On the back of the haemostasis community being really engaged this week during #ISTH2025 I'm resharing the @wfhemophilia #nurses committee global #tattoo survey link for anyone interested in participating vm.tiktok.com/ZNdyDVavx/

#nurses are ensuring physical & psychological safety of people across the world with all different conditions. Have you done something you think others should know about? Anything you want to share? Is your team outstanding? Nominate for a @nursingtimes.bsky.social award today

The @wfhemophilia #nurses committee would be very grateful for participation in this global tattoo survey for people living with #bleedingdisorders please share too. Thank you #RareDiseaseDay2025 forms.office.com/e/p97n65AExs

If you are a #bleedingdisorders #nurse in #Europe please respond to this survey in the next few days. It will take you 2 minutes, Adapted for some European languages too but had a limit to amount so apologies if not covered forms.office.com/pages/respon...

Been watching the #sixnations & fancy giving #rugby a go? Why not come join @WathRugby? With a new growing #girlsrugby #WathWildcats we can accommodate all girls ages too. Want something a bit slower #WathWarriers walking might be for you. #Yorkshire @RFU #Rotherham

During the @NursesHna AGM we launched our survey evaluating current levels of practice, their correspondence to both our competency framework & the RCN levels of practice. If you are a #nurse working with #bleedingdisorders in the UK please participate
forms.gle/aF7F6GQikev4...

Great job from @NursesHna on the annual UK #bleedingdisorders #nurses meeting. A fantastic session from @alisonleary1.bsky.social with her call to arms articulating the physical & psychological safety we provide as CNSs. Thought provoking debate, case studies & workshop. Even a salsa 💃 class

Another year, another great Sobi #CATCH meeting. Always great to attend a meeting where all disciplines come together with affected individuals to discuss evidence, practice & themes relating to #haemophilia care. onlinelibrary.wiley.com/doi/10.1111/ha…

The evolving role of the specialist #nurse in #chronichealth conditions still involves engaged, proactive approach to care, signposting, navigating & coordinating care provision #haemophilia #bleedingdisorders Identifying gaps in the evidence.

With the introduction of #GeneTherapy for #haemophilia in the UK, new guidance to support MDT models, shared decision making discussions & therapy pathways has been necessary onlinelibrary.wiley.com/doi/10.1111/...

Fabulous to be able to share my experience of #bleedingdisorders #nursing with the teams from the South West #haemophilia network region & participate in some great discussion about evidence based practice, sharing our real world evidence & what care provision needs to look like