Simon Briscoe
@simonjbriscoe.bsky.social
Systematic reviewer and information specialist at the Exeter PRP Evidence Review Facility, University of Exeter. Senior Research Fellow. Interests: evidence synthesis, evidence-based policy, health equity https://experts.exeter.ac.uk/22388-simon-briscoe
Pinned
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
In this paper we aim to show how undertaking a #systematicreview in collaboration with a policymaker can be framed as a hermeneutic process, improving relevance for policy and challenging the conventional rule following account of #systematicreviews (1/2): journals.sagepub.com/doi/10.1177/...
Boy with rare condition amazes doctors after world-first gene therapy www.bbc.co.uk/news/article...
Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapy
Oliver has an inherited condition called Hunter syndrome, which causes progressive damage to the body and brain.
www.bbc.co.uk
November 24, 2025 at 9:40 AM
Boy with rare condition amazes doctors after world-first gene therapy www.bbc.co.uk/news/article...
Don't blindly trust what AI tells you, says Google's Sundar Pichai www.bbc.co.uk/news/article...
Don't blindly trust what AI tells you, Google boss tells BBC
Sundar Pichai candidly acknowledged concerns about inaccurate answers generated by Google's models.
www.bbc.co.uk
November 18, 2025 at 10:43 AM
Don't blindly trust what AI tells you, says Google's Sundar Pichai www.bbc.co.uk/news/article...
We’re very pleased to help move forward the plans set out in the England Rare Disease Action Plan to improve the experience of diagnosis and access to services for people with a #raredisease.
🚨New research from PenARC + Exeter NIHR PRP is helping NHSE understand health inequities in #RareDisease care.
The new framework was presented at the launch of the HSS Health Inequalities Toolkit.
📖Read a pre–peer review here: bit.ly/4825jqL
#HealthInequalities #NIHR
The new framework was presented at the launch of the HSS Health Inequalities Toolkit.
📖Read a pre–peer review here: bit.ly/4825jqL
#HealthInequalities #NIHR
From scoping review to practice: a framework for mapping health inequities in rare disease diagnosis and service access onto the health and social care pathway
Commententary on the development of a framework for mapping health inequities in rare disease diagnosis and service access onto the health and social care pathway.
bit.ly
November 18, 2025 at 10:41 AM
We’re very pleased to help move forward the plans set out in the England Rare Disease Action Plan to improve the experience of diagnosis and access to services for people with a #raredisease.
Reposted by Simon Briscoe
Join us for #OnlyConnect25 celebrating the power of #intergenerational and inclusive practice/research - hosted at Newlyn Art Gallery, with an expedition to Potager Garden for a magical evening meal.
Get ready to connect, make, talk, wonder and look beyond the horizon to what is possible.
Get ready to connect, make, talk, wonder and look beyond the horizon to what is possible.
August 8, 2025 at 9:28 AM
Join us for #OnlyConnect25 celebrating the power of #intergenerational and inclusive practice/research - hosted at Newlyn Art Gallery, with an expedition to Potager Garden for a magical evening meal.
Get ready to connect, make, talk, wonder and look beyond the horizon to what is possible.
Get ready to connect, make, talk, wonder and look beyond the horizon to what is possible.
Reposted by Simon Briscoe
👋 Meet Mick Arber, Senior Information Specialist at YHEC.
With 25+ years in health information and evidence synthesis, Mick brings expertise in robust, high-quality literature searching.
Read more: sites.google.com/york.ac.uk/y...
#EvidenceBasedMedicine #MedLibs
With 25+ years in health information and evidence synthesis, Mick brings expertise in robust, high-quality literature searching.
Read more: sites.google.com/york.ac.uk/y...
#EvidenceBasedMedicine #MedLibs
July 18, 2025 at 10:45 AM
👋 Meet Mick Arber, Senior Information Specialist at YHEC.
With 25+ years in health information and evidence synthesis, Mick brings expertise in robust, high-quality literature searching.
Read more: sites.google.com/york.ac.uk/y...
#EvidenceBasedMedicine #MedLibs
With 25+ years in health information and evidence synthesis, Mick brings expertise in robust, high-quality literature searching.
Read more: sites.google.com/york.ac.uk/y...
#EvidenceBasedMedicine #MedLibs
In this paper we aim to show how undertaking a #systematicreview in collaboration with a policymaker can be framed as a hermeneutic process, improving relevance for policy and challenging the conventional rule following account of #systematicreviews (1/2): journals.sagepub.com/doi/10.1177/...
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
July 7, 2025 at 1:00 PM
In this paper we aim to show how undertaking a #systematicreview in collaboration with a policymaker can be framed as a hermeneutic process, improving relevance for policy and challenging the conventional rule following account of #systematicreviews (1/2): journals.sagepub.com/doi/10.1177/...
Reposted by Simon Briscoe
Menstruation & Menopause as Reproductive Justice Issues: Feminist Reflections on Activism, Research, & Policy from the Global Movement's Scottish Hub
Bettina Bildhauer & Marcy Karin
papers.ssrn.com/sol3/papers....
Bettina Bildhauer & Marcy Karin
papers.ssrn.com/sol3/papers....
Menstruation and Menopause as Reproductive Justice Issues: Feminist Reflections on Activism, Research, and Policy from the Global Movement's Scottish Hub
This feminist reflection asserts that menstruation and menopause are elements of reproductive justice that are often overlooked due to menstrual taboos. Drawing
papers.ssrn.com
June 27, 2025 at 3:36 AM
Menstruation & Menopause as Reproductive Justice Issues: Feminist Reflections on Activism, Research, & Policy from the Global Movement's Scottish Hub
Bettina Bildhauer & Marcy Karin
papers.ssrn.com/sol3/papers....
Bettina Bildhauer & Marcy Karin
papers.ssrn.com/sol3/papers....
Our latest paper: Evidence of #inequities experienced by the #raredisease community with respect to receipt of a diagnosis and access to services: a scoping review of UK and international evidence link.springer.com/article/10.1...
Evidence of inequities experienced by the rare disease community with respect to receipt of a diagnosis and access to services: a scoping review of UK and international evidence - Orphanet Journal of ...
Background People with a rare disease find it difficult to obtain a diagnosis and access appropriate services. Evidence suggests that this can lead to health inequity amongst the rare disease communit...
link.springer.com
June 12, 2025 at 4:07 PM
Our latest paper: Evidence of #inequities experienced by the #raredisease community with respect to receipt of a diagnosis and access to services: a scoping review of UK and international evidence link.springer.com/article/10.1...
Interesting Campbell protocol - What works to increase the use of evidence for policy decision-making: A systematic review onlinelibrary.wiley.com/doi/10.1002/...
Protocol: What works to increase the use of evidence for policy decision‐making: A systematic review
This is the protocol for a Campbell systematic review. The objectives are as follows: Our aim is to collect, assess, and synthesise all the available empirical evidence on what works to support evide...
onlinelibrary.wiley.com
June 10, 2025 at 8:03 AM
Interesting Campbell protocol - What works to increase the use of evidence for policy decision-making: A systematic review onlinelibrary.wiley.com/doi/10.1002/...
Reposted by Simon Briscoe
Reposted by Simon Briscoe
“When I started my period at 15, I passed out, threw up, was petrified about what was happening and was told it was normal.”
Naga Munchetty: My first period made me faint - but doctors said it was normal
The journalist described having to throw up while presenting BBC Breakfast due to the pain of adenomyosis
www.independent.co.uk
May 26, 2025 at 10:36 AM
“When I started my period at 15, I passed out, threw up, was petrified about what was happening and was told it was normal.”
Reposted by Simon Briscoe
When world's collide - spotted in the @hayfestival.bsky.social bookshop
Naga Munchetty's important book on the women's health crisis cites our recent #systematicreview of #primarycare clinicians’ perspectives on interacting with patients with #gynaecological conditions
bjgpopen.org/content/8/1/...
Naga Munchetty's important book on the women's health crisis cites our recent #systematicreview of #primarycare clinicians’ perspectives on interacting with patients with #gynaecological conditions
bjgpopen.org/content/8/1/...
May 27, 2025 at 11:20 AM
When world's collide - spotted in the @hayfestival.bsky.social bookshop
Naga Munchetty's important book on the women's health crisis cites our recent #systematicreview of #primarycare clinicians’ perspectives on interacting with patients with #gynaecological conditions
bjgpopen.org/content/8/1/...
Naga Munchetty's important book on the women's health crisis cites our recent #systematicreview of #primarycare clinicians’ perspectives on interacting with patients with #gynaecological conditions
bjgpopen.org/content/8/1/...
Interesting blog post by Aaron Tay on the reproducibility and interpretability of academic Ai search engines musingsaboutlibrarianship.blogspot.com/2025/04/the-...
The reproducibility and interpretability of academic Ai search engines like Primo Research Assistant, Web of Science Research Assistant, Scopus Ai and more
A blog about academic librarianship. Covers discovery, open access and other hot trends by a librarian in Singapore.
musingsaboutlibrarianship.blogspot.com
May 21, 2025 at 7:55 AM
Interesting blog post by Aaron Tay on the reproducibility and interpretability of academic Ai search engines musingsaboutlibrarianship.blogspot.com/2025/04/the-...
In this blog post we summarise our recent paper which uses hermeneutics to explore expert judgement in systematic reviews for policy, and explore what this means for using AI in systematic reviews.
We hope you find it considered and thought-provoking!
planeterfexeter.wordpress.com/2025/04/30/e...
We hope you find it considered and thought-provoking!
planeterfexeter.wordpress.com/2025/04/30/e...
Expert judgement in systematic reviews for policy: reflections from a hermeneutic perspective on current practice and AI
Systematic reviews seek to use methods which are defined in advance in a protocol and carried out without deviation. However, in reality we are often interpreting these methods using our expert jud…
planeterfexeter.wordpress.com
April 30, 2025 at 2:33 PM
In this blog post we summarise our recent paper which uses hermeneutics to explore expert judgement in systematic reviews for policy, and explore what this means for using AI in systematic reviews.
We hope you find it considered and thought-provoking!
planeterfexeter.wordpress.com/2025/04/30/e...
We hope you find it considered and thought-provoking!
planeterfexeter.wordpress.com/2025/04/30/e...
Reposted by Simon Briscoe
'Bluesky has overtaken its flailing rival X in hosting posts related to new academic research, indicating the platform is fast becoming the go-to place for scholars to share their work.'
X’s dominance ‘over’ as Bluesky becomes new hub for research
Data indicates more scholars turning to alternative social media site to post about their work after Elon Musk’s Twitter takeover
www.timeshighereducation.com
April 9, 2025 at 7:14 AM
'Bluesky has overtaken its flailing rival X in hosting posts related to new academic research, indicating the platform is fast becoming the go-to place for scholars to share their work.'
Excited to see our paper "Framing #systematicreviews commissioned by policymakers as a hermeneutic process" published in Methodological Innovations -- a methodological commentary which uses hermeneutics to understand how reviewers and policy teams work together journals.sagepub.com/doi/full/10....
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
March 31, 2025 at 10:56 AM
Excited to see our paper "Framing #systematicreviews commissioned by policymakers as a hermeneutic process" published in Methodological Innovations -- a methodological commentary which uses hermeneutics to understand how reviewers and policy teams work together journals.sagepub.com/doi/full/10....
Reposted by Simon Briscoe
It's Rare Disease Day. Over 350 million people live with a rare condition globally. But rare disease is poorly taught about in medical education leaving doctors unable to support their patients. So we are raising awareness amongst healthcare professionals #ShowYourStripes
February 28, 2025 at 1:38 PM
It's Rare Disease Day. Over 350 million people live with a rare condition globally. But rare disease is poorly taught about in medical education leaving doctors unable to support their patients. So we are raising awareness amongst healthcare professionals #ShowYourStripes
The England Rare Diseases Action Plan 2025 is published today and includes an annex with a summary of our scoping review of inequities relating to diagnosis and access to services for people with a rare disease (1/2) #RareDiseaseDay2025 www.gov.uk/government/p...
England Rare Diseases Action Plan 2025: annexes
www.gov.uk
February 28, 2025 at 2:21 PM
The England Rare Diseases Action Plan 2025 is published today and includes an annex with a summary of our scoping review of inequities relating to diagnosis and access to services for people with a rare disease (1/2) #RareDiseaseDay2025 www.gov.uk/government/p...
Reposted by Simon Briscoe
🌍 Today is #RareDiseaseDay 2025!
We stand with the 300 million people worldwide living with rare diseases.
By coming together, we can raise awareness, drive change, and work toward a more inclusive and equitable future!
🔗 Read more: metab.ern-net.eu/rare-disease...
#RareDiseaseDay2025
We stand with the 300 million people worldwide living with rare diseases.
By coming together, we can raise awareness, drive change, and work toward a more inclusive and equitable future!
🔗 Read more: metab.ern-net.eu/rare-disease...
#RareDiseaseDay2025
February 28, 2025 at 7:51 AM
🌍 Today is #RareDiseaseDay 2025!
We stand with the 300 million people worldwide living with rare diseases.
By coming together, we can raise awareness, drive change, and work toward a more inclusive and equitable future!
🔗 Read more: metab.ern-net.eu/rare-disease...
#RareDiseaseDay2025
We stand with the 300 million people worldwide living with rare diseases.
By coming together, we can raise awareness, drive change, and work toward a more inclusive and equitable future!
🔗 Read more: metab.ern-net.eu/rare-disease...
#RareDiseaseDay2025
Reposted by Simon Briscoe
TODAY is #RareDiseaseDay! 💙💚💜
Across the world, our #raredisease community is sharing our colors and demanding equity for the 300 million people living with a rare disease.
But what’s the difference between equality and equity?
Across the world, our #raredisease community is sharing our colors and demanding equity for the 300 million people living with a rare disease.
But what’s the difference between equality and equity?
February 28, 2025 at 12:57 PM
TODAY is #RareDiseaseDay! 💙💚💜
Across the world, our #raredisease community is sharing our colors and demanding equity for the 300 million people living with a rare disease.
But what’s the difference between equality and equity?
Across the world, our #raredisease community is sharing our colors and demanding equity for the 300 million people living with a rare disease.
But what’s the difference between equality and equity?
Reposted by Simon Briscoe
Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay.
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
February 28, 2025 at 10:18 AM
Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay.
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
Reposted by Simon Briscoe
Twitter (X) and the Commercial Determinants of Health: Characterizing the Most Amplified, Influential, and Connected Voices Driving Twitter Discourse About Tobacco Regulatory Policy From September 2019 to July 2021
journals.sagepub.com/doi/10.1177/...
journals.sagepub.com/doi/10.1177/...
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
January 30, 2025 at 9:41 AM
Twitter (X) and the Commercial Determinants of Health: Characterizing the Most Amplified, Influential, and Connected Voices Driving Twitter Discourse About Tobacco Regulatory Policy From September 2019 to July 2021
journals.sagepub.com/doi/10.1177/...
journals.sagepub.com/doi/10.1177/...
Reposted by Simon Briscoe
Our commentary on commercial influences on patient & public involvement is out today @healthpromint.bsky.social as part of special issue on the #CDoH. We hope to stimulate discussion & debate (& hopefully meaningful action) in this area
academic.oup.com/heapro/artic...
@jameslarkin13.bsky.social
academic.oup.com/heapro/artic...
@jameslarkin13.bsky.social
Commercial influences on patient and public involvement: a renewed call for research and action
Abstract. Patient and public involvement is increasingly advocated in health policy, research and practice. Patients and people with lived experience, care
academic.oup.com
December 9, 2024 at 6:16 PM
Our commentary on commercial influences on patient & public involvement is out today @healthpromint.bsky.social as part of special issue on the #CDoH. We hope to stimulate discussion & debate (& hopefully meaningful action) in this area
academic.oup.com/heapro/artic...
@jameslarkin13.bsky.social
academic.oup.com/heapro/artic...
@jameslarkin13.bsky.social