Betsy Pilon
@betsypilon.bsky.social
Working to improve outcomes for neonatal & pediatric-acquired hypoxic brain injury. Powered by hope and coffee.
Current advocacy spice level:
🌶️🌶️🌶️🌶️/🌶️🌶️🌶️🌶️🌶️
#HopeforHIE #NeoSky #NeuroSky #PatientAdvocacy
Current advocacy spice level:
🌶️🌶️🌶️🌶️/🌶️🌶️🌶️🌶️🌶️
#HopeforHIE #NeoSky #NeuroSky #PatientAdvocacy
Reposted by Betsy Pilon
HIE registries are so incredibly important for figuring out the best diagnostic and treatment modalities for these kids. @hopeforhie.org @betsypilon.bsky.social
October 11, 2025 at 9:17 PM
HIE registries are so incredibly important for figuring out the best diagnostic and treatment modalities for these kids. @hopeforhie.org @betsypilon.bsky.social
Eternally grateful to not understand these people.
June 25, 2025 at 7:07 PM
Eternally grateful to not understand these people.
I “fucking voted for them” this time and last time and next time. Touch grass.
June 19, 2025 at 1:21 AM
I “fucking voted for them” this time and last time and next time. Touch grass.
Then why aren’t Democrats doing the human things?
June 16, 2025 at 9:52 PM
Then why aren’t Democrats doing the human things?
Yeah. I love my dog. But my disabled child needing Medicaid services is in a completely different realm of priority. Eva. People are dying.
June 16, 2025 at 9:51 PM
Yeah. I love my dog. But my disabled child needing Medicaid services is in a completely different realm of priority. Eva. People are dying.
I love dogs and think it’s a great idea. But this seems like it should be at the bottom of priorities right now.
June 16, 2025 at 9:50 PM
I love dogs and think it’s a great idea. But this seems like it should be at the bottom of priorities right now.