Alyssa Erin
@alyssaaerinn.bsky.social
chronically ill/disabled writer, poet, idea-haver, former Physio | LongCovid, ME et al 😷 ADHD
divest, dismantle, do better, land back
Treaty 7 | she/her
Pfp:white♀️blonde hair gaze down @ teacup. "Keep Masks in Healthcare" Cvr: snow-covered, Rocky mtn lake
divest, dismantle, do better, land back
Treaty 7 | she/her
Pfp:white♀️blonde hair gaze down @ teacup. "Keep Masks in Healthcare" Cvr: snow-covered, Rocky mtn lake
Reposted by Alyssa Erin
The collab recommends exercise for people with #LongCOVID without PEM.
However, this presumes the average physician knows what PEM is and can explain to a patient how it differs from fatigue. (Unlikely.)
PEM & pacing, for the curious: www.meaction.net/resource/pac...
However, this presumes the average physician knows what PEM is and can explain to a patient how it differs from fatigue. (Unlikely.)
PEM & pacing, for the curious: www.meaction.net/resource/pac...
Pacing and Management Guides
Find #MEAction's original Pacing Guide and Pediatric Pacing and Management Guide for ME/CFS and Long COVID, with translations.
www.meaction.net
July 11, 2025 at 5:39 PM
The collab recommends exercise for people with #LongCOVID without PEM.
However, this presumes the average physician knows what PEM is and can explain to a patient how it differs from fatigue. (Unlikely.)
PEM & pacing, for the curious: www.meaction.net/resource/pac...
However, this presumes the average physician knows what PEM is and can explain to a patient how it differs from fatigue. (Unlikely.)
PEM & pacing, for the curious: www.meaction.net/resource/pac...
Reposted by Alyssa Erin
I’ve lost so many people to #SevereME and #VerySevereME
Will remember you, Bridget 💙🕯️
Please read this last piece from Bridget about how governments have failed MECFS and Long Covid patients
Please take the fury we feel into your heart and use it to help us 2/2 open.substack.com/pub/bridgeto...
Will remember you, Bridget 💙🕯️
Please read this last piece from Bridget about how governments have failed MECFS and Long Covid patients
Please take the fury we feel into your heart and use it to help us 2/2 open.substack.com/pub/bridgeto...
Buried Alive by Government “Experts”
The Betrayal of the Worldwide Health Institutes’ Passivity in Erasing a Deadly Plight
open.substack.com
July 20, 2025 at 10:17 AM
I’ve lost so many people to #SevereME and #VerySevereME
Will remember you, Bridget 💙🕯️
Please read this last piece from Bridget about how governments have failed MECFS and Long Covid patients
Please take the fury we feel into your heart and use it to help us 2/2 open.substack.com/pub/bridgeto...
Will remember you, Bridget 💙🕯️
Please read this last piece from Bridget about how governments have failed MECFS and Long Covid patients
Please take the fury we feel into your heart and use it to help us 2/2 open.substack.com/pub/bridgeto...
That sounds like a cool version of a heart?! Very underground art gallery-esque "Notice Shine's unique style: the Slimer lines juxtaposed against soft, seemingly accidental detail..."
May 16, 2025 at 4:16 PM
That sounds like a cool version of a heart?! Very underground art gallery-esque "Notice Shine's unique style: the Slimer lines juxtaposed against soft, seemingly accidental detail..."
Thank you! I did! I had a reference photo, but yeah free hand 🤗
May 13, 2025 at 1:07 AM
Thank you! I did! I had a reference photo, but yeah free hand 🤗
Reposted by Alyssa Erin
And now that paperwork will be inherently used to target and harm disabled students. We should have moved beyond the legal accommodation compliance process years ago. Now it is more important than ever to do so. 3/3 #Academia #Disability
April 22, 2025 at 10:53 PM
And now that paperwork will be inherently used to target and harm disabled students. We should have moved beyond the legal accommodation compliance process years ago. Now it is more important than ever to do so. 3/3 #Academia #Disability