Crystal M Williams
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Septimus Brown
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Suzanne Peasley 🇨🇦
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Chapman's Ice Cream
Chapman's Ice Cream
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Mark Carney
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Henry Winkler
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William Shatner
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Ryan Reynolds
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LeVar Burton
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Wil Wheaton
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Open Research and Public Engagement Roadmap
Open Research and Public Engagement Roadmap
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Knockabout Media
Knockabout Media
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The Independent Author Network
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Linda McKibben MD MPH DrPH (@familymam.medsky.social)
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Jennifer J Brown
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akcbrmom.bsky.social
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Epigenetics Podcast
Epigenetics Podcast
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CRID - Unique Patient ID for rare disease clinical research
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Rare Disease Clinical Trial Network
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Rare Disease and Neurodevelopmental Disorders Lab
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National Organization for Rare Disorders (NORD)
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The Rare Disease Data Repository
The Rare Disease Data Repository
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Syngap Research Fund
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FamilieSCN2A Foundation
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Coalition to Cure CHD2
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EveryLife Foundation for Rare Diseases
EveryLife Foundation for Rare Diseases
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Journal of Communication in Healthcare (JCIH)
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Rare Ireland
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Boston Children’s Hospital
Boston Children’s Hospital
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Kabuki Syndrome Foundation
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Paula Whyman
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Elizabeth Rosner
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