allparkedout
@allparkedout.bsky.social
This perimenopause fatigue is kicking my butt. Do women who don’t have Parkinson’s feel this fatigue?
September 3, 2025 at 1:01 AM
This perimenopause fatigue is kicking my butt. Do women who don’t have Parkinson’s feel this fatigue?
This is the first time I’ve experienced #dyskinesia where it feels like my stomach and abdominal muscles are twisting like the snakes on Medusa’s head. It is incredibly exhausting and painful. This might be my journey to get that flat belly six-pack! #yopd #Parkinsonsdisease
August 13, 2025 at 4:09 AM
This is the first time I’ve experienced #dyskinesia where it feels like my stomach and abdominal muscles are twisting like the snakes on Medusa’s head. It is incredibly exhausting and painful. This might be my journey to get that flat belly six-pack! #yopd #Parkinsonsdisease
I was shocked to realize it had been two years since I had seen my neurologist. I thought somewhere in my brain that I could manage on my own, I guess or I just didn’t care. Depression and apathy + ADHD won that battle. I thought six months was six months ago versus two years ago 🤦🏽♀️.
July 29, 2025 at 8:59 AM
I was shocked to realize it had been two years since I had seen my neurologist. I thought somewhere in my brain that I could manage on my own, I guess or I just didn’t care. Depression and apathy + ADHD won that battle. I thought six months was six months ago versus two years ago 🤦🏽♀️.
I got little sleep last night. Jet lag amongst other things Parkinson’s and perimenopause. I woke up at 7:30, well 5:30 then 630 and finally completely opened my eyes at 7:30. I enjoyed a natural dopamine friendly morning for a few hours. A rare occurrence. Celebrating the small wins. 🎉
July 26, 2025 at 5:37 PM
I got little sleep last night. Jet lag amongst other things Parkinson’s and perimenopause. I woke up at 7:30, well 5:30 then 630 and finally completely opened my eyes at 7:30. I enjoyed a natural dopamine friendly morning for a few hours. A rare occurrence. Celebrating the small wins. 🎉
Apathy is very dangerous and very real. The problem is when you’re apathetic you don’t care enough to do anything about it. Why? Because you’re freakin’ apathetic!
July 24, 2025 at 2:51 AM
Apathy is very dangerous and very real. The problem is when you’re apathetic you don’t care enough to do anything about it. Why? Because you’re freakin’ apathetic!
I welcome advice for this 30 hour trip I’m doing right now. Can’t take sleep meds on the plane. Bad reaction last time. I’ve only been getting 2 hours with them anyways. If you see a zombie walking around an airport it’s probably me. #parkinsons
July 20, 2025 at 8:50 PM
I welcome advice for this 30 hour trip I’m doing right now. Can’t take sleep meds on the plane. Bad reaction last time. I’ve only been getting 2 hours with them anyways. If you see a zombie walking around an airport it’s probably me. #parkinsons
I managed to get a 3 hour and 15 minute stretch of sleep last night. I woke up and then had another 3 hour and 15 minute stretch. So nice after the less than 2 hours this past month. #parkinsons #perimenopause
July 18, 2025 at 4:42 AM
I managed to get a 3 hour and 15 minute stretch of sleep last night. I woke up and then had another 3 hour and 15 minute stretch. So nice after the less than 2 hours this past month. #parkinsons #perimenopause
Just discovered that vertigo is a part of perimenopause/menopause. So I get dizziness and instability from Parkinson’s. And vertigo from both. I’m wondering what I can do to find more stability when I walk and move about. Cause it always seems like I’m on a boat without my footing. #parkinsons
July 15, 2025 at 12:00 PM
Just discovered that vertigo is a part of perimenopause/menopause. So I get dizziness and instability from Parkinson’s. And vertigo from both. I’m wondering what I can do to find more stability when I walk and move about. Cause it always seems like I’m on a boat without my footing. #parkinsons
Never thought I’d say to someone “You’re lucky I have Parkinson’s” but when your dad has it as well and you’re both on the same medication and his runs out, well, then it makes sense!
#parkinsons
#parkinsons
May 19, 2025 at 4:37 AM
Never thought I’d say to someone “You’re lucky I have Parkinson’s” but when your dad has it as well and you’re both on the same medication and his runs out, well, then it makes sense!
#parkinsons
#parkinsons
Has the #parkinsons conversation, other than for researchers and clinicians, died on Twitter/X? How’s it fully transitioned over here? I feel so out of the loop.
April 21, 2025 at 6:23 PM
Has the #parkinsons conversation, other than for researchers and clinicians, died on Twitter/X? How’s it fully transitioned over here? I feel so out of the loop.
My dyskinesia, fatigue, apathy, and executive dysfunction have been on fire this week. How’s everyone else doing?
#parkinsons #yopd #adhd
#parkinsons #yopd #adhd
April 17, 2025 at 6:47 AM
My dyskinesia, fatigue, apathy, and executive dysfunction have been on fire this week. How’s everyone else doing?
#parkinsons #yopd #adhd
#parkinsons #yopd #adhd
Perimenopausal Parkinson’s fatigue is hitting me hard this week weekend. I can barely keep my eyes open. All plans canceled. Sigh #perimenopause
February 23, 2025 at 9:32 PM
Perimenopausal Parkinson’s fatigue is hitting me hard this week weekend. I can barely keep my eyes open. All plans canceled. Sigh #perimenopause
Was at Whole Foods today when me medication started to wear off. I couldn’t take meds because I was dehydrated and hadn’t eaten anything. The mental anxiety and fine motor limitations in trying to juggle food basket, purse, and canvas bag were overwhelming. A good time for those breath exercises.
February 2, 2025 at 5:55 AM
Was at Whole Foods today when me medication started to wear off. I couldn’t take meds because I was dehydrated and hadn’t eaten anything. The mental anxiety and fine motor limitations in trying to juggle food basket, purse, and canvas bag were overwhelming. A good time for those breath exercises.
I’ve started matting my fine art prints to sell locally. I now understand more clearly how difficult this is when my dyskinesia is active. It gives a whole new meaning to running with scissors 🤦🏽♀️🤷🏻♀️😂 #parkinsons #yopd
December 30, 2024 at 10:31 PM
I’ve started matting my fine art prints to sell locally. I now understand more clearly how difficult this is when my dyskinesia is active. It gives a whole new meaning to running with scissors 🤦🏽♀️🤷🏻♀️😂 #parkinsons #yopd
It’s been four days of bad sleep. Basically no sleep. Medication helped little last night. Tonight, I got the urge for pizza. And in the wee hours of the morning, someone actually delivers! So I’m gonna relive my college days, and eat pizza at three in the morning.
December 26, 2024 at 10:14 AM
It’s been four days of bad sleep. Basically no sleep. Medication helped little last night. Tonight, I got the urge for pizza. And in the wee hours of the morning, someone actually delivers! So I’m gonna relive my college days, and eat pizza at three in the morning.
One of the most irritating and frustrating things about eating popcorn is after you’re all done, teeth brushed and everything, there often is that one piece of kernel skin, one tiny piece, stuck to your tongue, and no matter how hard you try you can’t get rid of it.
December 24, 2024 at 1:02 AM
One of the most irritating and frustrating things about eating popcorn is after you’re all done, teeth brushed and everything, there often is that one piece of kernel skin, one tiny piece, stuck to your tongue, and no matter how hard you try you can’t get rid of it.
There is no need to respond to a non-urgent email, text, DM, phone call, etc. right away in any sphere of life. Unless it’s your mom. My profound thought of the day.
December 19, 2024 at 5:39 PM
There is no need to respond to a non-urgent email, text, DM, phone call, etc. right away in any sphere of life. Unless it’s your mom. My profound thought of the day.
There is no escaping data entry. Profound thought of the day.
December 18, 2024 at 2:30 AM
There is no escaping data entry. Profound thought of the day.
I used to work 8 to 14 hours a day, full-time, and still have energy to read, work on photo projects, chat with friends and stay up late. Now, after 8 hours I’m tired, trying to sleep early. There’s just not enough time in the day. #yopd
December 6, 2024 at 2:38 AM
I used to work 8 to 14 hours a day, full-time, and still have energy to read, work on photo projects, chat with friends and stay up late. Now, after 8 hours I’m tired, trying to sleep early. There’s just not enough time in the day. #yopd
This disease, smh. Sunday in bed 10 pm, slept like sh** - 2-3 hours max. Worked a long a** day. Monday in bed 10 pm - slept for 5.5 hours and was sleepy fatigued whole day. Tuesday - awake all night. No sleep. Canceled all plans/events for Wed., other than work. #parkinsons #sleepissues #yopd
December 4, 2024 at 1:45 PM
This disease, smh. Sunday in bed 10 pm, slept like sh** - 2-3 hours max. Worked a long a** day. Monday in bed 10 pm - slept for 5.5 hours and was sleepy fatigued whole day. Tuesday - awake all night. No sleep. Canceled all plans/events for Wed., other than work. #parkinsons #sleepissues #yopd
It’s well past my bedtime bc, yk, sleep issues. So I’m reading. Came across a journal article I downloaded a bit ago on PD & sleep by Drs. Schütz, Sixel-Döring & Hermann in 2022. It made me wonder if I’m under reporting my sleep issues to my neurologist, thinking I can tough it out. 🤔 #yopd
November 28, 2024 at 10:09 AM
It’s well past my bedtime bc, yk, sleep issues. So I’m reading. Came across a journal article I downloaded a bit ago on PD & sleep by Drs. Schütz, Sixel-Döring & Hermann in 2022. It made me wonder if I’m under reporting my sleep issues to my neurologist, thinking I can tough it out. 🤔 #yopd
My balance issues have crept up on me. Reverse lunges w/5lb weights indicated my progression. I was very wobbly and needed a wall for balance. I remember doing these with ease in the 90s. Time hits you in the face. I’m not in my 20s anymore. Time to start Argentine Tango! #parkinsonsfamily #yopd
November 27, 2024 at 3:20 AM
My balance issues have crept up on me. Reverse lunges w/5lb weights indicated my progression. I was very wobbly and needed a wall for balance. I remember doing these with ease in the 90s. Time hits you in the face. I’m not in my 20s anymore. Time to start Argentine Tango! #parkinsonsfamily #yopd
Reposted by allparkedout
We are already at ~12 million cases worldwide w/ Parkinson's which is approaching where we thought we would be in 2040. Can we double down and spend some money and time on preventing cases and lifting the living? Only a few pennies on the dollar go to prevention research.
November 14, 2024 at 10:04 PM
We are already at ~12 million cases worldwide w/ Parkinson's which is approaching where we thought we would be in 2040. Can we double down and spend some money and time on preventing cases and lifting the living? Only a few pennies on the dollar go to prevention research.
I’ve been realizing more and more how much I contribute to waste. Things I’ve bought in the past that I now want to get rid of make me realize how much I never thought about what happens to these products after I’m done. Like mascara, eyeshadow, ziplock bags, takeout containers. So much!
Plastic waste is everywhere. Countries have one more chance to agree on a solution
www.npr.org/2024/11/25/n...
www.npr.org/2024/11/25/n...
Plastic waste is everywhere. Countries have one more chance to agree on a solution
Negotiations over a U.N. treaty to cut plastics have been bogged down. Environmental groups blame the oil and gas industry.
www.npr.org
November 26, 2024 at 7:01 AM
I’ve been realizing more and more how much I contribute to waste. Things I’ve bought in the past that I now want to get rid of make me realize how much I never thought about what happens to these products after I’m done. Like mascara, eyeshadow, ziplock bags, takeout containers. So much!