Autidacts.org
@autidacts.org
The Autidacts community project: Explore news on autism, articles, translations, a list of autistic authors, interactive bibliographies, and more...
https://autidacts.org
#AutismArticles #AutisticAuthors #Autism #Autistic #ActuallyAutistic #AutRes
https://autidacts.org
#AutismArticles #AutisticAuthors #Autism #Autistic #ActuallyAutistic #AutRes
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Autidacts.org
@autidacts.org
· Oct 11
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Autidacts.org
Autidacts.org is a new site dedicated to sharing resources on autism, featuring an open journal where anyone can write about autism.
Our mission is to amplify autistic voices and promote understanding between autistic and non-autistic people.
Our website is available in English and French.
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Our mission is to amplify autistic voices and promote understanding between autistic and non-autistic people.
Our website is available in English and French.
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Editorial whose lead author has received AIMS-2-TRIALS funding mentions participatory research once—under “Shaping the future.” In 2025, that’s insufficient: participatory methods must be embedded in current studies, especially on interventions & therapeutic outcomes. doi.org/10.3389/frch...
Frontiers | Editorial: Advancing interventions and therapeutic outcomes for autistic youth: a multidisciplinary perspective
Current status of the field Autistic people and their families experience barriers in access to health and social care services (Mendez et al., 2023). Despit...
doi.org
September 21, 2025 at 2:12 PM
Editorial whose lead author has received AIMS-2-TRIALS funding mentions participatory research once—under “Shaping the future.” In 2025, that’s insufficient: participatory methods must be embedded in current studies, especially on interventions & therapeutic outcomes. doi.org/10.3389/frch...
1/6 The citizen-led project Autistic Participatory Metrics is officially underway — and its viability depends on volunteer participation — we need you.
github.com/cedric-detie...
github.com/cedric-detie...
GitHub - cedric-detienne/Autistic-participatory-metrics: Empirical tools and methods to analyse participatory approaches in autism research
Empirical tools and methods to analyse participatory approaches in autism research - cedric-detienne/Autistic-participatory-metrics
github.com
September 20, 2025 at 2:10 PM
1/6 The citizen-led project Autistic Participatory Metrics is officially underway — and its viability depends on volunteer participation — we need you.
github.com/cedric-detie...
github.com/cedric-detie...
📢 Call for contributors
Autistic Participatory Metrics — A new citizen-led initiative to assess to what extent autistic participation is included in autism research projects.
Looking for autistic people, researchers, coders, and allies to get involved.
#Autism #OpenScience #ParticipatoryResearch
1/4
Autistic Participatory Metrics — A new citizen-led initiative to assess to what extent autistic participation is included in autism research projects.
Looking for autistic people, researchers, coders, and allies to get involved.
#Autism #OpenScience #ParticipatoryResearch
1/4
May 19, 2025 at 3:46 PM
📢 Call for contributors
Autistic Participatory Metrics — A new citizen-led initiative to assess to what extent autistic participation is included in autism research projects.
Looking for autistic people, researchers, coders, and allies to get involved.
#Autism #OpenScience #ParticipatoryResearch
1/4
Autistic Participatory Metrics — A new citizen-led initiative to assess to what extent autistic participation is included in autism research projects.
Looking for autistic people, researchers, coders, and allies to get involved.
#Autism #OpenScience #ParticipatoryResearch
1/4
Regarding the "AIMS-2-TRIALS Autism Research": "Neurodivergent researchers were found to be under-represented in senior and clinical roles. The significant association between neuro-identity and career reinforce the notion that career progression may be influenced by neurodivergent identity."
April 25, 2025 at 8:15 AM
Regarding the "AIMS-2-TRIALS Autism Research": "Neurodivergent researchers were found to be under-represented in senior and clinical roles. The significant association between neuro-identity and career reinforce the notion that career progression may be influenced by neurodivergent identity."
"approaches focused on high-quality clinical evidence (e.g. defined as meta-analysis of randomized controlled trials) may conflict with more pragmatic understandings of relevant knowledge including clinical expertise, patient experiences, and real-world data"
ojrd.biomedcentral.com/articles/10....
ojrd.biomedcentral.com/articles/10....
‘We are the engine’: a focus group study on clinical practice guideline development with European patient advocates for rare congenital malformations and/or intellectual disability - Orphanet Journal ...
Background Individuals living with rare congenital malformations and/or intellectual disability often face challenges in accessing appropriate healthcare. Clinical practice guidelines (CPGs) may serve...
ojrd.biomedcentral.com
April 16, 2025 at 4:25 PM
"approaches focused on high-quality clinical evidence (e.g. defined as meta-analysis of randomized controlled trials) may conflict with more pragmatic understandings of relevant knowledge including clinical expertise, patient experiences, and real-world data"
ojrd.biomedcentral.com/articles/10....
ojrd.biomedcentral.com/articles/10....
"Non-speaking #autistic people should be involved in the design and conduct of research in which they are included as participants."
Interactive bibliography (20% of references include at least one openly autistic author):
autidacts.org/en/pg-ref/1601
Interactive bibliography (20% of references include at least one openly autistic author):
autidacts.org/en/pg-ref/1601
Conceptualizing and describing autistic language: Moving on from ‘verbal’, ‘minimally verbal’ and ‘nonverbal’
Learn more
autidacts.org
April 13, 2025 at 5:07 PM
"Non-speaking #autistic people should be involved in the design and conduct of research in which they are included as participants."
Interactive bibliography (20% of references include at least one openly autistic author):
autidacts.org/en/pg-ref/1601
Interactive bibliography (20% of references include at least one openly autistic author):
autidacts.org/en/pg-ref/1601
"organisations do not always explicitly state the bounds of the representational role in #autism advocacy"
pubmed.ncbi.nlm.nih.gov/40130705/
pubmed.ncbi.nlm.nih.gov/40130705/
Who Tweets for the autistic community? A natural language processing-driven investigation - PubMed
The formation of autism advocacy organisations led by family members of autistic individuals led to intense criticism from some parts of the autistic community. In response to what was perceived as a ...
pubmed.ncbi.nlm.nih.gov
April 12, 2025 at 3:03 PM
"organisations do not always explicitly state the bounds of the representational role in #autism advocacy"
pubmed.ncbi.nlm.nih.gov/40130705/
pubmed.ncbi.nlm.nih.gov/40130705/
Reposted by Autidacts.org
New article out on @theconversation.com on why many Autistic adults don't like puzzle pieces symbols being used to represent us:
theconversation.com/why-the-auti...
#Autism #ActuallyAutistic
theconversation.com/why-the-auti...
#Autism #ActuallyAutistic
Why the autism jigsaw puzzle piece is such a problematic symbol
To many autistic people, the puzzle piece represents stigma, exclusion and a harmful push to make them conform.
theconversation.com
April 10, 2025 at 5:12 PM
New article out on @theconversation.com on why many Autistic adults don't like puzzle pieces symbols being used to represent us:
theconversation.com/why-the-auti...
#Autism #ActuallyAutistic
theconversation.com/why-the-auti...
#Autism #ActuallyAutistic
A new review explores 'mirror neurons' approaches in neurorehabilitation for #autistic people. But imagine if autistic people were the majority — would we target non-autistic neurology for **rehabilitation** ? #Autism #Research
onlinelibrary.wiley.com/doi/full/10....
onlinelibrary.wiley.com/doi/full/10....
What Else Is Happening to the Mirror Neurons?—A Bibliometric Analysis of Mirror Neuron Research Trends and Future Directions (1996–2024)
We conducted a bibliometric analysis of mirror neuron research to examine global publication trends, methodological advancements, and emerging applications. Our findings highlight robust internationa...
onlinelibrary.wiley.com
April 11, 2025 at 12:59 PM
A new review explores 'mirror neurons' approaches in neurorehabilitation for #autistic people. But imagine if autistic people were the majority — would we target non-autistic neurology for **rehabilitation** ? #Autism #Research
onlinelibrary.wiley.com/doi/full/10....
onlinelibrary.wiley.com/doi/full/10....
"parent satisfaction was highly reported in PEERS studies (...), suggesting the undoubtedly success of intervention in meeting the needs of parents raising an adolescent with ASD" link.springer.com/article/10.1...
Autistic adolescents’ satisfaction was not reported. And what about harm analysis?
Autistic adolescents’ satisfaction was not reported. And what about harm analysis?
Effects of social skills training on social responsiveness of people with Autism spectrum disorder: a systematic review with meta-analysis - European Child & Adolescent Psychiatry
Social skills training (SST) is a widely proposed intervention to address social impairments in autism spectrum disorder (ASD). SST employs a series of activities aiming to enhance pro-social behavior...
link.springer.com
March 29, 2025 at 9:04 PM
"parent satisfaction was highly reported in PEERS studies (...), suggesting the undoubtedly success of intervention in meeting the needs of parents raising an adolescent with ASD" link.springer.com/article/10.1...
Autistic adolescents’ satisfaction was not reported. And what about harm analysis?
Autistic adolescents’ satisfaction was not reported. And what about harm analysis?
"Future research should explore whether restricted interests themselves function as risk factors or if they are markers of broader emotional dysregulation associated with depression and, in particular, with suicidal ideation."
www.sciencedirect.com/science/arti...
Hear autistics, expand ideas...
www.sciencedirect.com/science/arti...
Hear autistics, expand ideas...
Depressive symptomatology in autism and intellectual disability: A network analysis
Depression is a very common psychopathology in the ASD population. Despite the common comorbidity this association is not well understood. To understa…
www.sciencedirect.com
March 29, 2025 at 11:50 AM
"Future research should explore whether restricted interests themselves function as risk factors or if they are markers of broader emotional dysregulation associated with depression and, in particular, with suicidal ideation."
www.sciencedirect.com/science/arti...
Hear autistics, expand ideas...
www.sciencedirect.com/science/arti...
Hear autistics, expand ideas...
A study published on March 26, 2025 concludes that: "(...) repetitive behaviours of autistic students facilitate their uptake of social communication opportunities within online multiplayer gaming contexts."
nasenjournals.onlinelibrary.wiley.com/doi/10.1111/...
nasenjournals.onlinelibrary.wiley.com/doi/10.1111/...
Multiplayer gaming and autism: Social communication through repetitive behaviours
The popularity of online multiplayer gaming among primary-school students, including autistic students, has rapidly increased over the past decade. Social characteristics and interactions of autistic...
nasenjournals.onlinelibrary.wiley.com
March 29, 2025 at 11:29 AM
A study published on March 26, 2025 concludes that: "(...) repetitive behaviours of autistic students facilitate their uptake of social communication opportunities within online multiplayer gaming contexts."
nasenjournals.onlinelibrary.wiley.com/doi/10.1111/...
nasenjournals.onlinelibrary.wiley.com/doi/10.1111/...
A study on “What Factors Have Been the Most Helpful and Harmful and When?” link.springer.com/article/10.1... — conducted without any autistic involvement at any level (design, coding, interpretation…). 🤷♂️
#NothingAboutUsWithoutUs
#NothingAboutUsWithoutUs
What Factors Have Been the Most Helpful and Harmful and When? Identifying Key Impacts on Psychosocial Development According to Autistic Adults and Caregivers - Journal of Autism and Developmental Diso...
Few studies have asked autistic adults and caregivers directly about what has most positively and negatively impacted their lives. This study sought to: (a) identify positive and negative factors expe...
link.springer.com
March 29, 2025 at 6:59 AM
A study on “What Factors Have Been the Most Helpful and Harmful and When?” link.springer.com/article/10.1... — conducted without any autistic involvement at any level (design, coding, interpretation…). 🤷♂️
#NothingAboutUsWithoutUs
#NothingAboutUsWithoutUs
Reposted by Autidacts.org
"individuals with lived experience might express opposing views" "dissensus should be actively encouraged and nurtured, not only among researchers with lived experience, but also as an asset among all partners involved in science" www.sciencedirect.com/science/arti... on dissensus, autism-relevant
Embracing dissensus in lived experience research: the power of conflicting experiential knowledge
Lived experience is a crucial component in the development of innovative interventions and services in mental health care. To unlock the full potentia…
www.sciencedirect.com
March 3, 2025 at 9:33 AM
"individuals with lived experience might express opposing views" "dissensus should be actively encouraged and nurtured, not only among researchers with lived experience, but also as an asset among all partners involved in science" www.sciencedirect.com/science/arti... on dissensus, autism-relevant
1/2 🌟 New on Autidacts.org: You can now see the proportion of autistic authors cited in the bibliographies of studies shared on the site! The data will grow richer as more authors are added, but it’s a great start! 📚✨
For example:
autidacts.org/en/pg-ref/32
For example:
autidacts.org/en/pg-ref/32
‘Building our own house’ as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production
Learn more
autidacts.org
December 27, 2024 at 3:22 PM
1/2 🌟 New on Autidacts.org: You can now see the proportion of autistic authors cited in the bibliographies of studies shared on the site! The data will grow richer as more authors are added, but it’s a great start! 📚✨
For example:
autidacts.org/en/pg-ref/32
For example:
autidacts.org/en/pg-ref/32
On December 14, 2009 — 15 years ago — autistic researcher Scott Michael Robertson urged: "Shifting Research and Professional Focuses onto Real-Life Challenges [of Autistic People]".
** Thank you, Scott Michael Robertson **
More information: autidacts.org/en/pg-ref/1298
#AutRes #Neurodiversity
** Thank you, Scott Michael Robertson **
More information: autidacts.org/en/pg-ref/1298
#AutRes #Neurodiversity
Neurodiversity, quality of life, and autistic adults: shifting research and professional focuses onto real-life challenges
Learn more
autidacts.org
December 13, 2024 at 9:43 PM
On December 14, 2009 — 15 years ago — autistic researcher Scott Michael Robertson urged: "Shifting Research and Professional Focuses onto Real-Life Challenges [of Autistic People]".
** Thank you, Scott Michael Robertson **
More information: autidacts.org/en/pg-ref/1298
#AutRes #Neurodiversity
** Thank you, Scott Michael Robertson **
More information: autidacts.org/en/pg-ref/1298
#AutRes #Neurodiversity
"The discomfort with status hierarchies discussed in #autistic writing has been ignored by researchers." (C. Caldwell-Harris & A. Schwartz, 2024) More details on this reference here 👇
autidacts.org/en/pg-ref/1296 #AutRes
autidacts.org/en/pg-ref/1296 #AutRes
Listening to autistic voices regarding competing for social status
Learn more
autidacts.org
December 10, 2024 at 8:18 PM
"The discomfort with status hierarchies discussed in #autistic writing has been ignored by researchers." (C. Caldwell-Harris & A. Schwartz, 2024) More details on this reference here 👇
autidacts.org/en/pg-ref/1296 #AutRes
autidacts.org/en/pg-ref/1296 #AutRes
"Listening to and reading about the frequency of sexual and gender-based violence against autistic women, I came to realise that there may be a need for trauma evaluation in autism diagnostic protocols and trauma-informed support." (K. Callander, 2023). More details: 👇 autidacts.org/en/pg-ref/1286
Late identification and redefining the traumatised self following sexual violence
Learn more
autidacts.org
December 10, 2024 at 3:48 PM
"Listening to and reading about the frequency of sexual and gender-based violence against autistic women, I came to realise that there may be a need for trauma evaluation in autism diagnostic protocols and trauma-informed support." (K. Callander, 2023). More details: 👇 autidacts.org/en/pg-ref/1286
"Educators, and universities at large, therefore have to take part of the responsibility if academic practices effectively (even if unintentionally) exclude students with #autism who have a different structure of motivation but are otherwise good students." (Boven, 2018) autidacts.org/en/pg-ref/1275
Special interests and inclusive academic learning: an autistic perspective
Learn more
autidacts.org
December 9, 2024 at 8:09 PM
"Educators, and universities at large, therefore have to take part of the responsibility if academic practices effectively (even if unintentionally) exclude students with #autism who have a different structure of motivation but are otherwise good students." (Boven, 2018) autidacts.org/en/pg-ref/1275
"Similar to autistic doctors and artistic performers, [autistic veterinary surgeons] frequently cited a lack of neurodiversity awareness among colleagues and microaggressions (...) or discriminatory behaviour (...)." (K. Pickles et al.) More details: 👇 autidacts.org/en/pg-ref/1268 #AutRes
‘Part of the team as opposed to watching from the outside’: Critical incident study of autistic veterinary surgeons’ workdays
Learn more
autidacts.org
December 9, 2024 at 4:16 PM
"Similar to autistic doctors and artistic performers, [autistic veterinary surgeons] frequently cited a lack of neurodiversity awareness among colleagues and microaggressions (...) or discriminatory behaviour (...)." (K. Pickles et al.) More details: 👇 autidacts.org/en/pg-ref/1268 #AutRes
From the abstract, two issues arise: one terminological—"neurodiverse populations" instead of "neurodivergent"; and the other ethical—referring to non-autistic individuals as a "healthy sample", really?
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Social attention in the wild - fixations to the eyes and autistic traits during a naturalistic interaction in a healthy sample - Scientific Reports
Scientific Reports - Social attention in the wild - fixations to the eyes and autistic traits during a naturalistic interaction in a healthy sample
www.nature.com
December 8, 2024 at 8:46 PM
From the abstract, two issues arise: one terminological—"neurodiverse populations" instead of "neurodivergent"; and the other ethical—referring to non-autistic individuals as a "healthy sample", really?
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Nearly 15 years ago: "We hope that our work not only improves the lives of autistic adults, but also reinforces the idea that autism research should be conducted with, not just about, autistic people." (C. Nicolaidis et al., 2011). More : 👇 autidacts.org/en/pg-ref/1253 #AutRes #ParticipatoryResearch
autidacts.org
December 8, 2024 at 5:48 PM
Nearly 15 years ago: "We hope that our work not only improves the lives of autistic adults, but also reinforces the idea that autism research should be conducted with, not just about, autistic people." (C. Nicolaidis et al., 2011). More : 👇 autidacts.org/en/pg-ref/1253 #AutRes #ParticipatoryResearch
"researchers at all stages of their careers reported experiencing considerable challenges in incorporating meaningful participatory research practices within their work." (H. Pickard et al., 2022). Interactive bibliography here 👇 autidacts.org/en/pg-ref/1199
#AutRes #ParticipativeResearch
#AutRes #ParticipativeResearch
Participatory autism research: Early career and established researchers' views and experiences
Learn more
autidacts.org
December 7, 2024 at 5:17 PM
"researchers at all stages of their careers reported experiencing considerable challenges in incorporating meaningful participatory research practices within their work." (H. Pickard et al., 2022). Interactive bibliography here 👇 autidacts.org/en/pg-ref/1199
#AutRes #ParticipativeResearch
#AutRes #ParticipativeResearch
"Participants’ narratives around disclosure highlighted the unique challenges faced by #autistic mothers, such as concerns over being perceived as a 'fit parent' or even 'having their children removed'." (Ashton Ferguson et al., nov. 2024) More details here 👇 autidacts.org/en/pg-ref/1192
'It has shown me how much i am capable of': An exploration of autistic burnout experiences in motherhood
Learn more
autidacts.org
December 3, 2024 at 9:19 PM
"Participants’ narratives around disclosure highlighted the unique challenges faced by #autistic mothers, such as concerns over being perceived as a 'fit parent' or even 'having their children removed'." (Ashton Ferguson et al., nov. 2024) More details here 👇 autidacts.org/en/pg-ref/1192
"#Autistic individuals may feel more comfortable consenting to open-access use of their data if guidelines gave individuals the option to flag which organisation their data does/does not contribute towards (...)." (M. Sader et al., Nov 2024)
More details here 👇 autidacts.org/en/pg-ref/1188
#AutRes
More details here 👇 autidacts.org/en/pg-ref/1188
#AutRes
Ethical complexities and concerns surrounding magnetic resonance imaging and the open-access scientific framework in autism research
Learn more
autidacts.org
December 3, 2024 at 8:29 PM
"#Autistic individuals may feel more comfortable consenting to open-access use of their data if guidelines gave individuals the option to flag which organisation their data does/does not contribute towards (...)." (M. Sader et al., Nov 2024)
More details here 👇 autidacts.org/en/pg-ref/1188
#AutRes
More details here 👇 autidacts.org/en/pg-ref/1188
#AutRes