I think anything less than a full published apology along with his resignation is minimizing the negative impact and betrayal this caused

Ugh I read it over on X and was appalled. Just signed! I also think he should resign over this. It’s incredibly dangerous when so many people, especially those newly sick or undiagnosed, are pushing themselves into decline as we speak

I don’t know that anybody will be reading this but that’s me! If you feel like we could connect on these topics I’d love follow you back

I recently released my first album after 5 years of writing and playing music alone at home. It’s called Depressed In the Sun and is released under my project name Boundless Blue. Reconnecting to music and playing piano has been a huge inner child healing moment for me

Things I talk about will range from any of my special interests, to disability, to ME advocacy, and just generally venting about my life. I started a podcast with my best friend who has severe ME following COVID called From The Sickbed.

I have a cat named Kiki and live with my partner Yuto, who is also my caregiver. I still make art when I can. I do my little activities at home that I’m very lucky to still be able to do at all. I like to bake when energy permits and have many plants 🌱 I get outside sparingly

I have no background in science but I use my skills and training for researching from grad school to study my illnesses, and advocate for myself and others. I work in a limited part time capacity from home now as a peer supporter offering support related to my lived experiences

Now my ME is moderate, and I’ve been a wheelchair user for 3 years. My politics are far left and align with Disability Justice more than anything else. Still COVID-ing for my survival, always critiquing white supremacy, and trying to lean more into praxis than theory (though I do love some theory)

It was four years after onset until I was diagnosed with ME. After that followed diagnoses of POTS, Migraine, Endometriosis, Chiari Malformation, and hEDS. Some of these I’d had all my life. I was relatively “healthy” in the before times but there were signs I was disabled all along from childhood

I spent two weeks teaching an intensive summer class for high schoolers for college credit. Two weeks commuting downtown every day and teaching hours a day. I was still in denial but I was barely making it out of bed to teach. After that course (and grad school) ended I never recovered my baseline

I went to school hoping and wishing I could become an art professor teaching undergrad in addition to pursuing my art career. Immediately after graduating I reluctantly realized I had to give up that dream. I taught a class the summer after finishing school that obliterated me.

Grad school was very difficult, and initiated a lot of awakenings. I realized I was autistic and got diagnosed. The autistic burnout I experienced was a huge accelerant for my first big health decline after graduating

It’s been over 7 years since the “Big Sick” which was the onset of my post viral ME/CFS (2017) I got Mono a month before my move to Chicago for grad school to get my Masters in Fiber Arts. When I first got sick I was “mild” and could still attend school

This is my experience too. Doctors don’t have to be experts to be helpful and even effective physicians. A willingness to be open minded and listen goes a long way

I found a decent neurologist who isn’t especially knowledgeable about ME but he found and monitors my chiari malformation, never disparages or minimizes my symptoms, and is helpful with meds & referrals. Before him I have plenty of neuro horror stories though

FELLOW LEFTISTS, fascism attacks disabled/vulnerable people first.

Abandoning them in a pandemic because political interests told you to, was a mistake!

Correct course!

Ahh that was so frustrating wasn’t it? Now she’s dirty deleted everything and probably won’t learn anything but I’m glad we stuck up for ourselves ❤️‍🩹