Daisy
@suffolksky.bsky.social
Severe M.E. for over 20 years.
Just getting through the day.
Living in Suffolk.
Just getting through the day.
Living in Suffolk.
I've used Visible to help manage my M.E. for a few months now and found it very useful.
This research, once peer reviewed, will hopefully help persuade the NHS to prescribe Visible to help patients with energy conservation & activity management.
#MECFS #LC
This research, once peer reviewed, will hopefully help persuade the NHS to prescribe Visible to help patients with energy conservation & activity management.
#MECFS #LC
So excited to finally see this study out in pre-print! This study is the largest of its kind to date: Using data from 4,244 people with #LongCOVID, #MECFS and other complex chronic illnesses, we took hundreds of thousands of data points across hundreds of
www.researchsquare.com/article/rs-5...
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www.researchsquare.com/article/rs-5...
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Smartphone-based monitoring of heart rate variability and resting heart rate predicts variability in symptom exacerbations in people with complex chronic illness
Background: Complex chronic conditions like Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome involve energy limitations and changes in heart rate variability (HRV) and resting heart r...
www.researchsquare.com
December 2, 2024 at 9:45 PM
Article in The Guardian today about actor Matt McGorry and his experience of Long Covid.
tinyurl.com/ymbv6v3b
Also worth a watch are his two recent videos on Instagram - you can watch without having the app installed
tinyurl.com/4j2u7e3r
#LongCovid #MECFS
tinyurl.com/ymbv6v3b
Also worth a watch are his two recent videos on Instagram - you can watch without having the app installed
tinyurl.com/4j2u7e3r
#LongCovid #MECFS
‘I was in denial about it’: actor Matt McGorry on having long Covid
Orange Is the New Black and How to Get Away With Murder star speaks about the disease and another way of looking at health
tinyurl.com
December 2, 2024 at 7:21 PM
Article in The Guardian today about actor Matt McGorry and his experience of Long Covid.
tinyurl.com/ymbv6v3b
Also worth a watch are his two recent videos on Instagram - you can watch without having the app installed
tinyurl.com/4j2u7e3r
#LongCovid #MECFS
tinyurl.com/ymbv6v3b
Also worth a watch are his two recent videos on Instagram - you can watch without having the app installed
tinyurl.com/4j2u7e3r
#LongCovid #MECFS
The NHS in Suffolk & North East Essex (SNEE) is planning to commission a joint ME&CFS and Long Covid service. This was agreed at the Board meeting on 26-11-24.
The board papers are here: suffolkandnortheastessex.icb.nhs.uk/event/icb-bo...
#MECFS #LongCovid #NHS #SNEE
The board papers are here: suffolkandnortheastessex.icb.nhs.uk/event/icb-bo...
#MECFS #LongCovid #NHS #SNEE
ICB Board meeting, 26 November 2024
Members of the public are invited to attend the meeting in person. Alternatively, you can view the meeting live via YouTube or watch the recording at a later time. Please see details below. Board agen...
suffolkandnortheastessex.icb.nhs.uk
November 30, 2024 at 1:59 PM
The NHS in Suffolk & North East Essex (SNEE) is planning to commission a joint ME&CFS and Long Covid service. This was agreed at the Board meeting on 26-11-24.
The board papers are here: suffolkandnortheastessex.icb.nhs.uk/event/icb-bo...
#MECFS #LongCovid #NHS #SNEE
The board papers are here: suffolkandnortheastessex.icb.nhs.uk/event/icb-bo...
#MECFS #LongCovid #NHS #SNEE
Living with ME: photos and stories - Wellcome Collection.
Two of the photos and stories from people in Suffolk. Photos by the very kind and talented photographer Jeremy Jeffs. He is planning a book and exhibition next summer. #MECFS
wellcomecollection.org/stories/livi...
Two of the photos and stories from people in Suffolk. Photos by the very kind and talented photographer Jeremy Jeffs. He is planning a book and exhibition next summer. #MECFS
wellcomecollection.org/stories/livi...
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
wellcomecollection.org
November 28, 2024 at 9:18 AM
Living with ME: photos and stories - Wellcome Collection.
Two of the photos and stories from people in Suffolk. Photos by the very kind and talented photographer Jeremy Jeffs. He is planning a book and exhibition next summer. #MECFS
wellcomecollection.org/stories/livi...
Two of the photos and stories from people in Suffolk. Photos by the very kind and talented photographer Jeremy Jeffs. He is planning a book and exhibition next summer. #MECFS
wellcomecollection.org/stories/livi...