It is fascinating following the UK Covid Inquiry & noting how incredibly wise advice from actual experts was dismissed in favour of shite from “Fuckwits” that suited the politicians & their economic interests. covid19.public-inquiry.uk/hearings/cor...

In the US alone, 6% of adults & millions of children have Long COVID, with those numbers bound to grow, yet we risk losing momentum on research to date. We need a moonshot - at least $1 billion/yr in US gov funding for the next 10 years

www.nature.com/articles/d41...

You might have heard that Boris Johnson scrawled an expletive onto a document describing #LongCovid when managing the pandemic as UK prime minister.

He also scrawled "Gulf War Syndrome stuff", another dismissive slur aimed at post-viral illness sufferers

This is the picture (cf shorturl.at/npY28 )

From Emerge Australia:

CEO Anne Wilson in a deeply moving conversation with primary school teacher Lynne Harris, mother and full-time carer of her son with #SevereMECFS – don’t miss this incredible episode

Find episodes to date here: vist.ly/ctsu

#MEcfs #CFS #PwME #ChronicFatigueSyndrome

1/

Testimony #8 @millionsmissingpod.bsky.social

Almost 10 years in 13 minutes.
When will our stories finally be heard?

#MEcfs #Lyme #FQAD #MCAS #CCI #POTS #SmallFiber #LongList

🎧 podcasts.apple.com/se/podcast/m...

Thank you for given me that opportunity. If you can, please do so. #TellYourStory 🙏

After last week's downer of a post explaining why neither Labour and National can or will do what's needed about the crises we face, I wrote something that's the complete opposite: what the future *could* look like.

Contains trains.

#nzpol 🇳🇿

The quality of life of patients w/ ME/CFS is one of the lowest of all diseases. Meanwhile experts of disability and health insurers decide that we’re able to work if we overcome our fears and try harder.

QoL of ME/CFS in comparison to other diseases:
pubmed.ncbi.nlm.nih.gov/26147503/

New Zealand

A letter has been sent to the medical director of the Royal NZ College of GPs, asking for removal of the recommendations of, & support for, the Lightning Process in #MECFS GP training.

Letter
www.s4me.info/attachments/...

Discussion
www.s4me.info/threads/rnzc...

#PwME #CFS

A reminder about #longcovidkids: they won’t present to you like #LongCovid adults, which is why cases are being wildly underreported with shaky science. Our kids deserve better. Thanks Mary Van Beusekom for covering this important topic. www.cidrap.umn.edu/covid-19/not...