SHARE Collaborative
@shareeastlondon.bsky.social
Research for Health Equity | Infections & Inequalities | Based at Queen Mary University of London and Barts Health NHS Trust, London. Director @profchloeorkin.bsky.social
Website: https://shareresearch.org.uk/
Website: https://shareresearch.org.uk/
Reposted by SHARE Collaborative
We’ve got over 1,500 participants in Ask Us Europe but need more so that we can produce country-level and demographic specific reports.
I have flyers in many languages and business cards.
If you, or anyone you know, is eligible and interested, come find me at #EACS2025.
@shareeastlondon.bsky.social
I have flyers in many languages and business cards.
If you, or anyone you know, is eligible and interested, come find me at #EACS2025.
@shareeastlondon.bsky.social
October 16, 2025 at 8:55 AM
We’ve got over 1,500 participants in Ask Us Europe but need more so that we can produce country-level and demographic specific reports.
I have flyers in many languages and business cards.
If you, or anyone you know, is eligible and interested, come find me at #EACS2025.
@shareeastlondon.bsky.social
I have flyers in many languages and business cards.
If you, or anyone you know, is eligible and interested, come find me at #EACS2025.
@shareeastlondon.bsky.social
Reposted by SHARE Collaborative
#EACS2025
At 15.35 today there’s a poster presentation of the early findings from the Ask Us Europe study, looking at discussions between people with HIV and their healthcare providers related to optimising treatment.
@shareeastlondon.bsky.social
NB Not me presenting - just posing there.
At 15.35 today there’s a poster presentation of the early findings from the Ask Us Europe study, looking at discussions between people with HIV and their healthcare providers related to optimising treatment.
@shareeastlondon.bsky.social
NB Not me presenting - just posing there.
October 16, 2025 at 1:07 PM
#EACS2025
At 15.35 today there’s a poster presentation of the early findings from the Ask Us Europe study, looking at discussions between people with HIV and their healthcare providers related to optimising treatment.
@shareeastlondon.bsky.social
NB Not me presenting - just posing there.
At 15.35 today there’s a poster presentation of the early findings from the Ask Us Europe study, looking at discussions between people with HIV and their healthcare providers related to optimising treatment.
@shareeastlondon.bsky.social
NB Not me presenting - just posing there.
Reposted by SHARE Collaborative
The Ask Us Europe team at #EACS2025 following Megan’s poster presentation.
If you’re on HIV treatment and live in Europe, please take part - it takes 10 minutes and the results should help improve treatments for us.
@shareeastlondon.bsky.social
@profchloeorkin.bsky.social
bit.ly/4oqzvCG
If you’re on HIV treatment and live in Europe, please take part - it takes 10 minutes and the results should help improve treatments for us.
@shareeastlondon.bsky.social
@profchloeorkin.bsky.social
bit.ly/4oqzvCG
October 17, 2025 at 7:58 AM
The Ask Us Europe team at #EACS2025 following Megan’s poster presentation.
If you’re on HIV treatment and live in Europe, please take part - it takes 10 minutes and the results should help improve treatments for us.
@shareeastlondon.bsky.social
@profchloeorkin.bsky.social
bit.ly/4oqzvCG
If you’re on HIV treatment and live in Europe, please take part - it takes 10 minutes and the results should help improve treatments for us.
@shareeastlondon.bsky.social
@profchloeorkin.bsky.social
bit.ly/4oqzvCG
This is a SHARE collaborative project. We are conducting a national survey to improve PrEP access for communities facing the greatest barriers, including racially minoritised women & men, queer men of colour, trans/non-binary people, sex workers, and recent migrants.
🔗 tinyurl.com/4a2kh54n
🔗 tinyurl.com/4a2kh54n
September 11, 2025 at 10:08 AM
This is a SHARE collaborative project. We are conducting a national survey to improve PrEP access for communities facing the greatest barriers, including racially minoritised women & men, queer men of colour, trans/non-binary people, sex workers, and recent migrants.
🔗 tinyurl.com/4a2kh54n
🔗 tinyurl.com/4a2kh54n
Reposted by SHARE Collaborative
We are still recruiting for our #beyondtheclinic survey. Deadline is Friday 19 September, so please get a response in for your sexual health service ASAP! 🚨
You can complete the survey here: bit.ly/40weNaX #studyparticipants
@bashhuk.bsky.social @bhiva.bsky.social @cosrh.org
Beyond the Clinic Survey | SHARE Research Collaborative
A survey to understand the breadth and scale of issues which may impact equitable implementation of CAB-LA outside of sexual health clinics in the UK.
bit.ly
September 5, 2025 at 9:33 AM
We are still recruiting for our #beyondtheclinic survey. Deadline is Friday 19 September, so please get a response in for your sexual health service ASAP! 🚨
You can complete the survey here: bit.ly/40weNaX #studyparticipants
@bashhuk.bsky.social @bhiva.bsky.social @cosrh.org
🗣️SURVEY on HIV PrEP!
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV_...
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV_...
Qualtrics Survey | Qualtrics Experience Management
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
shareresearch.qualtrics.com
September 10, 2025 at 10:21 AM
🗣️SURVEY on HIV PrEP!
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV_...
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV_...
We are still recruiting for our #beyondtheclinic survey. Deadline is Friday 19 September, so please get a response in for your sexual health service ASAP! 🚨
You can complete the survey here: bit.ly/40weNaX #studyparticipants
@bashhuk.bsky.social @bhiva.bsky.social @cosrh.org
Beyond the Clinic Survey | SHARE Research Collaborative
A survey to understand the breadth and scale of issues which may impact equitable implementation of CAB-LA outside of sexual health clinics in the UK.
bit.ly
September 5, 2025 at 9:33 AM
We are still recruiting for our #beyondtheclinic survey. Deadline is Friday 19 September, so please get a response in for your sexual health service ASAP! 🚨
You can complete the survey here: bit.ly/40weNaX #studyparticipants
@bashhuk.bsky.social @bhiva.bsky.social @cosrh.org
Reposted by SHARE Collaborative
Positive Health broadcast on HIV & Black communities is on Mon 8 Sept. Co-host Denis Onyango & I are joined by HIV advocate & researcher Rebecca Mbewe & @drrageshri.bsky.social. Watch live 5-5.30pm on @phoenixhealthm.bsky.social YouTube youtube.com/@phoenixheal... @shareeastlondon.bsky.social
September 4, 2025 at 11:52 AM
Positive Health broadcast on HIV & Black communities is on Mon 8 Sept. Co-host Denis Onyango & I are joined by HIV advocate & researcher Rebecca Mbewe & @drrageshri.bsky.social. Watch live 5-5.30pm on @phoenixhealthm.bsky.social YouTube youtube.com/@phoenixheal... @shareeastlondon.bsky.social
Reposted by SHARE Collaborative
Are you HIV+?
Living in Europe?
Currently on HIV treatment?
Please fill in the Ask Us Europe survey that I’ve been working on with @shareeastlondon.bsky.social.
We aim to ensure people with HIV have access to the best treatment and care.
Survey at: bit.ly/4m5ktRm
Living in Europe?
Currently on HIV treatment?
Please fill in the Ask Us Europe survey that I’ve been working on with @shareeastlondon.bsky.social.
We aim to ensure people with HIV have access to the best treatment and care.
Survey at: bit.ly/4m5ktRm
August 20, 2025 at 11:49 AM
Are you HIV+?
Living in Europe?
Currently on HIV treatment?
Please fill in the Ask Us Europe survey that I’ve been working on with @shareeastlondon.bsky.social.
We aim to ensure people with HIV have access to the best treatment and care.
Survey at: bit.ly/4m5ktRm
Living in Europe?
Currently on HIV treatment?
Please fill in the Ask Us Europe survey that I’ve been working on with @shareeastlondon.bsky.social.
We aim to ensure people with HIV have access to the best treatment and care.
Survey at: bit.ly/4m5ktRm
Reposted by SHARE Collaborative
We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices.
Visit the page & complete the survey below
Visit the page & complete the survey below
August 6, 2025 at 2:13 PM
We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices.
Visit the page & complete the survey below
Visit the page & complete the survey below
Reposted by SHARE Collaborative
Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
July 23, 2025 at 3:45 PM
Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
Reposted by SHARE Collaborative
Long-acting CAB+RPV for HIV is here but what counts as virological failure or treatment discontinuation? Turns out, there's no consensus in real-world use. Our Lancet HIV study set out to fix that. What was found? 15 different failure definitions in practice.
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
Establishing shared definitions of virological failure and discontinuation for long-acting injectable cabotegravir and rilpivirine therapy (the CONSENSUS-LAI Study): an international survey and Delphi...
Definitions of virological failure and treatment discontinuation for long-acting injectable (LAI) cabotegravir and rilpivirine antiretroviral therapy …
www.sciencedirect.com
August 5, 2025 at 12:30 PM
Long-acting CAB+RPV for HIV is here but what counts as virological failure or treatment discontinuation? Turns out, there's no consensus in real-world use. Our Lancet HIV study set out to fix that. What was found? 15 different failure definitions in practice.
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
Reposted by SHARE Collaborative
if you are in Europe (inc the UK!), living with HIV in a country where injectable ART is available, please fill in this short survey from *brilliant* @shareeastlondon.bsky.social, and circ through your networks!
#AskUs
shareresearch.org.uk/ask-us-study/
shareresearch.qualtrics.com/jfe/form/SV_...
#AskUs
shareresearch.org.uk/ask-us-study/
shareresearch.qualtrics.com/jfe/form/SV_...
July 23, 2025 at 4:30 PM
if you are in Europe (inc the UK!), living with HIV in a country where injectable ART is available, please fill in this short survey from *brilliant* @shareeastlondon.bsky.social, and circ through your networks!
#AskUs
shareresearch.org.uk/ask-us-study/
shareresearch.qualtrics.com/jfe/form/SV_...
#AskUs
shareresearch.org.uk/ask-us-study/
shareresearch.qualtrics.com/jfe/form/SV_...
Reposted by SHARE Collaborative
This is a study I'm working on for
@shareeastlondon.bsky.social
- please share, and if you're a sexual health clinician - please fill it out! There's more info about the study here: shareresearch.org.uk/beyond-the-c... #beyondtheclinic
@shareeastlondon.bsky.social
- please share, and if you're a sexual health clinician - please fill it out! There's more info about the study here: shareresearch.org.uk/beyond-the-c... #beyondtheclinic
Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
July 23, 2025 at 3:54 PM
This is a study I'm working on for
@shareeastlondon.bsky.social
- please share, and if you're a sexual health clinician - please fill it out! There's more info about the study here: shareresearch.org.uk/beyond-the-c... #beyondtheclinic
@shareeastlondon.bsky.social
- please share, and if you're a sexual health clinician - please fill it out! There's more info about the study here: shareresearch.org.uk/beyond-the-c... #beyondtheclinic
Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
July 23, 2025 at 3:45 PM
Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants
Reposted by SHARE Collaborative
Our latest study to understand the perspective of people living with HIV in Europe is now live!
We created it together with an amazing steering group of community members from 17 countries.
Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏
We created it together with an amazing steering group of community members from 17 countries.
Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏
Our latest study 'ASK US Europe' is live and open to recruitment for people living with HIV in Europe who are on ART!
Please share widely across your networks in Europe and the UK.
bit.ly/4m5ktRm
/1
Please share widely across your networks in Europe and the UK.
bit.ly/4m5ktRm
/1
Ask Us Europe
This survey aims to gather insights from the perspective of people living with HIV on discussions with HIV healthcare provider about new HIV treatments.
bit.ly
July 22, 2025 at 10:24 AM
Our latest study to understand the perspective of people living with HIV in Europe is now live!
We created it together with an amazing steering group of community members from 17 countries.
Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏
We created it together with an amazing steering group of community members from 17 countries.
Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏
Reposted by SHARE Collaborative
Do you live with HIV?
Are you in Europe and currently on treatment?
Please take part in the Ask Us Europe survey, which aims to improve treatment and care for people with HIV.
I am proud to have worked on it with @shareeastlondon.bsky.social and a powerful group of people with HIV.
Please share. 🙏
Are you in Europe and currently on treatment?
Please take part in the Ask Us Europe survey, which aims to improve treatment and care for people with HIV.
I am proud to have worked on it with @shareeastlondon.bsky.social and a powerful group of people with HIV.
Please share. 🙏
July 22, 2025 at 10:50 AM
Do you live with HIV?
Are you in Europe and currently on treatment?
Please take part in the Ask Us Europe survey, which aims to improve treatment and care for people with HIV.
I am proud to have worked on it with @shareeastlondon.bsky.social and a powerful group of people with HIV.
Please share. 🙏
Are you in Europe and currently on treatment?
Please take part in the Ask Us Europe survey, which aims to improve treatment and care for people with HIV.
I am proud to have worked on it with @shareeastlondon.bsky.social and a powerful group of people with HIV.
Please share. 🙏
Our latest study 'ASK US Europe' is live and open to recruitment for people living with HIV in Europe who are on ART!
Please share widely across your networks in Europe and the UK.
bit.ly/4m5ktRm
/1
Please share widely across your networks in Europe and the UK.
bit.ly/4m5ktRm
/1
Ask Us Europe
This survey aims to gather insights from the perspective of people living with HIV on discussions with HIV healthcare provider about new HIV treatments.
bit.ly
July 22, 2025 at 10:19 AM
Our latest study 'ASK US Europe' is live and open to recruitment for people living with HIV in Europe who are on ART!
Please share widely across your networks in Europe and the UK.
bit.ly/4m5ktRm
/1
Please share widely across your networks in Europe and the UK.
bit.ly/4m5ktRm
/1
We’re pleased to be collaborating with @thelovetankcic.bsky.social
on the Queer Health Survey, and they are currently recruiting!
📌 Role: Programme Coordinator
🕒 17.5 hours/week | 12-month contract
📅 Deadline: Midday, 9 July 2025
🔗 Full details: www.thelovetank.info/vacancies/qhs
on the Queer Health Survey, and they are currently recruiting!
📌 Role: Programme Coordinator
🕒 17.5 hours/week | 12-month contract
📅 Deadline: Midday, 9 July 2025
🔗 Full details: www.thelovetank.info/vacancies/qhs
June 27, 2025 at 6:19 AM
We’re pleased to be collaborating with @thelovetankcic.bsky.social
on the Queer Health Survey, and they are currently recruiting!
📌 Role: Programme Coordinator
🕒 17.5 hours/week | 12-month contract
📅 Deadline: Midday, 9 July 2025
🔗 Full details: www.thelovetank.info/vacancies/qhs
on the Queer Health Survey, and they are currently recruiting!
📌 Role: Programme Coordinator
🕒 17.5 hours/week | 12-month contract
📅 Deadline: Midday, 9 July 2025
🔗 Full details: www.thelovetank.info/vacancies/qhs
Reposted by SHARE Collaborative
Happy #Pride Month! 🏳️🌈🏳️⚧️ We're committed to making healthcare in East London more inclusive. And according to @england.nhs.uk LGBTQ+ people face disproportionately worse health outcomes. See how we're making healthcare more inclusive with the help of @shareeastlondon.bsky.social bit.ly/4dMDJ38
June 5, 2025 at 12:34 PM
Happy #Pride Month! 🏳️🌈🏳️⚧️ We're committed to making healthcare in East London more inclusive. And according to @england.nhs.uk LGBTQ+ people face disproportionately worse health outcomes. See how we're making healthcare more inclusive with the help of @shareeastlondon.bsky.social bit.ly/4dMDJ38
Reposted by SHARE Collaborative
Thank you @susancolehaley.bsky.social for your barnstorming talk at the start of the #AIDSImpact conference and for shouting out @shareeastlondon.bsky.social and my book #Unheard!
May 26, 2025 at 9:23 AM
Thank you @susancolehaley.bsky.social for your barnstorming talk at the start of the #AIDSImpact conference and for shouting out @shareeastlondon.bsky.social and my book #Unheard!
Hear @sarapaparini.bsky.social and Dr Renee West talk about the power of collaboration and community research in reducing inequitable health outcomes. @shareeastlondon.bsky.social have been fortunate to work with @positiveeast.bsky.social on many projects.
www.youtube.com/watch?v=ti0p...
www.youtube.com/watch?v=ti0p...
Queen Mary research partnerships in East London - Positive East
YouTube video by QMULOfficial
www.youtube.com
April 28, 2025 at 6:31 AM
Hear @sarapaparini.bsky.social and Dr Renee West talk about the power of collaboration and community research in reducing inequitable health outcomes. @shareeastlondon.bsky.social have been fortunate to work with @positiveeast.bsky.social on many projects.
www.youtube.com/watch?v=ti0p...
www.youtube.com/watch?v=ti0p...
Reposted by SHARE Collaborative
Welcome to Phoenix Health Movement! We're dedicated to addressing health inequities affecting Black women & other marginalized communities. Out Co-Founders @susancolehaley.bsky.social & Dr Vanessa Apea from @shareeastlondon.bsky.social share more about us in our first video on Bluesky!
April 10, 2025 at 11:06 AM
Welcome to Phoenix Health Movement! We're dedicated to addressing health inequities affecting Black women & other marginalized communities. Out Co-Founders @susancolehaley.bsky.social & Dr Vanessa Apea from @shareeastlondon.bsky.social share more about us in our first video on Bluesky!
Reposted by SHARE Collaborative
Here is a blog by Vanessa Apea and I
describing the story behind most recent SHARE-net manuscript on the healthcare provider perspective during the 2022/23 #mpox outbreak.
The paper has been published in PLOS Global Public Health
eur01.safelinks.protection.outlook.com?url=https%3A...
describing the story behind most recent SHARE-net manuscript on the healthcare provider perspective during the 2022/23 #mpox outbreak.
The paper has been published in PLOS Global Public Health
eur01.safelinks.protection.outlook.com?url=https%3A...
Behind the Paper: International Healthcare Workers’ Experiences and Perceptions of the 2022 Mpox Outbreak
PLOS Global Public Health was a natural home for our study due to its commitment to open-access publishing and its focus on amplifying research from diverse and resource-limited settings. Given the gl...
eur01.safelinks.protection.outlook.com
February 27, 2025 at 4:20 PM
Here is a blog by Vanessa Apea and I
describing the story behind most recent SHARE-net manuscript on the healthcare provider perspective during the 2022/23 #mpox outbreak.
The paper has been published in PLOS Global Public Health
eur01.safelinks.protection.outlook.com?url=https%3A...
describing the story behind most recent SHARE-net manuscript on the healthcare provider perspective during the 2022/23 #mpox outbreak.
The paper has been published in PLOS Global Public Health
eur01.safelinks.protection.outlook.com?url=https%3A...
Reposted by SHARE Collaborative
In these unthinkably dark days for global public health I’m proud to share the results of this international survey which describes the challenging and distressing experiences of clinicians in 12 countries during the 2022/23 #mpox pandemic.
eur01.safelinks.protection.outlook.com?url=https%3A...
eur01.safelinks.protection.outlook.com?url=https%3A...
International healthcare workers’ experiences and perceptions of the 2022 multi-country mpox outbreak
In May 2022, the most widespread outbreak of sustained transmission of mpox outside of countries historically affected countries in Western and Central Africa occurred. We aimed to examine the persona...
eur01.safelinks.protection.outlook.com
February 16, 2025 at 11:19 AM
In these unthinkably dark days for global public health I’m proud to share the results of this international survey which describes the challenging and distressing experiences of clinicians in 12 countries during the 2022/23 #mpox pandemic.
eur01.safelinks.protection.outlook.com?url=https%3A...
eur01.safelinks.protection.outlook.com?url=https%3A...