — so no one feels alone.
We are grateful and looking forward to making a difference.
#DementiaCarersCount #CarerSupport #ThankYou
This support will help us reach more dementia carers through peer groups & digital tools — so no one feels alone.
We are grateful and looking forward to making a difference.
#DementiaCarersCount #CarerSupport #ThankYou
July 24, 2025 at 4:00 PM
We’re thrilled to receive a National Lottery #AwardsForAll grant! 🎉
This support will help us reach more dementia carers through peer groups & digital tools — so no one feels alone.
We are grateful and looking forward to making a difference.
#DementiaCarersCount #CarerSupport #ThankYou
This support will help us reach more dementia carers through peer groups & digital tools — so no one feels alone.
We are grateful and looking forward to making a difference.
#DementiaCarersCount #CarerSupport #ThankYou
Another brilliant day in Birmingham! ⭐️
Huge thanks to the Age UK Birmingham team for your support — together, we’re building stronger communities.
Want to know more?
Get in touch: dementiacarers.org.uk 😊
Huge thanks to the Age UK Birmingham team for your support — together, we’re building stronger communities.
Want to know more?
Get in touch: dementiacarers.org.uk 😊
July 21, 2025 at 11:33 AM
Another brilliant day in Birmingham! ⭐️
Huge thanks to the Age UK Birmingham team for your support — together, we’re building stronger communities.
Want to know more?
Get in touch: dementiacarers.org.uk 😊
Huge thanks to the Age UK Birmingham team for your support — together, we’re building stronger communities.
Want to know more?
Get in touch: dementiacarers.org.uk 😊
What if every dementia carer had a single point of contact from the moment of diagnosis? What do you think? We're sharing dementia carers' views with the Casey Commission. dementiacarers.org.uk/news/sharing...
Sharing dementia carers' views with the Casey Commission
People who use social care services, and those around them who support them through unpaid care, must be listened to by the Independent Commission for Adult Social Care
dementiacarers.org.uk
July 16, 2025 at 1:44 PM
What if every dementia carer had a single point of contact from the moment of diagnosis? What do you think? We're sharing dementia carers' views with the Casey Commission. dementiacarers.org.uk/news/sharing...
We welcome the ambitions outlined in the NHS ten year plan which include a focus on dementia and frailty. We hope to see more integrated support for dementia carers and increased understanding of their needs. #dementiacarers #dementia
dementiacarers.org.uk/news/dementi...
dementiacarers.org.uk/news/dementi...
Dementia care focus is long overdue
Dementia care has been given the prominence it deserves in the NHS 10 year plan. We hope to see more integrated support for dementia carers.
dementiacarers.org.uk
July 8, 2025 at 2:56 PM
We welcome the ambitions outlined in the NHS ten year plan which include a focus on dementia and frailty. We hope to see more integrated support for dementia carers and increased understanding of their needs. #dementiacarers #dementia
dementiacarers.org.uk/news/dementi...
dementiacarers.org.uk/news/dementi...
Additional funding for the NHS is very welcome, but today’s spending review continues to leave the burden of social care squarely on the shoulders of unpaid carers. dementiacarers.org.uk/news/where-i... #dementiacarers #socialcare
Where is the funding desperately needed for social care?
Additional funding for the NHS is welcome, but today's spending review continues to leave the burden of social care squarely on the shoulders of unpaid carers.
dementiacarers.org.uk
June 11, 2025 at 3:58 PM
Additional funding for the NHS is very welcome, but today’s spending review continues to leave the burden of social care squarely on the shoulders of unpaid carers. dementiacarers.org.uk/news/where-i... #dementiacarers #socialcare
We're joining the @csalliance.bsky.social in Parliament on 3rd July to speak to MPs about how we can work together to shape the future of social care. Make sure your MP is there #ShowUsYouCare
🚨 3.5 million people in England aren’t getting the social care they need.
We’re asking MPs to come to the #ShowUsYouCare social care parliamentary event where they will hear from people who are directly impacted by social care. Will you invite your MP? act.careandsupportalliance.com/page/170376/...
We’re asking MPs to come to the #ShowUsYouCare social care parliamentary event where they will hear from people who are directly impacted by social care. Will you invite your MP? act.careandsupportalliance.com/page/170376/...
Invite your MP to 'Show Us You Care'
3.5 million people aren’t getting the social care they need. I’ve just asked my MP to come to the #ShowUsYouCare social care parliamentary event where they will hear from people who are directly impac...
act.careandsupportalliance.com
June 9, 2025 at 10:56 AM
We're joining the @csalliance.bsky.social in Parliament on 3rd July to speak to MPs about how we can work together to shape the future of social care. Make sure your MP is there #ShowUsYouCare
Together we can make a difference. Well done @wecarecampaign.bsky.social on 7 years of speaking up and out for carers 💜
We Care is 7️⃣ today! 🎂
7 years of shouting up for #UnpaidCarers
7 years of craftivism, community and courage.
We're not slowing down. We're just getting started.
Here's what we've learnt 🧵 👇
7 years of shouting up for #UnpaidCarers
7 years of craftivism, community and courage.
We're not slowing down. We're just getting started.
Here's what we've learnt 🧵 👇
June 2, 2025 at 9:06 AM
Together we can make a difference. Well done @wecarecampaign.bsky.social on 7 years of speaking up and out for carers 💜
One of our incredible specialist dementia nurses stood alongside a former dementia carer outside the Scottish Parliament, proudly handing in our campaign report to Neil Gray MSP, Cabinet Secretary for Health and Social Care. 💜
#WhatIfImNotThereToCare #DAW2025 #DementiaActionWeek
#WhatIfImNotThereToCare #DAW2025 #DementiaActionWeek
May 22, 2025 at 7:08 PM
One of our incredible specialist dementia nurses stood alongside a former dementia carer outside the Scottish Parliament, proudly handing in our campaign report to Neil Gray MSP, Cabinet Secretary for Health and Social Care. 💜
#WhatIfImNotThereToCare #DAW2025 #DementiaActionWeek
#WhatIfImNotThereToCare #DAW2025 #DementiaActionWeek
HAND-IN #1: This Dementia Action Week, we took dementia carers' voices straight to the Senedd in Cardiff. We shared powerful real-life stories with Jeremy Miles MS, Cabinet Secretary for Health and Social Care. #WhatIfImNotThereToCare #DAW2025 #DementiaActionWeek
May 20, 2025 at 5:26 PM
HAND-IN #1: This Dementia Action Week, we took dementia carers' voices straight to the Senedd in Cardiff. We shared powerful real-life stories with Jeremy Miles MS, Cabinet Secretary for Health and Social Care. #WhatIfImNotThereToCare #DAW2025 #DementiaActionWeek
During Dementia Action Week, we’re sharing real stories that highlight why support for unpaid carers, like Elaine must become a priority: "I was struggling to stay conscious… but had to find someone to care for my mum.” dementiacarers.org.uk/news/what-if... #DAW2025 #WhatIfImNotThereToCare
What if...there's an emergency?
Elaine was struggling to remain conscious after being admitted to hospital, but needed to find care for her mum
dementiacarers.org.uk
May 19, 2025 at 9:46 AM
During Dementia Action Week, we’re sharing real stories that highlight why support for unpaid carers, like Elaine must become a priority: "I was struggling to stay conscious… but had to find someone to care for my mum.” dementiacarers.org.uk/news/what-if... #DAW2025 #WhatIfImNotThereToCare