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Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

I have some exciting news! Two weeks ago, on the 16th of November, my partner and I got engaged! 1/8

A black and white photo of a man, Niko, wearing a suit, a button-down collared shirt, and a tie. He has a signet-style ring on his left hand ring finger, and he holds a ring with a tourmaline stone and diamonds between his thumb and index finger. He has a watch on his wrist.

November 30, 2025 at 12:26 PM

Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

I have made myself a website! To showcase my photography portfolio, which so far consists of my most meaningful ongoing project, “Enduring: Life with Severe ME/CFS”. The site also features my short biography. I kept the pages simple. 1/5

nikosuvisto.com

#MECFS #pwME #Photography

Niko Suvisto

I’m Niko Suvisto, a photographer from Lahti, Finland. I document my life as someone who is 99% bedbound with severe ME/CFS.

nikosuvisto.com

November 18, 2025 at 6:40 PM

Terhi❤️‍🩹

@terhivirtanen.bsky.social

Lahti 10.11.2025 Ankkuri 🌞😍

November 10, 2025 at 6:16 PM

Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

I’ve not been doing that great this summer. In all honesty, these past years have been extremely hard, and my body has given up on me. In the end, I’m just grateful I’m still here to experience life. 1/8

#MECFS #pwME #Photography #SelfDocumentary

A black and white close up photograph of hands against a dark background, resting on a person’s body. The thumbs and fingers form a heart shape in the middle.

August 18, 2025 at 6:40 AM

Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

It wasn’t any regular Wednesday morning, exactly three years ago, as I woke up trapped in my own body. Not knowing I wouldn’t even be able to bear a ray of light entering my bedroom or endure the touch of another human being. 1/13

#MECFS #VerySevereMECFS #Photograpghy

A black and white close up photograph of Niko’s face, a white man, with a dark beard, resting his head on a pillow, wearing an eye mask and ear muffs. The image is distorted on the sides of his face, a ghostly effect that makes the ear muffs appear twice.

June 8, 2025 at 11:07 AM

Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

Our living room. So near, yet so far it seems. For this past year, I’ve only visited it once, during Christmas time, as I photographed our Christmas tree (a tradition of mine).

This time, I took the photo quickly during my trip from the bathroom. My mother was putting away the winter carpets. 1/2

A black and white photograph of a living room with a wooden floor and a wood paneled ceiling. Two rolls of carpets lay in the foreground, while the background shows a window and a sofa. Visible are part of a bookshelf on the left and part of a lounge chair on the right. There are a lots of small details and personal items, paintings on the walls and a ceiling lamp.

June 1, 2025 at 7:36 AM

Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

Today is Mother’s Day, and ME/CFS Awareness Month is ongoing.

My mom has been my full-time caregiver for almost three years now due to the severity of my ME. 1/4

#MECFS
#pwME
#MEawarenessMonth
#Photography

A black and white portrait photo of Niko’s mother Päivi. She is standing next to white closet doors, looking at the camera, wearing a blouse and glasses.

May 11, 2025 at 7:26 AM

Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

It’s ME/CFS Awareness Month, and I wonder — what is life?
According to Wikipedia, life consists of these seven traits ⬇️

1/10
@openmedf.bsky.social @lowenergylounge.bsky.social
#Photography
#SelfDocumentary
#MECFS
#MECFSis
#pwME

A black and white top down photo of Niko, a man with a dark beard and a dark sweatshirt, he is laying on his bed, having a white sign on his chest, which says ‘ME/CFS is… the absence of life’ written in dark letters.

May 2, 2025 at 6:55 PM

Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

Today it’s time to launch a big project I’ve had the privilege of working on: A Quiet Storm—an online art gallery showcasing the artwork of people living with severe ME/CFS. 1/7

www.aquietstorm.me

#MECFS #pwME #OnlineArtGallery #AQuietStorm

a quiet storm - an online gallery

An online art gallery showcasing the artwork of people living with severe ME/CFS

www.aquietstorm.me

April 11, 2025 at 3:19 PM

Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

Today is Long Covid Awareness Day! And I want to support my LC friends. 1/9

#5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
#LongCovid
#MECFS
#pwME

A black and white photograph of a white man, Niko, with short hair and a beard, sitting on a hospital bed. He wears a sweatshirt and holds a tablet displaying a message about Long COVID. The text on the tablet reads: “5 YEARS OF LONG COVID. HALF A DECADE OF NEGLECT! WHERE’S THE ACTION?! - BERLIN BUYERS CLUB.” Niko has a serious expression, and the background includes a framed picture on the wall, a lamp, and part of a headboard.

March 15, 2025 at 1:09 PM

Terhi❤️‍🩹

@terhivirtanen.bsky.social

❤️‍🩹Kaunista terapiaa #Lahti 🫶📸 tänään 6.3.2025 lonkeron harmaa Ankkurin satama ja Ruoriniemi, pari pilkkimiestä Vesijärven jään isolla lätäköllä 💧🌊

March 6, 2025 at 11:01 AM

Terhi❤️‍🩹

@terhivirtanen.bsky.social

❤️‍🩹Kaunista terapiaa #Lahti Ankkurin satama tänään 🌞🫶☺️

March 4, 2025 at 1:17 PM

Reposted by Terhi❤️‍🩹

Niko Suvisto

@nikosuvisto.com

Good news arrived today! I am part of a class action lawsuit regarding the discrimination of #MECFS patients within #Finland social insurance system. This concerns the unlawful denial of sickness benefits and disability pensions, which is being done in a discriminatory manner against us patients.1/8

A black and white photograph of a man’s fist resting on a bed sheet. The sheets are wrinkled around the fist. The lightest part of the photo is the fist.

February 24, 2025 at 4:44 PM

Terhi❤️‍🩹

@terhivirtanen.bsky.social

❤️‍🩹Kaunista terapiaa #Lahti 🫶🌞 Vesijärven jäällä tänään 23.2.2025 🌊 jäätynyt railo on samaan aikaan pelottavan upea ja todella kunjoitettava näyte luonnon arvaamattomista voimista 🫡

February 23, 2025 at 10:57 AM

Terhi❤️‍🩹

@terhivirtanen.bsky.social

❤️‍🩹Kaunista terapiaa #Lahti Vesijärven jäätä pitkin Myllysaareen 🫶🌞

February 19, 2025 at 10:49 AM

Terhi❤️‍🩹

@terhivirtanen.bsky.social

"Sille jonka asiana ovat Hyvät päivät...

Ja sille jotka asiana ovat Hyvät yöt...

Haluan niitä kolmesataakuusikymmentäviisi kappaletta.

Jos haluaa hyviä öitä, on paras tilata niitä vuodeksi kerrallaan.

Hyvää ystävänpäivää kaikille ihanille tyypeille! 🫶🎁🥰

February 14, 2025 at 12:18 AM

Terhi❤️‍🩹

@terhivirtanen.bsky.social

❤️‍🩹Kaunista terapiaa #Lahti Pikku-Veskun pakkasessa kylpijät ❄️🌞🫶 -16

February 4, 2025 at 1:45 PM

Terhi❤️‍🩹

@terhivirtanen.bsky.social

Oispa kesä! 🌞🌸 Tää on mun Ihmeköynnös (Bougainvillea) jonka sain äitienpäivänä 10v sitten, Rodoksella sitä näkee valtavina pensaina Rodinin puistossa, vanhankaupungin vallihaudalla, ihan kaikkialla😍 Aikaisemmassa kodissani sain tämänkin kukkimaan uudestaan ja hauskasti teki monenvärisiä kukkia🌸🌼