Dale B
@db2024a.bsky.social
Husband, father. Independent sales and marketing professional. Patient advocate for rare disease. #EndNF #schwannomatosis #patientadvocacy
Reposted by Dale B
Reposted by Dale B
Walz: "I think we have to assume the very worst in everything this administration does, and we need to prepare for it."
March 21, 2025 at 2:00 AM
Walz: "I think we have to assume the very worst in everything this administration does, and we need to prepare for it."
Reposted by Dale B
The NORD® Claim Your Care expanded program is LIVE! Your one-stop resource for #HealthInsurance help – from navigating options to filing appeals – empowering #NORD Members and the public to advocate for patients and reduce barriers to care. Learn more: www.claimyourcare.org
#PatientAdvocacy
#PatientAdvocacy
March 10, 2025 at 8:10 PM
The NORD® Claim Your Care expanded program is LIVE! Your one-stop resource for #HealthInsurance help – from navigating options to filing appeals – empowering #NORD Members and the public to advocate for patients and reduce barriers to care. Learn more: www.claimyourcare.org
#PatientAdvocacy
#PatientAdvocacy
Reposted by Dale B
"President Donald Trump honored a child cancer survivor during his joint address to Congress. Medical school faculty who helped treat him are facing potentially devastating federal funding cuts..."
www.usatoday.com/story/news/e...
www.usatoday.com/story/news/e...
Trump honored a cancer survivor. The boy's doctors now face his budget cuts.
President Donald Trump honored a child cancer survivor during his joint address to Congress amid proposing vast cuts to medical research.
www.usatoday.com
March 10, 2025 at 6:44 PM
"President Donald Trump honored a child cancer survivor during his joint address to Congress. Medical school faculty who helped treat him are facing potentially devastating federal funding cuts..."
www.usatoday.com/story/news/e...
www.usatoday.com/story/news/e...
Reposted by Dale B
Reposted by Dale B
Welcome to the Bluesky account for Stand Up for Science 2025!
Keep an eye on this space for updates, event information, and ways to get involved. We can't wait to see everyone #standupforscience2025 on March 7th, both in DC and locations nationwide!
#scienceforall #sciencenotsilence
Keep an eye on this space for updates, event information, and ways to get involved. We can't wait to see everyone #standupforscience2025 on March 7th, both in DC and locations nationwide!
#scienceforall #sciencenotsilence
February 12, 2025 at 5:04 PM
Welcome to the Bluesky account for Stand Up for Science 2025!
Keep an eye on this space for updates, event information, and ways to get involved. We can't wait to see everyone #standupforscience2025 on March 7th, both in DC and locations nationwide!
#scienceforall #sciencenotsilence
Keep an eye on this space for updates, event information, and ways to get involved. We can't wait to see everyone #standupforscience2025 on March 7th, both in DC and locations nationwide!
#scienceforall #sciencenotsilence
Reposted by Dale B
Rare patients and families cannot afford delays or obstacles to receiving quality #healthcare. Take action now and urge Congress to prioritize several pieces of lifesaving #RareDisease legislation this #RareDiseaseDay, February 28.
All it takes to send your message is one minute: bit.ly/41ytHhR
All it takes to send your message is one minute: bit.ly/41ytHhR
February 26, 2025 at 10:25 PM
Rare patients and families cannot afford delays or obstacles to receiving quality #healthcare. Take action now and urge Congress to prioritize several pieces of lifesaving #RareDisease legislation this #RareDiseaseDay, February 28.
All it takes to send your message is one minute: bit.ly/41ytHhR
All it takes to send your message is one minute: bit.ly/41ytHhR
Reposted by Dale B
During Rare Disease Week, patients and advocates were in D.C. for an event with the NIH, FDA, and HHS to highlight work being done on treatments and cures. It was abruptly canceled. Why? The administration fired the people organizing this important event and advancing this work.
March 1, 2025 at 11:14 PM
During Rare Disease Week, patients and advocates were in D.C. for an event with the NIH, FDA, and HHS to highlight work being done on treatments and cures. It was abruptly canceled. Why? The administration fired the people organizing this important event and advancing this work.