Maybe possibly a Crow
@chaotickestrel.bsky.social
Chaos Goblin 24/7
AutiHD, queer, and disabled. Any pronouns.
Swiss army knife being for Hollow Crow Studios.
Kindness for kindnesses sake. Always.
"Be the weeds, Grow in concrete in defiance of those who would thwart you"
https://hollowcrow.carrd.co/
AutiHD, queer, and disabled. Any pronouns.
Swiss army knife being for Hollow Crow Studios.
Kindness for kindnesses sake. Always.
"Be the weeds, Grow in concrete in defiance of those who would thwart you"
https://hollowcrow.carrd.co/
I cannot put into words how relatable this is.
November 14, 2025 at 2:17 AM
I cannot put into words how relatable this is.
Its okay. I have new arm cane type things that I should be receiving early next year and hopefully that helps while I save for a new wheelchair ^^
November 11, 2025 at 10:59 PM
Its okay. I have new arm cane type things that I should be receiving early next year and hopefully that helps while I save for a new wheelchair ^^
I am also an ambulatory wheelchair user. Though persephone (my wheelchair) has seen better days at this point and I can't replace her so I don't leave my house much 😬
November 11, 2025 at 10:55 PM
I am also an ambulatory wheelchair user. Though persephone (my wheelchair) has seen better days at this point and I can't replace her so I don't leave my house much 😬
Yeah, one of my passion project things I do is advocacy docs for stuff. I think thus far I've done MCAS, POTs, and EDS but I plan to do a bunch of others eventually, they have facts and resource links and stuff to make the self advocacy process easier.
It's super frustrating. I'll manage, but ugh.
It's super frustrating. I'll manage, but ugh.
November 6, 2025 at 2:28 AM
Yeah, one of my passion project things I do is advocacy docs for stuff. I think thus far I've done MCAS, POTs, and EDS but I plan to do a bunch of others eventually, they have facts and resource links and stuff to make the self advocacy process easier.
It's super frustrating. I'll manage, but ugh.
It's super frustrating. I'll manage, but ugh.
I actually wrote up a self advocacy document about MCAS for others to use a while back, so I know a fair bit about it. Right now the running theories im working with from people who experience them/doctors, are Lupus, Sjogrens, or MCAS. But as of yet nobody has been able to give me a firm answer.
November 6, 2025 at 2:23 AM
I actually wrote up a self advocacy document about MCAS for others to use a while back, so I know a fair bit about it. Right now the running theories im working with from people who experience them/doctors, are Lupus, Sjogrens, or MCAS. But as of yet nobody has been able to give me a firm answer.
And by flu like I mean like... muscle aches , headache, nausea, gastro cramps etc. That are all worse than my baseline... Not like... coughing and sneezing.
November 6, 2025 at 2:09 AM
And by flu like I mean like... muscle aches , headache, nausea, gastro cramps etc. That are all worse than my baseline... Not like... coughing and sneezing.
Not technically. Infact most of my allergic reactions aren't histamine based, I basically just get like.. a bad flu-like thing for a week or so. Except for sulfa based meds. Those tank my white blood cells, turn my whole body into a swollen mess, and try to end me.
November 6, 2025 at 2:05 AM
Not technically. Infact most of my allergic reactions aren't histamine based, I basically just get like.. a bad flu-like thing for a week or so. Except for sulfa based meds. Those tank my white blood cells, turn my whole body into a swollen mess, and try to end me.
Like I get weird rashes on my face at random. My bones and muscles always hurt. I break out in hives for no reason. Im constantly in pain and nauseated. Among many other problems. Why would *any* of that spell "happy my test results came back with no answer." I don't understand the thought process.
November 5, 2025 at 3:53 PM
Like I get weird rashes on my face at random. My bones and muscles always hurt. I break out in hives for no reason. Im constantly in pain and nauseated. Among many other problems. Why would *any* of that spell "happy my test results came back with no answer." I don't understand the thought process.
Without an actual *name* to whatever it is I can't treat it, research it, or find anybody else living with whatever is wrong with me. Im in this limbo of *knowing* something is wrong and not having a name to put to it. And then doctors act like I should be happy when my test results are normal.
November 5, 2025 at 3:51 PM
Without an actual *name* to whatever it is I can't treat it, research it, or find anybody else living with whatever is wrong with me. Im in this limbo of *knowing* something is wrong and not having a name to put to it. And then doctors act like I should be happy when my test results are normal.
I'm very much in a "The world is frankly horrific and stressful for the most part so if decorating for Christmas on November 1st or before even is something that brings you even the smallest amount of joy, do it. Please." Mindset about people who start celebrating "too early"
October 31, 2025 at 3:48 AM
I'm very much in a "The world is frankly horrific and stressful for the most part so if decorating for Christmas on November 1st or before even is something that brings you even the smallest amount of joy, do it. Please." Mindset about people who start celebrating "too early"