Camille
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camillesonwheels.bsky.social
Camille
@camillesonwheels.bsky.social
AuDHD, hEDS & co, ME/CFS
They/them
Queer

Mostly housebound, but I love a vintage dress when I make it out. Still masking

Profile pic ID: Selfie of Camille, a white femme with red braided hair, smiling with an orange cat on their lap.
Pinned
Haven’t gotten around to writing an intro post, so here’s this thread about identity and illness instead
I’ve been struggling with feeling like illness/disability has overtaken my life, and like my personality is getting lost in the process. So here are 10 things about me that have nothing to do with illness:

🧵 #NEISVoid
Reposted by Camille
right now, I'm surviving on mutual aid. without it, I don't have a way to meet my basic needs or stay safe while I'm this sick.

if you're able to help or share, it makes a real difference in whether I can keep going.

#NEISvoid
💸💕
I'm living with very severe ME/CFS and completely bedbound. I rely entirely on support from others to meet my basic needs and stay alive.

I have a new ko-fi goal! I was recently vetted by @thedasp.bsky.social.

CA and Ven: kookysnell
ko-fi.com/moriende
paypal.me/belzomalsh
August 12, 2025 at 11:42 AM
Reposted by Camille
Nowhalle.Etsy.com is 20% off (until 11:59pm EST)!

I am a #Disabled #Creator who sells #Stickers & #Buttons for #ChronicIllness, #Spoonies, #Disability, & #MentalHealth

You'll find #DisabilityPride, #Awareness, & #MedicalAlert!

SHOP NOW! BIGGEST SALE UNTIL THE HOLIDAYS!

#CreatorLift #NEISVoid
July 31, 2025 at 8:24 PM
It’s never too late to start masking again!!
This is a growing body of research and one that all people with connective tissue disorders need to be aware of.
😷
#EDS #NEISvoid
People with Joint hypermobility at increased risk of long COVID or post Covid-19.
bmjpublichealth.bmj.com/content/2/1/...
July 28, 2025 at 4:30 PM
Feeling really discouraged trying to refill my cromolyn RX. The pharmacy keeps canceling my orders because they haven’t gotten new stock. It’s been at least 2 months of trying to get refills, and I would like to not have to ration my medication and also hopefully be free of pressure hives

#NEISVoid
July 24, 2025 at 10:44 PM
Help Mori get the supplies they need to be able to recover from this ME/CFS crash! They haven’t been able to post as much because of their severe crash, so it’s extra important to share their post for visibility

#ChronicIllness
#Disabled
#MutualAid
#NEISVoid
in a very severe ME/CFS crash (10+ days), completely bedbound & missed vital mutual aid time. I need help catching up for meds, hygiene, & survival needs.

CA: $kookysnell
V: @kookysnell
ko-fi.com/moriende
paypal.me/belzomalsh
#NEISvoid #SignalBoost #HelpSky #Disabled
💸💕
July 23, 2025 at 8:06 PM
Reposted by Camille
On my first day back
my colleague asked
what my secret is,
for whenever he travels
he winds up getting sick
but that never seems
to happen to me,
so I pointed to my mask,
and I could tell right away
this wasn’t the explanation
he wanted.
July 21, 2025 at 7:19 PM
Reposted by Camille
It shouldn’t be considered radical to believe that every human life has value.

It shouldn’t be controversial to say no one should have to prove their worth.

It shouldn’t be divisive to fight for a basic income, healthcare, education, food and housing for all.
July 12, 2025 at 3:30 AM
Reposted by Camille
People have no idea how hard it is to be a complex chronic illness patient.

They always think they will be the exception.

That we aren’t trying hard enough.

That help exists but we don’t want it.

There is no help.

Many of these conditions have no cure & few treatments. 🧵
July 10, 2025 at 3:00 AM
Having one of those days where I simply cannot get a handle on spatial awareness. I’ve grazed so many walls with my wheelchair in the last 10 minutes
July 10, 2025 at 8:14 PM
Reposted by Camille
PSA: There’s a difference between wearing a mask or respirator & wearing a gaiter or face covering to disguise identity. It’s important to discern & communicate this nuance because if you don’t, you might encourage elected officials to ban masks for everyone, which would be a public health disaster.
July 10, 2025 at 5:17 PM
Mori is recovering from an ME/CFS crash and needs money for meds, food, and phone plan. They’re severely ill and need supplies to get out of this crash

Please share and contribute!

#ChronicIllness
#Disabled
#HelpSky
#NEISVoid
hi!

my July goal is $969.49.

it includes the rest of June since that goal was not met!

we've raised $270.51.

this is for meds, supplies, & $180/yr phone plan (due soon).

anything helps.

CA: $kookysnell
V: @kookysnell
paypal.me/belzomalsh
ko-fi.com/moriende

#NEISvoid
#disabled
July 9, 2025 at 7:00 PM
Reposted by Camille
hi!

my July goal is $969.49.

it includes the rest of June since that goal was not met!

we've raised $270.51.

this is for meds, supplies, & $180/yr phone plan (due soon).

anything helps.

CA: $kookysnell
V: @kookysnell
paypal.me/belzomalsh
ko-fi.com/moriende

#NEISvoid
#disabled
July 1, 2025 at 3:36 PM
Reposted by Camille
Disabled people have been screaming about fascism for years.

We screamed when the government rushed “back to normal” with respect to Covid & said we would be left by the wayside.

We screamed about mask bans.

We pointed out that pandemics historically lead to fascism 🧵
July 8, 2025 at 3:07 AM
Reposted by Camille
Boycotting is a privilege.

Prepping is a privilege.

Protesting is a privilege.

Leaving the country is a privilege.

Not all solutions are accessible to everyone.

We need robust community care to ensure people aren’t left behind.
July 4, 2025 at 8:42 AM
Reposted by Camille
“Only the vulnerable die of Covid”

“Genuinely disabled people won’t lose Medicaid”

“How many comorbids did they have?”

“Disabled people are stealing my tax dollars”

These are all eugenicist talking points.

Disabled people are not expendable.

They’re conditioning you to accept atrocities.
July 5, 2025 at 3:09 AM
Reposted by Camille
Many disabled people can’t “shop local”

We’re housebound and often bedbound.

We lack disposable income.

We have huge medical and caretaking expenses that wipe out discretionary spending.

Instead of shaming us, help us. Take us to the store. Donate to mutual aid. Shop for us.
July 5, 2025 at 3:22 AM
Reposted by Camille
Every week someone tells me they had to put Covid aside to focus on bigger issues like fascism. The thing is, eugenics and fascism go hand in hand.

Historically pandemics have ignited fascism & normalized eugenics & indifference
July 3, 2025 at 7:33 PM
Reposted by Camille
One of the most straightforward, radical, life affirming actions you can take right now is wearing a K/N95 mask. Community care & self care rolled into one easy act. Show up for yourself and your neighbors.
July 3, 2025 at 6:53 PM
Reposted by Camille
They vowed to “Make America Healthy Again.”

Instead, they:

Kicked millions of people off health insurance

Closed hundreds of hospitals, nursing homes, and reproductive health clinics

Cut billions of dollars from science research

Fired government scientists and replaced them with antivaxxers
July 3, 2025 at 7:05 PM
Reposted by Camille
The UK just voted to slash disability benefits, while they prepare to roll out an Assisted Dying program

The US just voted to slash Medicaid & food assistance

Canada’s disability benefit is out of reach for most

This is ableism & eugenics. Nowhere is safe for disabled people
July 1, 2025 at 8:43 PM
Reposted by Camille
As disability pride month starts up, this is my reminder to everyone that you should still be masking. Masking helps keep people safe and helps people who wouldn't regularly be able to join folks because of health concerns welcome in the community spaces we share.
July 1, 2025 at 5:14 PM
Reposted by Camille
hello, everyone! it is a new month, which means a new self-promotion day on r/cfs.

I am trying to get upvotes for my post so I can be seen by more people! if you have a Reddit account, it would really help me!

#disabled
#helpsky
#chronicillness
#signalboost
💕💸

www.reddit.com/r/cfs/s/MW7p...
From the cfs community on Reddit
Explore this post and more from the cfs community
www.reddit.com
July 1, 2025 at 1:59 PM
Reposted by Camille
So few people really mean the "in sickness" part of in sickness and in health

Anyway, marriage and partners aside, people with Long COVID and similar illnesses (ME/CFS, Lyme) get ditched by friends and family too

We get left behind by most everyone. I'm glad I was told this when I first got sick--
My heart is being broken by reddit threads from folks who were left by their partners after they got Long Covid
July 1, 2025 at 4:41 PM
Reposted by Camille
very fucked up to simultaneously be following what’s happening to medicaid here & what’s happening with PIP in the UK
July 1, 2025 at 4:19 PM
Reposted by Camille
It’s Disability Pride Month!

Many of you have been disabled by one or multiple covid infections and don’t know it yet.

Many others are aware, though, and have been sounding the alarm for years.

Stop disabling your communities by breathing all over everyone.

WEAR A MASK!
July 1, 2025 at 8:32 PM