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This work makes it clear how important #HealthLiteracy is in supporting people to self-manage their health. Supporting people to find, evaluate and use health information is absolutely essential for them to self-manage their health effectively. /9

It is worth noting that positive and negative affect were not significant contributors to patient activation. The model is more complex than perhaps we originally thought or there may be condition-specific factors. /8

There was also huge variation in patient activation scores across the sample. This isn’t in the paper but some participants had very big changes to their scores in the 9 months between surveys. This means planning self-management support based on patient activation should account for fluctuation. /7

I found some interesting stuff about patient activation! Self-efficacy, internal health locus of control, and 2 aspects of health literacy (having enough info to manage health and understanding this info enough to know what to do) explained variance in patient activation. /6

251 people took part. 94% were white British – there’s a lot more I know now about gathering data from a diverse range of people that I didn’t know then. Participants were mainly female (74%), with Rheumatoid Arthritis (66%) and had lived with their condition for an average of 14.5 years. /5

I had done #QualitativeResearch to help me decide which factors might be important, and added demographic questions. The existing model of patient activation suggested positive & negative affect was important, so I added this to see if this was the case in people with #InflammatoryArthritis. /4

I wanted to find factors that explained differences in patient activation. I decided to do a survey with 2 time points with the same people to see if patient activation also changed over time. /3

I’ve picked a paper I did as part of my #PhD funded by @versusarthritis.bsky.social and published with @rheumjnl.bsky.social. I looked at Patient Activation – how able and willing someone is to take an active role in self-managing their health. /2