Sarcoma Foundation of America (SFA)
@curesarcoma.bsky.social
Official Bluesky account for Sarcoma Foundation of America (SFA)
www.curesarcoma.org
www.curesarcoma.org
This month, we’re highlighting stories from sarcoma care partners. Sarcoma care partners are advocates, supporters, and sources of strength, helping their loved ones navigate appointments, treatment decisions, and the emotional ups and downs of a #sarcoma diagnosis.
#curesarcoma #carepartner
#curesarcoma #carepartner
November 11, 2025 at 3:15 PM
This month, we’re highlighting stories from sarcoma care partners. Sarcoma care partners are advocates, supporters, and sources of strength, helping their loved ones navigate appointments, treatment decisions, and the emotional ups and downs of a #sarcoma diagnosis.
#curesarcoma #carepartner
#curesarcoma #carepartner
Sarcoma affects more than just the person diagnosed.
To better support those who care for someone with sarcoma, SFA has created a private Facebook group for care partners, a space for support, discussion, and community.
Join our Caregiver Sarcoma Connect Group at www.facebook.com/groups/13429...
To better support those who care for someone with sarcoma, SFA has created a private Facebook group for care partners, a space for support, discussion, and community.
Join our Caregiver Sarcoma Connect Group at www.facebook.com/groups/13429...
November 10, 2025 at 3:00 PM
Sarcoma affects more than just the person diagnosed.
To better support those who care for someone with sarcoma, SFA has created a private Facebook group for care partners, a space for support, discussion, and community.
Join our Caregiver Sarcoma Connect Group at www.facebook.com/groups/13429...
To better support those who care for someone with sarcoma, SFA has created a private Facebook group for care partners, a space for support, discussion, and community.
Join our Caregiver Sarcoma Connect Group at www.facebook.com/groups/13429...
Researchers from the Children's Oncology Group identified molecular features of localized Ewing sarcoma linked to relapse. Patients with STAG2 mutations faced a higher relapse risk, potentially aiding physicians in strategizing treatment for high-risk patients.
pubmed.ncbi.nlm.nih.gov/41183255/
pubmed.ncbi.nlm.nih.gov/41183255/
Molecular Characterization Informs Prognosis in Patients With Localized Ewing Sarcoma: A Report From the Children's Oncology Group - PubMed
This is a prospective validation of the molecular prognostic features of patients with localized EWS receiving standard-of-care therapy on therapeutic clinical trials. Building on previous work,…
pubmed.ncbi.nlm.nih.gov
November 7, 2025 at 3:00 PM
Researchers from the Children's Oncology Group identified molecular features of localized Ewing sarcoma linked to relapse. Patients with STAG2 mutations faced a higher relapse risk, potentially aiding physicians in strategizing treatment for high-risk patients.
pubmed.ncbi.nlm.nih.gov/41183255/
pubmed.ncbi.nlm.nih.gov/41183255/
In case you missed “Understanding ctDNA in Sarcomas: Live with the Experts,” the recording is now available! Hear from Dr. David Schulman, Dr. Herbert Loong, and Dr. Edwin Choy discuss what ctDNA is and how this emerging science could shape the future of sarcoma research and care.
tr.ee/LnTnpR
tr.ee/LnTnpR
November 6, 2025 at 3:02 PM
In case you missed “Understanding ctDNA in Sarcomas: Live with the Experts,” the recording is now available! Hear from Dr. David Schulman, Dr. Herbert Loong, and Dr. Edwin Choy discuss what ctDNA is and how this emerging science could shape the future of sarcoma research and care.
tr.ee/LnTnpR
tr.ee/LnTnpR
In this episode, we speak with Chris Barry from the Bay Area. Diagnosed as a teen with FAP and later a desmoid tumor, Chris has faced significant medical challenges. Despite these, he advocates for others and discusses the reality of living with desmoid tumors, often misunderstood as “benign.”
November 4, 2025 at 3:29 PM
In this episode, we speak with Chris Barry from the Bay Area. Diagnosed as a teen with FAP and later a desmoid tumor, Chris has faced significant medical challenges. Despite these, he advocates for others and discusses the reality of living with desmoid tumors, often misunderstood as “benign.”
November is National Family Caregivers Month! If you’re a caregiver/care partner, or if you’d like to thank someone who has cared for you or your loved one, we’d love to hear from you. Email us at communications@curesarcoma.org to share your story so we can highlight it this month.
November 3, 2025 at 3:15 PM
November is National Family Caregivers Month! If you’re a caregiver/care partner, or if you’d like to thank someone who has cared for you or your loved one, we’d love to hear from you. Email us at communications@curesarcoma.org to share your story so we can highlight it this month.
Emma Mayer is currently undergoing treatment for Undifferentiated Pleomorphic Sarcoma. Despite the challenges of her diagnosis, she continues to show incredible strength and courage, raising awareness and hope by joining us at RTCS Los Angeles.
#curesarcoma #RTCSLA #sarcoma
#curesarcoma #RTCSLA #sarcoma
October 31, 2025 at 2:15 PM
Emma Mayer is currently undergoing treatment for Undifferentiated Pleomorphic Sarcoma. Despite the challenges of her diagnosis, she continues to show incredible strength and courage, raising awareness and hope by joining us at RTCS Los Angeles.
#curesarcoma #RTCSLA #sarcoma
#curesarcoma #RTCSLA #sarcoma
Research shows that pediatric patients with superficial CIC-DUX4 sarcomas may experience better outcomes than those with deep-seated tumors or adult cases. More research is needed to understand these differences and improve care for children with rare sarcomas.
pubmed.ncbi.nlm.nih.gov/41053525/
pubmed.ncbi.nlm.nih.gov/41053525/
Superficially located CIC::DUX4-rearranged sarcomas in children: insights from a long-term survival case series - PubMed
Soft tissue sarcomas account for approximately 10% of all cancers in the pediatric population, with undifferentiated round cell sarcomas-historically referred to as Ewing-like sarcomas-forming a…
pubmed.ncbi.nlm.nih.gov
October 28, 2025 at 7:01 PM
Research shows that pediatric patients with superficial CIC-DUX4 sarcomas may experience better outcomes than those with deep-seated tumors or adult cases. More research is needed to understand these differences and improve care for children with rare sarcomas.
pubmed.ncbi.nlm.nih.gov/41053525/
pubmed.ncbi.nlm.nih.gov/41053525/
Join us Monday, November 3, at 9:00 AM ET for an expert-led discussion on circulating tumor DNA (ctDNA) in sarcomas.
Submit your questions in advance or use the Q&A feature during the event. You can also share questions anytime using #SFAResearchRoundup.
Register now: tr.ee/rWyatv
#curesarcoma
Submit your questions in advance or use the Q&A feature during the event. You can also share questions anytime using #SFAResearchRoundup.
Register now: tr.ee/rWyatv
#curesarcoma
October 28, 2025 at 2:45 PM
Join us Monday, November 3, at 9:00 AM ET for an expert-led discussion on circulating tumor DNA (ctDNA) in sarcomas.
Submit your questions in advance or use the Q&A feature during the event. You can also share questions anytime using #SFAResearchRoundup.
Register now: tr.ee/rWyatv
#curesarcoma
Submit your questions in advance or use the Q&A feature during the event. You can also share questions anytime using #SFAResearchRoundup.
Register now: tr.ee/rWyatv
#curesarcoma
Natasha’s warmth, humor, and courage inspired everyone she met, both in person and through her online community.
In honor of her life and legacy, please consider contributing to Natasha’s Research Fund to advance sarcoma research and continue the impact she began.
curesarcoma.org/ways-to-help...
In honor of her life and legacy, please consider contributing to Natasha’s Research Fund to advance sarcoma research and continue the impact she began.
curesarcoma.org/ways-to-help...
October 23, 2025 at 6:26 PM
Natasha’s warmth, humor, and courage inspired everyone she met, both in person and through her online community.
In honor of her life and legacy, please consider contributing to Natasha’s Research Fund to advance sarcoma research and continue the impact she began.
curesarcoma.org/ways-to-help...
In honor of her life and legacy, please consider contributing to Natasha’s Research Fund to advance sarcoma research and continue the impact she began.
curesarcoma.org/ways-to-help...
For 25 years, SFA has invested $27 million+ in research, funding 240+ projects at leading cancer centers. These investments have advanced treatment, improved patient care, and brought us closer to finding a cure for sarcoma.
You can help SFA continue to fund lifesaving research at curesarcoma.org
You can help SFA continue to fund lifesaving research at curesarcoma.org
October 20, 2025 at 2:45 PM
For 25 years, SFA has invested $27 million+ in research, funding 240+ projects at leading cancer centers. These investments have advanced treatment, improved patient care, and brought us closer to finding a cure for sarcoma.
You can help SFA continue to fund lifesaving research at curesarcoma.org
You can help SFA continue to fund lifesaving research at curesarcoma.org
On Saturday, October 25, 2025, the Mass General Cancer Center is hosting the Sarcoma Innovations Forum, open to anyone interested. Hear from renowned medical professionals in the sarcoma space about cutting-edge diagnostics and treatments, as well as comprehensive support for patients and families.
October 16, 2025 at 2:30 PM
On Saturday, October 25, 2025, the Mass General Cancer Center is hosting the Sarcoma Innovations Forum, open to anyone interested. Hear from renowned medical professionals in the sarcoma space about cutting-edge diagnostics and treatments, as well as comprehensive support for patients and families.
Through Sarcoma Connect, the Facebook Tribute Wall, and Patient Stories, SFA helps patients and families find the support and inspiration they deserve. Whether you’re connecting with others or honoring a loved one, you’re never alone.
Find more support resources at curesarcoma.org/support-resources
Find more support resources at curesarcoma.org/support-resources
October 15, 2025 at 2:15 PM
Through Sarcoma Connect, the Facebook Tribute Wall, and Patient Stories, SFA helps patients and families find the support and inspiration they deserve. Whether you’re connecting with others or honoring a loved one, you’re never alone.
Find more support resources at curesarcoma.org/support-resources
Find more support resources at curesarcoma.org/support-resources
Before the year ends, give a gift that makes a difference.
As a member of the Seeds of Hope Society, you’ll receive exclusive updates on your impact and recognition in our annual report and gala.
Visit curesarcoma.org/seeds-of-hope
As a member of the Seeds of Hope Society, you’ll receive exclusive updates on your impact and recognition in our annual report and gala.
Visit curesarcoma.org/seeds-of-hope
October 14, 2025 at 2:00 PM
Before the year ends, give a gift that makes a difference.
As a member of the Seeds of Hope Society, you’ll receive exclusive updates on your impact and recognition in our annual report and gala.
Visit curesarcoma.org/seeds-of-hope
As a member of the Seeds of Hope Society, you’ll receive exclusive updates on your impact and recognition in our annual report and gala.
Visit curesarcoma.org/seeds-of-hope
During #BoneCancerAwarenessWeek, we stand with everyone affected by primary bone sarcomas. Among these, Osteosarcoma and Ewing Sarcoma are the most common seen in children.
Though rare, they demand greater awareness and stronger research investment to improve outcomes and advance new treatments.
Though rare, they demand greater awareness and stronger research investment to improve outcomes and advance new treatments.
October 10, 2025 at 2:48 PM
During #BoneCancerAwarenessWeek, we stand with everyone affected by primary bone sarcomas. Among these, Osteosarcoma and Ewing Sarcoma are the most common seen in children.
Though rare, they demand greater awareness and stronger research investment to improve outcomes and advance new treatments.
Though rare, they demand greater awareness and stronger research investment to improve outcomes and advance new treatments.
SFA is here to help people impacted by #sarcoma every step of the way. From clinical trial information and treatment center listings to financial assistance, SFA offers resources designed to support your needs.
Find more details on our website. www.curesarcoma.org/support-resources
#curesarcoma
Find more details on our website. www.curesarcoma.org/support-resources
#curesarcoma
October 9, 2025 at 2:45 PM
SFA is here to help people impacted by #sarcoma every step of the way. From clinical trial information and treatment center listings to financial assistance, SFA offers resources designed to support your needs.
Find more details on our website. www.curesarcoma.org/support-resources
#curesarcoma
Find more details on our website. www.curesarcoma.org/support-resources
#curesarcoma
Join us at 9:00 AM ET on November 3, 2025, for the upcoming live expert discussion about circulating tumor DNA in sarcomas.
Submit any questions you have or use the Q&A feature during the event. You can also share questions on social media using #SFAResearchRoundup.
Registration: tr.ee/rWyatv
Submit any questions you have or use the Q&A feature during the event. You can also share questions on social media using #SFAResearchRoundup.
Registration: tr.ee/rWyatv
October 8, 2025 at 3:54 PM
Join us at 9:00 AM ET on November 3, 2025, for the upcoming live expert discussion about circulating tumor DNA in sarcomas.
Submit any questions you have or use the Q&A feature during the event. You can also share questions on social media using #SFAResearchRoundup.
Registration: tr.ee/rWyatv
Submit any questions you have or use the Q&A feature during the event. You can also share questions on social media using #SFAResearchRoundup.
Registration: tr.ee/rWyatv
In the last 14 years, the Race to Cure Sarcoma has engaged over 68,000 participants and raised nearly $12 million. These funds support SFA’s research grants, fueling progress for the #sarcoma community. Join us for the final races of the year to walk, run, and make a difference.
#RTCS #curesarcoma
#RTCS #curesarcoma
October 3, 2025 at 2:15 PM
In the last 14 years, the Race to Cure Sarcoma has engaged over 68,000 participants and raised nearly $12 million. These funds support SFA’s research grants, fueling progress for the #sarcoma community. Join us for the final races of the year to walk, run, and make a difference.
#RTCS #curesarcoma
#RTCS #curesarcoma
In case you missed it, the first webinar of our pediatric sarcoma series is now available on YouTube! Hear from Dr. Damon R. Reed, Dr. Katherine A. Janeway, and Care Partner and Advocate Jenny Sage as they discuss what makes pediatric #sarcomas unique. Link in bio.
#curesarcoma #pediatricsarcoma
#curesarcoma #pediatricsarcoma
October 2, 2025 at 2:15 PM
In case you missed it, the first webinar of our pediatric sarcoma series is now available on YouTube! Hear from Dr. Damon R. Reed, Dr. Katherine A. Janeway, and Care Partner and Advocate Jenny Sage as they discuss what makes pediatric #sarcomas unique. Link in bio.
#curesarcoma #pediatricsarcoma
#curesarcoma #pediatricsarcoma
#RareCancerDay: Rare cancers account for ~25% of diagnoses but receive far less funding. Sarcoma, ~1% of adult cancers, urgently needs more research. Join SFA in advancing research: curesarcoma.org/ways-to-help/
#sarcoma #CureSarcoma #cancer
#sarcoma #CureSarcoma #cancer
September 30, 2025 at 3:10 PM
#RareCancerDay: Rare cancers account for ~25% of diagnoses but receive far less funding. Sarcoma, ~1% of adult cancers, urgently needs more research. Join SFA in advancing research: curesarcoma.org/ways-to-help/
#sarcoma #CureSarcoma #cancer
#sarcoma #CureSarcoma #cancer
This #ChildhoodCancerAwarenessMonth, we honor all families touched by pediatric sarcoma, including those carrying the memory of loved ones.
In this episode, Maria Peña shares her daughter Aubrie’s CIC-DUX4 journey and how she honors her legacy.
Listen: rss.com/podcasts/sfa...
CW: child loss
In this episode, Maria Peña shares her daughter Aubrie’s CIC-DUX4 journey and how she honors her legacy.
Listen: rss.com/podcasts/sfa...
CW: child loss
September 29, 2025 at 2:02 PM
This #ChildhoodCancerAwarenessMonth, we honor all families touched by pediatric sarcoma, including those carrying the memory of loved ones.
In this episode, Maria Peña shares her daughter Aubrie’s CIC-DUX4 journey and how she honors her legacy.
Listen: rss.com/podcasts/sfa...
CW: child loss
In this episode, Maria Peña shares her daughter Aubrie’s CIC-DUX4 journey and how she honors her legacy.
Listen: rss.com/podcasts/sfa...
CW: child loss
Recently diagnosed with #sarcoma? Our Diagnosis Discussion Guide is here to help. It provides key questions and considerations to support informed conversations with your doctor and empower you in your care decisions.
Learn more at curesarcoma.org/sfa-launches...
#curesarcoma #sarcomaresources
Learn more at curesarcoma.org/sfa-launches...
#curesarcoma #sarcomaresources
September 25, 2025 at 4:35 PM
Recently diagnosed with #sarcoma? Our Diagnosis Discussion Guide is here to help. It provides key questions and considerations to support informed conversations with your doctor and empower you in your care decisions.
Learn more at curesarcoma.org/sfa-launches...
#curesarcoma #sarcomaresources
Learn more at curesarcoma.org/sfa-launches...
#curesarcoma #sarcomaresources
In honor of World Cancer Research Day, we're highlighting the crucial role of research in the #sarcoma community. Dr. Mike Stacey, 2024 SFA Research Grant Recipient, whose chondrosarcoma research investigates how cancer cells affect normal cells to find ways to prevent disease spread. tr.ee/7CrgMn
September 24, 2025 at 1:17 PM
In honor of World Cancer Research Day, we're highlighting the crucial role of research in the #sarcoma community. Dr. Mike Stacey, 2024 SFA Research Grant Recipient, whose chondrosarcoma research investigates how cancer cells affect normal cells to find ways to prevent disease spread. tr.ee/7CrgMn
Faces Behind the Ribbon highlights Jason’s experience as a childhood Ewing’s Sarcoma survivor. September is Childhood Cancer Awareness Month, and SFA continues to honor and support those impacted by childhood sarcoma.
For more on childhood sarcoma, join us on 9/24 for our Pediatric Sarcoma Webinar.
For more on childhood sarcoma, join us on 9/24 for our Pediatric Sarcoma Webinar.
September 23, 2025 at 1:45 PM
Faces Behind the Ribbon highlights Jason’s experience as a childhood Ewing’s Sarcoma survivor. September is Childhood Cancer Awareness Month, and SFA continues to honor and support those impacted by childhood sarcoma.
For more on childhood sarcoma, join us on 9/24 for our Pediatric Sarcoma Webinar.
For more on childhood sarcoma, join us on 9/24 for our Pediatric Sarcoma Webinar.
Highlights from the 2025 Stand Up to Sarcoma Gala! From inspiring speakers to honoring this year’s award recipients, the evening was full of moments of hope, impact, and energy.
The 24th Annual Gala will return to New York City on October 6, 2026!
#curesarcoma #sarcoma #standuptosarcoma
The 24th Annual Gala will return to New York City on October 6, 2026!
#curesarcoma #sarcoma #standuptosarcoma
September 22, 2025 at 1:22 PM
Highlights from the 2025 Stand Up to Sarcoma Gala! From inspiring speakers to honoring this year’s award recipients, the evening was full of moments of hope, impact, and energy.
The 24th Annual Gala will return to New York City on October 6, 2026!
#curesarcoma #sarcoma #standuptosarcoma
The 24th Annual Gala will return to New York City on October 6, 2026!
#curesarcoma #sarcoma #standuptosarcoma