Clare Daly
@clarejdaly.bsky.social
ME/CFS (1993) | Long Covid (2020).
Occasionally Support @ Visible Health
Occasionally Support @ Visible Health
Really nice idea!
FYI for anyone that might be interested, there is also a Visible Facebook group already which is run by volunteers.
FYI for anyone that might be interested, there is also a Visible Facebook group already which is run by volunteers.
January 24, 2025 at 1:36 AM
Really nice idea!
FYI for anyone that might be interested, there is also a Visible Facebook group already which is run by volunteers.
FYI for anyone that might be interested, there is also a Visible Facebook group already which is run by volunteers.
Reposted by Clare Daly
In case it helps, here’s a link to our one-pager on how to use heart rate for pacing. workwellfoundation.org/wp-content/u...
workwellfoundation.org
December 2, 2024 at 10:45 PM
In case it helps, here’s a link to our one-pager on how to use heart rate for pacing. workwellfoundation.org/wp-content/u...
I’m so sorry to hear this Dan. But exactly my experience going from being a kid with ME in the 90s to an adult with LC in 2020. Next to no change in quality of care.
November 25, 2024 at 2:16 AM
I’m so sorry to hear this Dan. But exactly my experience going from being a kid with ME in the 90s to an adult with LC in 2020. Next to no change in quality of care.
Reposted by Clare Daly
Remember: you’re working with abnormal physiological systems that have lost the ability to recover and adapt to stimulation. Telling patients to do more on any kind of schedule—externally referenced, symptom-titrated, etc.—loses sight of this *basic fact* of PEM/PENE to the detriment of the patient.
November 16, 2024 at 5:31 PM
Remember: you’re working with abnormal physiological systems that have lost the ability to recover and adapt to stimulation. Telling patients to do more on any kind of schedule—externally referenced, symptom-titrated, etc.—loses sight of this *basic fact* of PEM/PENE to the detriment of the patient.