Crohn's and Colitis Australia
@crohnsandcolitisau.bsky.social
Empowering people to live fearlessly while we help search for a cure of Crohn’s and colitis.
We encourage you to read our rural and remote support resource in the link below.
crohnsandcolitis.org.au/living-with-...
crohnsandcolitis.org.au/living-with-...
April 16, 2025 at 1:06 AM
We encourage you to read our rural and remote support resource in the link below.
crohnsandcolitis.org.au/living-with-...
crohnsandcolitis.org.au/living-with-...
We need you to get active this election! If you're keen to help, take a look at our advocacy resources and get in touch with your local candidates. crohnsandcolitis.org.au/advocacy/adv...
State of the Nation Advocacy – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
April 9, 2025 at 12:44 AM
We need you to get active this election! If you're keen to help, take a look at our advocacy resources and get in touch with your local candidates. crohnsandcolitis.org.au/advocacy/adv...
Take a look at our new tutorial to help effectively use and fill out an IBD Management Plan. Use the link below to learn more and download an IBD Management Plan: crohnsandcolitis.org.au/advocacy/our...
April 8, 2025 at 1:01 AM
Take a look at our new tutorial to help effectively use and fill out an IBD Management Plan. Use the link below to learn more and download an IBD Management Plan: crohnsandcolitis.org.au/advocacy/our...
"To anyone struggling with Crohn’s or any chronic illness—don’t suffer in silence. Speak up. The people who love and support you will listen. You are not alone." Thank you Hamish for sharing your story with us! crohnsandcolitis.org.au/stories/the-...
"The people who love and support you will listen" - Hamish's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
March 26, 2025 at 12:00 AM
"To anyone struggling with Crohn’s or any chronic illness—don’t suffer in silence. Speak up. The people who love and support you will listen. You are not alone." Thank you Hamish for sharing your story with us! crohnsandcolitis.org.au/stories/the-...
There is a lack of mental health, nutrition and nursing support on the average IBD patient team, with 16% having access to a psychologist, 32% having access to an IBD nurse and 31% having access to a dietitian. Read our IBD State of the Nation report: crohnsandcolitis.org.au/advocacy/our...
IBD State of the Nation – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
March 24, 2025 at 12:02 AM
There is a lack of mental health, nutrition and nursing support on the average IBD patient team, with 16% having access to a psychologist, 32% having access to an IBD nurse and 31% having access to a dietitian. Read our IBD State of the Nation report: crohnsandcolitis.org.au/advocacy/our...
CCA's Management Plans are a tool that can be used to help improve communication between people living with IBD and their healthcare professional team by storing important information in one document for shared accessibility. Click the link to learn more: crohnsandcolitis.org.au/advocacy/our...
Crohn's disease and ulcerative colitis Management Plans – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
March 20, 2025 at 10:34 PM
CCA's Management Plans are a tool that can be used to help improve communication between people living with IBD and their healthcare professional team by storing important information in one document for shared accessibility. Click the link to learn more: crohnsandcolitis.org.au/advocacy/our...
Awareness Month is just around the corner. On May 19, sites will be lighting up across country in recognition of the over 180,000 Australians living with IBD. Help us add more sites to the list: email events@crohnsandcolitis.org.au. crohnsandcolitis.org.au/how-to-help/...
March 17, 2025 at 10:10 PM
Awareness Month is just around the corner. On May 19, sites will be lighting up across country in recognition of the over 180,000 Australians living with IBD. Help us add more sites to the list: email events@crohnsandcolitis.org.au. crohnsandcolitis.org.au/how-to-help/...
People with inflammatory bowel disease are more likely to experience significant mental health problems, such as depression and anxiety.
Learn more on mental health and IBD through the following link: crohnsandcolitis.org.au/living-with-...
IBD Nurseline: crohnsandcolitis.org.au/support/nurs...
Learn more on mental health and IBD through the following link: crohnsandcolitis.org.au/living-with-...
IBD Nurseline: crohnsandcolitis.org.au/support/nurs...
March 16, 2025 at 10:44 PM
People with inflammatory bowel disease are more likely to experience significant mental health problems, such as depression and anxiety.
Learn more on mental health and IBD through the following link: crohnsandcolitis.org.au/living-with-...
IBD Nurseline: crohnsandcolitis.org.au/support/nurs...
Learn more on mental health and IBD through the following link: crohnsandcolitis.org.au/living-with-...
IBD Nurseline: crohnsandcolitis.org.au/support/nurs...
This experience has made me more empathetic and appreciative of the small joys in life."" This March, Baylee is walking 100km with her friends and family to raise awareness for Inflammatory Bowel Disease! You can read her story, and support her here: crohnsandcolitis.org.au/stories/i-ho...
"I hope to inspire others to find their own strength in adversity" - Baylee's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
March 13, 2025 at 10:34 PM
This experience has made me more empathetic and appreciative of the small joys in life."" This March, Baylee is walking 100km with her friends and family to raise awareness for Inflammatory Bowel Disease! You can read her story, and support her here: crohnsandcolitis.org.au/stories/i-ho...
Have you used a Crohn's Disease or colitis management plan? Let us know at communications@crohnsandcolitis.org.au crohnsandcolitis.org.au/advocacy/our...
Crohn's disease and ulcerative colitis Management Plans – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
March 13, 2025 at 12:34 AM
Have you used a Crohn's Disease or colitis management plan? Let us know at communications@crohnsandcolitis.org.au crohnsandcolitis.org.au/advocacy/our...
CCA is excited to invite young people and their families to a Youth Fun Day in Western Australia!
Date: May 4, 2025
Time: 10am-2pm
Location: 100 Kirby Road, Bullsbrook, WA, 6084
Special guest: West Coast Eagles superstar Jake Waterman!
Register here: crohnsandcolitis.org.au/youth-fun-ev...
Date: May 4, 2025
Time: 10am-2pm
Location: 100 Kirby Road, Bullsbrook, WA, 6084
Special guest: West Coast Eagles superstar Jake Waterman!
Register here: crohnsandcolitis.org.au/youth-fun-ev...
March 11, 2025 at 10:42 PM
CCA is excited to invite young people and their families to a Youth Fun Day in Western Australia!
Date: May 4, 2025
Time: 10am-2pm
Location: 100 Kirby Road, Bullsbrook, WA, 6084
Special guest: West Coast Eagles superstar Jake Waterman!
Register here: crohnsandcolitis.org.au/youth-fun-ev...
Date: May 4, 2025
Time: 10am-2pm
Location: 100 Kirby Road, Bullsbrook, WA, 6084
Special guest: West Coast Eagles superstar Jake Waterman!
Register here: crohnsandcolitis.org.au/youth-fun-ev...
One of CCA's key proposals is better access to multi-disciplinary care. Research shows this could increase a person’s likelihood of working by 26% but achieving this requires urgent investment at federal and state levels. Full State of the nation report: crohnsandcolitis.org.au/advocacy/our...
March 10, 2025 at 10:09 PM
One of CCA's key proposals is better access to multi-disciplinary care. Research shows this could increase a person’s likelihood of working by 26% but achieving this requires urgent investment at federal and state levels. Full State of the nation report: crohnsandcolitis.org.au/advocacy/our...
We're gathering community feedback on the design and implementation of DNA testing legislation to share with the government. Today is the deadline for submissions. E: support@crohnsandcolitis.org.au:
crohnsandcolitis.org.au/a-total-ban-...
crohnsandcolitis.org.au/a-total-ban-...
Public consultation: DNA testing legislation – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
March 4, 2025 at 10:45 PM
We're gathering community feedback on the design and implementation of DNA testing legislation to share with the government. Today is the deadline for submissions. E: support@crohnsandcolitis.org.au:
crohnsandcolitis.org.au/a-total-ban-...
crohnsandcolitis.org.au/a-total-ban-...
The State of the Nation report found that on average a person living with IBD spends about $5,900 each year managing their disease, or about 10% of the average Australian household's disposable income. Read the full IBD State of the Nation report here: crohnsandcolitis.org.au/advocacy/our...
March 4, 2025 at 12:18 AM
The State of the Nation report found that on average a person living with IBD spends about $5,900 each year managing their disease, or about 10% of the average Australian household's disposable income. Read the full IBD State of the Nation report here: crohnsandcolitis.org.au/advocacy/our...
"If I could go back, I would change this part of my story; people cannot help or understand you if you don’t tell them what’s happening."
Thank you very much Diya for sharing your story with us! You can read her story in the link below.
crohnsandcolitis.org.au/stories/i-wi...
Thank you very much Diya for sharing your story with us! You can read her story in the link below.
crohnsandcolitis.org.au/stories/i-wi...
"I will always advocate for the safety and protection of us all" - Diya's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
March 2, 2025 at 10:16 PM
"If I could go back, I would change this part of my story; people cannot help or understand you if you don’t tell them what’s happening."
Thank you very much Diya for sharing your story with us! You can read her story in the link below.
crohnsandcolitis.org.au/stories/i-wi...
Thank you very much Diya for sharing your story with us! You can read her story in the link below.
crohnsandcolitis.org.au/stories/i-wi...
Today is World Rare Diseases Day. On this day, we are raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. You can learn more here: www.rarediseaseday.org
Rare Disease Day 2025 – Raising awareness for people living with rare diseases and their families worldwide.
www.rarediseaseday.org
February 27, 2025 at 11:13 PM
Today is World Rare Diseases Day. On this day, we are raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. You can learn more here: www.rarediseaseday.org
Thank you to everyone who contributed to the public consultation into use of Faecal Calprotectin tests. The recommendation will need to be approved by the Minister for Health and Aged Care before listing on the MBS which is anticipated for later this year. www.gesa.org.au/public/13/fi...
February 26, 2025 at 10:30 PM
Thank you to everyone who contributed to the public consultation into use of Faecal Calprotectin tests. The recommendation will need to be approved by the Minister for Health and Aged Care before listing on the MBS which is anticipated for later this year. www.gesa.org.au/public/13/fi...
What is a biologic medicine and how does it work? You can read our full Biologics for IBD resource in the link below. crohnsandcolitis.org.au/living-with-...
February 25, 2025 at 2:29 AM
What is a biologic medicine and how does it work? You can read our full Biologics for IBD resource in the link below. crohnsandcolitis.org.au/living-with-...
We're gathering community feedback on the design and implementation of DNA testing legislation to share with the government. You can submit your comment via the link below. Deadline for submissions: March 5 crohnsandcolitis.org.au/a-total-ban-...
Public consultation: DNA testing legislation – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
February 20, 2025 at 10:53 PM
We're gathering community feedback on the design and implementation of DNA testing legislation to share with the government. You can submit your comment via the link below. Deadline for submissions: March 5 crohnsandcolitis.org.au/a-total-ban-...
"Running has become more than just a sport for me; it’s a form of therapy, a way to reclaim control over my body after years of feeling helpless." We want to thank Owen for sharing his story with us! crohnsandcolitis.org.au/stories/test...
Testing my limits and inspiring others" Owen's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
February 18, 2025 at 10:26 PM
"Running has become more than just a sport for me; it’s a form of therapy, a way to reclaim control over my body after years of feeling helpless." We want to thank Owen for sharing his story with us! crohnsandcolitis.org.au/stories/test...
"Few expected Cody Ramsey to play rugby league again after he was diagnosed with ulcerative colitis in late 2022. History was against him. [This] weekend, he appeared in his first game of rugby league since September 3, 2022 www.smh.com.au/sport/nrl/co...
Cody Ramsey spent seven months in hospital and lost 28kg. 896 days later, he’s back
Doctors told him his rugby league career was over but the returning Dragons fullback proved them wrong.
www.smh.com.au
February 18, 2025 at 1:31 AM
"Few expected Cody Ramsey to play rugby league again after he was diagnosed with ulcerative colitis in late 2022. History was against him. [This] weekend, he appeared in his first game of rugby league since September 3, 2022 www.smh.com.au/sport/nrl/co...
"Australians living with IBD are calling for more support and research amid warnings the [condition] is costing the economy $7.8 billion a year. [It] is the only illness where there's been no funding for patient support over the past 10 years." www.abc.net.au/news/2025-02...
IBD is invisible, chronic, often stigmatised — and rates are growing
Severe abdominal pains, unpredictable bowel movements and fatigue are some of the serious symptoms 180,000 Australians live with every day and new research shows the often stigmatising condition is co...
www.abc.net.au
February 13, 2025 at 10:31 PM
"Australians living with IBD are calling for more support and research amid warnings the [condition] is costing the economy $7.8 billion a year. [It] is the only illness where there's been no funding for patient support over the past 10 years." www.abc.net.au/news/2025-02...
"About 180,000 Australians live with this painful, lifelong condition involving inflammation of the gastrointestinal tract. But as cases grow globally, Australia leads the pack."
Read The Australian's coverage of CCA's State of the Nation report: www.theaustralian.com.au/health/this-...
Read The Australian's coverage of CCA's State of the Nation report: www.theaustralian.com.au/health/this-...
www.theaustralian.com.au
February 12, 2025 at 9:59 PM
"About 180,000 Australians live with this painful, lifelong condition involving inflammation of the gastrointestinal tract. But as cases grow globally, Australia leads the pack."
Read The Australian's coverage of CCA's State of the Nation report: www.theaustralian.com.au/health/this-...
Read The Australian's coverage of CCA's State of the Nation report: www.theaustralian.com.au/health/this-...
CCA is pleased to announce the publication of the State of the Nation in Inflammatory Bowel Disease (IBD) in Australia report. The report provides updated data and crucial insights to improve outcomes for the nearly 180,000 Australians living with IBD. crohnsandcolitis.org.au/advocacy/our...
IBD State of the Nation – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
crohnsandcolitis.org.au
February 11, 2025 at 3:07 AM
CCA is pleased to announce the publication of the State of the Nation in Inflammatory Bowel Disease (IBD) in Australia report. The report provides updated data and crucial insights to improve outcomes for the nearly 180,000 Australians living with IBD. crohnsandcolitis.org.au/advocacy/our...
How long did it take for you to find the right gastroenterologist and/or IBD care team? Are you still searching? Let us know in the comments.
You can book an appointment with our IBD Nurseline and Helpline to receive information, advice and guidance.
crohnsandcolitis.org.au/.../ibd-tele...
You can book an appointment with our IBD Nurseline and Helpline to receive information, advice and guidance.
crohnsandcolitis.org.au/.../ibd-tele...
February 10, 2025 at 12:29 AM
How long did it take for you to find the right gastroenterologist and/or IBD care team? Are you still searching? Let us know in the comments.
You can book an appointment with our IBD Nurseline and Helpline to receive information, advice and guidance.
crohnsandcolitis.org.au/.../ibd-tele...
You can book an appointment with our IBD Nurseline and Helpline to receive information, advice and guidance.
crohnsandcolitis.org.au/.../ibd-tele...