Running to raise ALS awareness in the most magical place on Earth? Sibling duo Ashlee and Lee didn't hesitate at the opportunity. Dressed as characters from the movie Mulan they took part in the Princess 5k at Walt Disney World in memory of their mother who passed from ALS.
bit.ly/blooming-in-...

When the @theacademyusa.bsky.social bring the glitz, but we’re still waiting for the real star — a cure for #ALS. Let’s keep the spotlight on the fight.
#Oscars2025

In too many states, individuals under the age of 65 living with ALS are unable to buy the Medigap insurance plans they need because they were too young when they got sick.

Learn more about your state’s grade: www.als.org/state-report...

#ALS #Medigap

Join us in the fight against ALS! Every step you take in the Walk to Defeat ALS brings us closer to finding a cure and supporting those affected by this devastating disease.
Sign up today and make a real impact. walktodefeatals.org

We are alarmed by proposed funding cuts that would devastate the fight against ALS. Slashing funding for NIH will hinder efforts to turn ALS from fatal to livable and cure it. Congress MUST reject these cuts! We need your voice NOW more than ever. bit.ly/NIH-funding-...

More ALS State Report Cards are in! Some states excel at supporting people living with #ALS, while others fall behind.

Find how your state ranks:
www.als.org/advocacy/rep...

The @usdot.bsky.social just released a new rule protecting people who use mobility devices. We were honored to meet with Kelly Buckland today to celebrate the landmark rule on mobility protections for airline passengers being finalized.

The Elizabeth Dole Act has officially passed! 🎉 This critical legislation will make home care more accessible and affordable for veterans living with ALS. Learn more about veterans issues: www.als.org/navigating-a...

#ALSVeterans #ElizabethDoleAct

🚨 Big News! 🚨
The U.S. Department of Transportation just released a new rule protecting people who use mobility devices.
Learn more: bit.ly/DOT-Final-Rule

Breaking News!
The Centers for Medicare and Medicaid Services has announced a historic directive requiring Medicare Advantage plans to approve coverage for Qalsody, a treatment for people living with genetic SOD1-ALS.
Learn more about this historic moment: bit.ly/qalsody-access

💌 Our monthly e-newsletter will keep you up to date on the latest happenings within the ALS community! Sign up TODAY: bit.ly/ALSnewsletter