ukmsregister
@ukmsregister.bsky.social
The MS Register is a ground-breaking study designed to increase our understanding of living with MS in the UK. Let's make sense of MS.
In our most recent blog we hear from Professor Klaus Schmierer at Queen Mary University of London about the AttackMS trial which has recently reopened.
This trial is the first study to treat individuals with suspected MS at the first demyelinating event.
blog.msregister.org/attack-is-ba...
This trial is the first study to treat individuals with suspected MS at the first demyelinating event.
blog.msregister.org/attack-is-ba...
Attack is Back! - UK MS Register Blog
A UK clinical trial is testing whether rapid treatment with a highly effective multiple sclerosis (MS) drug (within just two weeks of the first presentation) could change the course of the disease. Th...
blog.msregister.org
October 31, 2025 at 11:44 AM
In our most recent blog we hear from Professor Klaus Schmierer at Queen Mary University of London about the AttackMS trial which has recently reopened.
This trial is the first study to treat individuals with suspected MS at the first demyelinating event.
blog.msregister.org/attack-is-ba...
This trial is the first study to treat individuals with suspected MS at the first demyelinating event.
blog.msregister.org/attack-is-ba...
The MS Society 2026 grant rounds are now open for applications! 📣
Did you know that you can apply for any of these Awards with a research project that's using the UK MS Register?
Find out more here: www.mssociety.org.uk/research/res...
Did you know that you can apply for any of these Awards with a research project that's using the UK MS Register?
Find out more here: www.mssociety.org.uk/research/res...
Funding for researchers
We're the largest charitable funder of MS research in the UK. Find out more about our application and review process.
www.mssociety.org.uk
October 21, 2025 at 2:06 PM
The MS Society 2026 grant rounds are now open for applications! 📣
Did you know that you can apply for any of these Awards with a research project that's using the UK MS Register?
Find out more here: www.mssociety.org.uk/research/res...
Did you know that you can apply for any of these Awards with a research project that's using the UK MS Register?
Find out more here: www.mssociety.org.uk/research/res...
Reposted by ukmsregister
Want to take your research to the next level?🚀
Sign up for the @ukmsregister.bsky.social's free one-day workshop and learn how to manipulate and analyse synthetic data from the MS Register using the R statistical programming environment.
👉https://popdatasci.swan.ac.uk/uk-ms-register-data-workshop/
Sign up for the @ukmsregister.bsky.social's free one-day workshop and learn how to manipulate and analyse synthetic data from the MS Register using the R statistical programming environment.
👉https://popdatasci.swan.ac.uk/uk-ms-register-data-workshop/
October 16, 2025 at 1:47 PM
Want to take your research to the next level?🚀
Sign up for the @ukmsregister.bsky.social's free one-day workshop and learn how to manipulate and analyse synthetic data from the MS Register using the R statistical programming environment.
👉https://popdatasci.swan.ac.uk/uk-ms-register-data-workshop/
Sign up for the @ukmsregister.bsky.social's free one-day workshop and learn how to manipulate and analyse synthetic data from the MS Register using the R statistical programming environment.
👉https://popdatasci.swan.ac.uk/uk-ms-register-data-workshop/
📣 Today we’re at ECTRIMS Patient Day in Barcelona! The Register are proud to be a supporting partners of this important event, which brings people affected by MS together with researchers, clinicians, and organisations from across the world 🌍
September 26, 2025 at 3:13 PM
📣 Today we’re at ECTRIMS Patient Day in Barcelona! The Register are proud to be a supporting partners of this important event, which brings people affected by MS together with researchers, clinicians, and organisations from across the world 🌍
The Register is at #ECTRIMS in Barcelona this week. Our team has been busy presenting research highlighting the importance of real-world data.
Special congratulations to Imogen Collier, who won a prize for her poster on menopause and MS based on data collected through the Register 🏆
Special congratulations to Imogen Collier, who won a prize for her poster on menopause and MS based on data collected through the Register 🏆
September 26, 2025 at 2:20 PM
The Register is at #ECTRIMS in Barcelona this week. Our team has been busy presenting research highlighting the importance of real-world data.
Special congratulations to Imogen Collier, who won a prize for her poster on menopause and MS based on data collected through the Register 🏆
Special congratulations to Imogen Collier, who won a prize for her poster on menopause and MS based on data collected through the Register 🏆
🎉 What a whirlwind first day at #ECTRIMS2025 in Barcelona!
The Register team has been incredibly busy – sharing our research, connecting with global MS experts, and showcasing how patient-powered data is driving real change.
📊 Huge thank you to everyone who has stopped by our stand (N14) so far!
The Register team has been incredibly busy – sharing our research, connecting with global MS experts, and showcasing how patient-powered data is driving real change.
📊 Huge thank you to everyone who has stopped by our stand (N14) so far!
September 25, 2025 at 10:18 AM
🎉 What a whirlwind first day at #ECTRIMS2025 in Barcelona!
The Register team has been incredibly busy – sharing our research, connecting with global MS experts, and showcasing how patient-powered data is driving real change.
📊 Huge thank you to everyone who has stopped by our stand (N14) so far!
The Register team has been incredibly busy – sharing our research, connecting with global MS experts, and showcasing how patient-powered data is driving real change.
📊 Huge thank you to everyone who has stopped by our stand (N14) so far!
🎉 We're exhibiting at #ECTRIMS2025 24th - 26th September!
Visit us at Stand N14, NPO Village, to learn more about how we're driving forward MS research through real-world data and collaboration.
Visit us at Stand N14, NPO Village, to learn more about how we're driving forward MS research through real-world data and collaboration.
September 16, 2025 at 10:59 AM
🎉 We're exhibiting at #ECTRIMS2025 24th - 26th September!
Visit us at Stand N14, NPO Village, to learn more about how we're driving forward MS research through real-world data and collaboration.
Visit us at Stand N14, NPO Village, to learn more about how we're driving forward MS research through real-world data and collaboration.
Could a citrus extract improve Cognition and Fatigue in Multiple Sclerosis? A team from Swansea Uni are conducting research on the effects of citrus extract supplementation on people with RRMS. Register your interest to take part in this study:
research.sc/participant/...
research.sc/participant/...
September 15, 2025 at 1:37 PM
Could a citrus extract improve Cognition and Fatigue in Multiple Sclerosis? A team from Swansea Uni are conducting research on the effects of citrus extract supplementation on people with RRMS. Register your interest to take part in this study:
research.sc/participant/...
research.sc/participant/...
Reposted by ukmsregister
Largest study of cognition in MS highlights often-overlooked group🔎
New study from @ukmsregister.bsky.social has revealed that many people with multiple sclerosis (MS) experience problems with thinking and memory despite having little physical disability.
👉 popdatasci.swan.ac.uk/largest-stud...
New study from @ukmsregister.bsky.social has revealed that many people with multiple sclerosis (MS) experience problems with thinking and memory despite having little physical disability.
👉 popdatasci.swan.ac.uk/largest-stud...
Largest study of cognition in MS highlights often-overlooked group - Population Data Science
A new study, published in Nature Communications, has revealed that many people with multiple sclerosis (MS) experience significant problems with thinking and memory despite having little physical disa...
popdatasci.swan.ac.uk
September 8, 2025 at 9:21 AM
Largest study of cognition in MS highlights often-overlooked group🔎
New study from @ukmsregister.bsky.social has revealed that many people with multiple sclerosis (MS) experience problems with thinking and memory despite having little physical disability.
👉 popdatasci.swan.ac.uk/largest-stud...
New study from @ukmsregister.bsky.social has revealed that many people with multiple sclerosis (MS) experience problems with thinking and memory despite having little physical disability.
👉 popdatasci.swan.ac.uk/largest-stud...
Reposted by ukmsregister
Delighted to be part of this important research www.nature.com/articles/s41... @ukmsregister.bsky.social #ms
Large-scale online assessment uncovers a distinct Multiple Sclerosis subtype with selective cognitive impairment - Nature Communications
Online cognitive testing combined with the reach of a digital patient registry revealed a subtype of people with Multiple Sclerosis with significant cognitive impairment but no motor deficits. This hi...
www.nature.com
September 4, 2025 at 8:10 AM
Delighted to be part of this important research www.nature.com/articles/s41... @ukmsregister.bsky.social #ms
Did you know the UK MS Register host the MS Pregnancy Register. The Pregnancy Register launched in 2021 to learn more about the experiences of women in the UK with #MS, and their fertility journeys. Read the latest update from the Pregnancy Register 👇
blog.msregister.org/ms-pregnancy...
blog.msregister.org/ms-pregnancy...
MS Pregnancy Register Update – Summer 2025 - UK MS Register Blog
The UK MS Pregnancy Register continues to go from strength to strength. We now have over 350 registered participants, and are working to make sure that we have as much follow up information as possibl...
blog.msregister.org
August 27, 2025 at 3:43 PM
Did you know the UK MS Register host the MS Pregnancy Register. The Pregnancy Register launched in 2021 to learn more about the experiences of women in the UK with #MS, and their fertility journeys. Read the latest update from the Pregnancy Register 👇
blog.msregister.org/ms-pregnancy...
blog.msregister.org/ms-pregnancy...
Reposted by ukmsregister
The Refuel MS clinical trial has started🎉 We’re testing how effective the Refuel MS intervention is vs usual care🔎
Recruitment is now by invite via @ukmsregister.bsky.social📝 Thank you to all who helped us get here🧡
@ronamoss-morris.bsky.social
#multiplesclerosis#msresearch#digitalintervention
Recruitment is now by invite via @ukmsregister.bsky.social📝 Thank you to all who helped us get here🧡
@ronamoss-morris.bsky.social
#multiplesclerosis#msresearch#digitalintervention
July 31, 2025 at 2:52 PM
The Refuel MS clinical trial has started🎉 We’re testing how effective the Refuel MS intervention is vs usual care🔎
Recruitment is now by invite via @ukmsregister.bsky.social📝 Thank you to all who helped us get here🧡
@ronamoss-morris.bsky.social
#multiplesclerosis#msresearch#digitalintervention
Recruitment is now by invite via @ukmsregister.bsky.social📝 Thank you to all who helped us get here🧡
@ronamoss-morris.bsky.social
#multiplesclerosis#msresearch#digitalintervention
📣 Out Now 📣 new episode of the MS Trust podcast featuring the UK MS Register's Dr Rod Middleton and focusing on sleep disruption in #MS Listen to the episode to hear Rod discussing the Register's recent collection of sleep data from participants.
mstrust.org.uk/information-...
mstrust.org.uk/information-...
Why can’t I sleep? Night-time MS symptoms uncovered
If you live with multiple sclerosis and struggle to get a good night sleep, this episode is for you. We uncover the hidden impact of night-time MS symptoms, from nerve pain, spasms, and restless legs ...
mstrust.org.uk
August 15, 2025 at 10:54 AM
📣 Out Now 📣 new episode of the MS Trust podcast featuring the UK MS Register's Dr Rod Middleton and focusing on sleep disruption in #MS Listen to the episode to hear Rod discussing the Register's recent collection of sleep data from participants.
mstrust.org.uk/information-...
mstrust.org.uk/information-...
We have a new blog now available on our website. This time we look back on #Red4Research day in June: blog.msregister.org/red4research...
#Red4Research 2025 - UK MS Register Blog
On Friday 20th June we celebrated #Red4Research day. The aim of this special calendar day is to get as many people as possible wearing red to show their support and appreciation for everyone who parti...
blog.msregister.org
July 31, 2025 at 9:46 AM
We have a new blog now available on our website. This time we look back on #Red4Research day in June: blog.msregister.org/red4research...
We are delighted to be one of the supporting partners of this year’s Patient Community Day at ECTRIMS. Join us for this free event:
🗓️ Friday, 26 September 2025
📍 Barcelona International Convention Center, Spain, and online
➡️ Sign up: www.ectrimspatientcommunity.eu/registration
🗓️ Friday, 26 September 2025
📍 Barcelona International Convention Center, Spain, and online
➡️ Sign up: www.ectrimspatientcommunity.eu/registration
July 22, 2025 at 2:21 PM
We are delighted to be one of the supporting partners of this year’s Patient Community Day at ECTRIMS. Join us for this free event:
🗓️ Friday, 26 September 2025
📍 Barcelona International Convention Center, Spain, and online
➡️ Sign up: www.ectrimspatientcommunity.eu/registration
🗓️ Friday, 26 September 2025
📍 Barcelona International Convention Center, Spain, and online
➡️ Sign up: www.ectrimspatientcommunity.eu/registration
We’re thrilled to announce we are once again hosting an intern as part of Health Data Research UK (HDR UK) Black Internship Programme 2025 in partnership with The 10,000 Interns Foundation.
Join us in welcoming Olufemi to the team! 👋
Join us in welcoming Olufemi to the team! 👋
July 18, 2025 at 8:55 AM
We’re thrilled to announce we are once again hosting an intern as part of Health Data Research UK (HDR UK) Black Internship Programme 2025 in partnership with The 10,000 Interns Foundation.
Join us in welcoming Olufemi to the team! 👋
Join us in welcoming Olufemi to the team! 👋
We are delighted to welcome Rolake to the UK MS Register team 👋 She joins us on an exchange from the University of Houston College of Medicine. We look forward to working together over the coming weeks 😊
July 1, 2025 at 9:43 AM
We are delighted to welcome Rolake to the UK MS Register team 👋 She joins us on an exchange from the University of Houston College of Medicine. We look forward to working together over the coming weeks 😊
On Friday some of the Register team travelled to Helsinki to attend the EAN Congress 2025 🛫
The theme this year is neurology within society. We are thrilled to have had a number of abstracts accepted this year and are looking forward to presenting posters showcasing the work of the Register 🙌
The theme this year is neurology within society. We are thrilled to have had a number of abstracts accepted this year and are looking forward to presenting posters showcasing the work of the Register 🙌
June 23, 2025 at 8:24 AM
On Friday some of the Register team travelled to Helsinki to attend the EAN Congress 2025 🛫
The theme this year is neurology within society. We are thrilled to have had a number of abstracts accepted this year and are looking forward to presenting posters showcasing the work of the Register 🙌
The theme this year is neurology within society. We are thrilled to have had a number of abstracts accepted this year and are looking forward to presenting posters showcasing the work of the Register 🙌
It’s #Red4Research day! Today we are wearing red to show our recognition and appreciation for all those participating, undertaking and supporting research.
The Register wouldn’t exist without our participants, our NHS clinical teams, our network of researchers, and our funders the MS Society 🙏
The Register wouldn’t exist without our participants, our NHS clinical teams, our network of researchers, and our funders the MS Society 🙏
June 20, 2025 at 8:54 AM
It’s #Red4Research day! Today we are wearing red to show our recognition and appreciation for all those participating, undertaking and supporting research.
The Register wouldn’t exist without our participants, our NHS clinical teams, our network of researchers, and our funders the MS Society 🙏
The Register wouldn’t exist without our participants, our NHS clinical teams, our network of researchers, and our funders the MS Society 🙏
We are delighted to learn that Professor David Ford, Director of Population Data Science at Swansea University, has been appointed an OBE in recognition of his services to social science 🎉
David is a co-applicant and previous PI of the UK MS Register. popdatasci.swan.ac.uk/university-p...
David is a co-applicant and previous PI of the UK MS Register. popdatasci.swan.ac.uk/university-p...
University professor honoured for expertise in health data innovation - Population Data Science
A Swansea University academic has been recognised for his pioneering work shaping the study of health data in the UK. Professor David Ford, a professor of informatics and director of Population Data S...
popdatasci.swan.ac.uk
June 18, 2025 at 9:22 AM
We are delighted to learn that Professor David Ford, Director of Population Data Science at Swansea University, has been appointed an OBE in recognition of his services to social science 🎉
David is a co-applicant and previous PI of the UK MS Register. popdatasci.swan.ac.uk/university-p...
David is a co-applicant and previous PI of the UK MS Register. popdatasci.swan.ac.uk/university-p...
Fantastic to see progressive MS and the Octopus trial in the spotlight on Channel 4 News last week.
More information on the trial, including how to sign up, can be found here: ukmsregister.org/studies/octo...
Read the report and watch the feature here 👇🐙
www.channel4.com/news/progres...
More information on the trial, including how to sign up, can be found here: ukmsregister.org/studies/octo...
Read the report and watch the feature here 👇🐙
www.channel4.com/news/progres...
Progressive MS patients given new hope in world first drug trial
The cruelty for Brad is there are almost no treatments for the more than 75,000 people in the UK affected by progressive MS.
www.channel4.com
May 28, 2025 at 2:09 PM
Fantastic to see progressive MS and the Octopus trial in the spotlight on Channel 4 News last week.
More information on the trial, including how to sign up, can be found here: ukmsregister.org/studies/octo...
Read the report and watch the feature here 👇🐙
www.channel4.com/news/progres...
More information on the trial, including how to sign up, can be found here: ukmsregister.org/studies/octo...
Read the report and watch the feature here 👇🐙
www.channel4.com/news/progres...
Reposted by ukmsregister
The @ukmsregister.bsky.social is Delighted to be at the Morriston Clinical Teams newly diagnosed day in Aberavon. Dr Ingram talking about Disease Modifying Treatments in Multiple Sclerosis #ms #healthdata
May 21, 2025 at 10:46 AM
The @ukmsregister.bsky.social is Delighted to be at the Morriston Clinical Teams newly diagnosed day in Aberavon. Dr Ingram talking about Disease Modifying Treatments in Multiple Sclerosis #ms #healthdata
The UK MS Register had the pleasure of attending the 'MS Conversations' event at the Senedd, Cardiff Bay.
It was a fantastic opportunity to speak with people with MS in Wales and to promote the work of the Register. Also great to catch up with colleagues from the MS Society.
It was a fantastic opportunity to speak with people with MS in Wales and to promote the work of the Register. Also great to catch up with colleagues from the MS Society.
May 8, 2025 at 10:45 AM
The UK MS Register had the pleasure of attending the 'MS Conversations' event at the Senedd, Cardiff Bay.
It was a fantastic opportunity to speak with people with MS in Wales and to promote the work of the Register. Also great to catch up with colleagues from the MS Society.
It was a fantastic opportunity to speak with people with MS in Wales and to promote the work of the Register. Also great to catch up with colleagues from the MS Society.
The Register team are in Liverpool today at the Association of British Neurologists Annual Meeting 2025.
We are thrilled to be sharing a number of posters at this event, including 'Increased hospital admissions in Wales prior to MS diagnosis; a SAIL Databank study', presented by Dr Rod Middleton.
We are thrilled to be sharing a number of posters at this event, including 'Increased hospital admissions in Wales prior to MS diagnosis; a SAIL Databank study', presented by Dr Rod Middleton.
May 7, 2025 at 12:14 PM
The Register team are in Liverpool today at the Association of British Neurologists Annual Meeting 2025.
We are thrilled to be sharing a number of posters at this event, including 'Increased hospital admissions in Wales prior to MS diagnosis; a SAIL Databank study', presented by Dr Rod Middleton.
We are thrilled to be sharing a number of posters at this event, including 'Increased hospital admissions in Wales prior to MS diagnosis; a SAIL Databank study', presented by Dr Rod Middleton.
Lovely to catch up with our colleagues Emily and Thamanna from the MS Pregnancy Register at the MS Trust conference.
We were also delighted to meet Hannah from Digesting Science, and learn about the fun ways they teach children about MS.
💻 ukmsregister.org/pregnancy
💻 digestingscience.co.uk
We were also delighted to meet Hannah from Digesting Science, and learn about the fun ways they teach children about MS.
💻 ukmsregister.org/pregnancy
💻 digestingscience.co.uk
March 25, 2025 at 2:06 PM
Lovely to catch up with our colleagues Emily and Thamanna from the MS Pregnancy Register at the MS Trust conference.
We were also delighted to meet Hannah from Digesting Science, and learn about the fun ways they teach children about MS.
💻 ukmsregister.org/pregnancy
💻 digestingscience.co.uk
We were also delighted to meet Hannah from Digesting Science, and learn about the fun ways they teach children about MS.
💻 ukmsregister.org/pregnancy
💻 digestingscience.co.uk