R. Letts
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rletts.bsky.social
R. Letts
@rletts.bsky.social
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rletts.bsky.social
R. Letts @rletts.bsky.social · Mar 14
Thank you to Kristin Urquiza @MarkedByCovid for your hard work on behalf of all of us & Karyn Bishoff @c19lap (www.longhauler-advocacy.org) for the invitation recommendation! Not to mention California Senator, Susan Rubio, for fighting for our cause! 2/3
Reposted by R. Letts
mileswgriffis.bsky.social
🚨 BREAKING: Long COVID research grants rescinded earlier this week have been restored, according to researchers & patient reps. Advocates organized quickly yesterday in response to the news, helping reverse the decision.

Exclusive in @thesicktimes.bsky.social

thesicktimes.org/2025/03/28/u...
UPDATE: RECOVER Long COVID pathobiology grants restored - The Sick Times
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, accord...
thesicktimes.org
March 28, 2025 at 7:36 PM
rletts.bsky.social
It was a busy (translate=rough) week last week &, as always, patient/caregiver advocates/ RECOVER representatives did what we’ve done from the beginning…continued fighting through all odds & all symptoms.
So many of us crashed hard as a result. Let’s see what this week brings…
#LongCovid #LHCF
March 31, 2025 at 3:41 PM
Reposted by R. Letts
thesicktimes.org
🚨 BREAKING: #LongCOVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, according to patient representatives in the initiative. bit.ly/3FO8LuQ
Long COVID advocates in matching teal shirts pose for a photo at the Senate Committee on Health, Education, Labor & Pensions hearing on Long COVID. The text reads, “The Sick Times. UPDATE: RECOVER Long COVID pathobiology grants restored. By Betsy Ladyzhets and Miles Griffis.” Long COVID advocates stepped up to contact their representatives and advocate for RECOVER funding and other federal Long COVID initiatives to remain in place. While the research program’s broader future remains uncertain, these restored grants are a significant milestone, said RECOVER patient representative Megan Fitzgerald.
March 28, 2025 at 9:07 PM
Reposted by R. Letts
thesicktimes.org
Over the coming weeks and months, first-wavers around the world will observe five years with Long COVID. Many already have. Read more from @mileswgriffis.bsky.social: bit.ly/4ictDdi
Photo of a banner reading, “LONG COVID KILLS,” in front of the Lincoln Memorial. The text reads, “The Sick Times. Half a decade of Long COVID. By Miles W. Griffis.” The following slides feature quotes from the story at The Sick Times. Black text with a turquoise highlight on a white background reads, "I am inspired by the bravery of people with Long COVID who have shared their stories and led the way in the face of so much willful indifference and cruelty. We will face these new challenges fueled by the courage and knowledge we have gained over the past five years. - Miles W. Griffis"
March 10, 2025 at 1:19 PM
rletts.bsky.social
longhauler-advocacy.org/so/ebPNEWBYA...
A Statement from our Founder on the Closure of The Office for Long COVID Research and Practice
To the millions we serve, Today it is with great sorrow that I announce by direction of the Trump administration, The Office for Long COVID Research and Practice has been ordered closed. The Office fo...
longhauler-advocacy.org
March 26, 2025 at 6:28 PM
rletts.bsky.social
actionnetwork.org/letters/long...
#LongCOVID Is Being Erased in Real Time—Help Us Stop It!
Trump Administration Impacts to Long COVID Closure of the HHS Office for Long COVID Research and Practice, which was intended to coordinate Long COVID efforts across federal agencies, represents a de...
actionnetwork.org
March 26, 2025 at 6:27 PM
rletts.bsky.social
It’s official! March 15 isn’t only International Long Covid Awareness Day, it’s also now recognized as Long Covid Awareness Day in California!

#LongCOVIDAwarenessWeek 1/3
March 14, 2025 at 3:38 AM
Reposted by R. Letts
mhornig.bsky.social
Great 🧵by
@leorahorwitzmd
on the new JAMA ppr on 2024 update to #NIHRECOVER #LongCOVID index. Also listen to her incisive presentation on the podcast (see🔗👇).

Great to work w/this group as we strive to refine understanding of this disabling disorder's clinical manifestations
December 20, 2024 at 12:43 AM
Reposted by R. Letts
leorahorwitzmd.bsky.social
Now out in @jama.com, the 2024 update to the #NIHRECOVER 2023 #LongCOVID index. Explainer follows. 🧵#MedSky jamanetwork.com/journals/jam... 1/n
2024 Update of the RECOVER-Adult Long COVID Research Index
This prospective, observational cohort study uses data from the Researching COVID to Enhance Recovery adult cohort to assess post–COVID-19 condition (or long COVID) with additional participant data an...
jamanetwork.com
December 19, 2024 at 4:35 PM
Reposted by R. Letts
leorahorwitzmd.bsky.social
Delighted our paper on post #COVID #MECFS from #NIHRECOVER is out last week in @journalgim.bsky.social. We find people are almost 5x more likely to develop ME/CFS ("chronic fatigue syndrome") after first COVID infection than uninfected controls. #MedSky link.springer.com/article/10.1...
Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER-Adult Study - Journal of General Internal Medicine
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may occur after infection. How often people develop ME/CFS after SARS-CoV-2 infection is unknown. Objective To determine the inci...
link.springer.com
January 20, 2025 at 4:23 PM