Alice Vago
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alivago.bsky.social
Alice Vago
@alivago.bsky.social
Lover of woods and mountains, botany and dragons, children’s books and much more.
🌳⛰️🥾🦊🌈🧑🏻‍🏭🪁
Stuck in an uncooperative body, severe Long Covid/ME.
#LongCOVID #mecfs #pwme
🇵🇸 🇱🇧
Pinned
So many of us get threatened to be forcibly admitted the psychiatric ward. I was lucky, and the threat never became reality, but I lived with the fear of it, afraid to even show my sadness about my condition, because I might be labeled as unstable and not “actually ill” time.com/7206080/long...
Reposted by Alice Vago
Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed.

bit.ly/linepetition
January 20, 2025 at 1:15 PM
Here is a baby lynx, how adorable!
Now that I have your attention, please go check @whitneydafoe.bsky.social fundraiser for @openmedf.bsky.social
Donate if you can, We need all the help, so research can go on for #pwME and #longcovid 🙏🏼🍀

www.spotfund.com/story/febb0d...

#research #mecfs
January 17, 2025 at 7:44 AM
January 16, 2025 at 8:52 AM
Reposted by Alice Vago
Ultimately, through genetics, they hope to be able to identify a common disease mechanism. Read more about this study👉 www.omf.ngo/genetic-and-....
Genetic & Metabolic Markers of BH4 Deficiency in Long COVID
This project aims to test whether genetic markers and other indicators of BH4 deficiency are also present in subjects with Long COVID.
www.omf.ngo
January 15, 2025 at 2:30 PM
just a dragon, to set the tone. and it’s an S!

#dragon #medievalsky
January 15, 2025 at 1:20 PM
So many of us get threatened to be forcibly admitted the psychiatric ward. I was lucky, and the threat never became reality, but I lived with the fear of it, afraid to even show my sadness about my condition, because I might be labeled as unstable and not “actually ill” time.com/7206080/long...
January 15, 2025 at 8:02 AM