rFSGS Initiative
@rfsgsinitiative.bsky.social
Stay tuned for more information on the next Recurrent Focal Segmental Glomerulosclerosis Conference! #rFSGSConference #rFSGS
https://www.scgcorp.com/rFSGS2024/
https://www.scgcorp.com/rFSGS2024/
Pinned
Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
As #KidneyMonth2025 ends, we want to hear from you all on what continues to inspire you and provide hope for a future where a cure for #rFSGS exists! Let us know your thoughts and experiences in the comments below. ⬇️
#rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
#rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
March 31, 2025 at 8:44 PM
As #KidneyMonth2025 ends, we want to hear from you all on what continues to inspire you and provide hope for a future where a cure for #rFSGS exists! Let us know your thoughts and experiences in the comments below. ⬇️
#rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
#rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.
#KidneyMonth #rFSGS #rFSGSConference
#KidneyMonth #rFSGS #rFSGSConference
March 27, 2025 at 7:06 PM
Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.
#KidneyMonth #rFSGS #rFSGSConference
#KidneyMonth #rFSGS #rFSGSConference
Reposted by rFSGS Initiative
Happy Thursday! Less than a month left to register for the IgAN Diagnosis & Treatment Updates 2025 on April 4th. Feel free to register using the following link: www.eventleaf.com/e/...
March 13, 2025 at 3:00 PM
Happy Thursday! Less than a month left to register for the IgAN Diagnosis & Treatment Updates 2025 on April 4th. Feel free to register using the following link: www.eventleaf.com/e/...
Once FSGS reoccurs after a #KidneyTransplant, there are limited treatment options & currently no definitive cure. Follow us to stay updated on the latest news about #rFSGS research & join our Facebook group: www.facebook.com/groups/57871...
#KidneyMonth #rFSGSConference #nephsky #medsky #skyneph
#KidneyMonth #rFSGSConference #nephsky #medsky #skyneph
March 23, 2025 at 8:16 PM
Once FSGS reoccurs after a #KidneyTransplant, there are limited treatment options & currently no definitive cure. Follow us to stay updated on the latest news about #rFSGS research & join our Facebook group: www.facebook.com/groups/57871...
#KidneyMonth #rFSGSConference #nephsky #medsky #skyneph
#KidneyMonth #rFSGSConference #nephsky #medsky #skyneph
Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
March 17, 2025 at 8:10 PM
Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure.
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
March 13, 2025 at 4:11 PM
It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure.
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
Stay connected with attendees from the past #rFSGSConference, meet others who have been impacted by #rFSGS, and share your experiences in our Recurrent FSGS Community Facebook group: www.facebook.com/groups/57871...
#KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph
March 11, 2025 at 12:50 PM
Stay connected with attendees from the past #rFSGSConference, meet others who have been impacted by #rFSGS, and share your experiences in our Recurrent FSGS Community Facebook group: www.facebook.com/groups/57871...
#KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph
Flashback to our #rFSGSConference in December! We brought together patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned! #KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph @genetickidneydoc.bsky.social
March 6, 2025 at 10:14 PM
Flashback to our #rFSGSConference in December! We brought together patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned! #KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph @genetickidneydoc.bsky.social
Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates.
#rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph
#rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph
March 4, 2025 at 9:50 PM
Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates.
#rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph
#rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph
Thank you for joining us for the wonderful #rFSGSConference last week in Washington, DC! We look forward to being in touch with you all soon! #rFSGS
December 20, 2024 at 9:09 PM
Thank you for joining us for the wonderful #rFSGSConference last week in Washington, DC! We look forward to being in touch with you all soon! #rFSGS
At today's #rFSGSConference, we're connecting patients, families, doctors, researchers, funders, & political leaders to raise awareness of #rFSGS.
The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚
The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚
December 9, 2024 at 4:27 PM
At today's #rFSGSConference, we're connecting patients, families, doctors, researchers, funders, & political leaders to raise awareness of #rFSGS.
The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚
The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚
Reposted by rFSGS Initiative
It’s wonderful that the @rfsgsinitiative.bsky.social conference has two sessions dedicated to stories from patients & families. We are so grateful to hear the perspectives of these courageous & generous individuals @genetickidneydoc.bsky.social @opeyemiolabisi.bsky.social @gbadegesinlab.bsky.social
December 9, 2024 at 3:14 PM
It’s wonderful that the @rfsgsinitiative.bsky.social conference has two sessions dedicated to stories from patients & families. We are so grateful to hear the perspectives of these courageous & generous individuals @genetickidneydoc.bsky.social @opeyemiolabisi.bsky.social @gbadegesinlab.bsky.social
Reposted by rFSGS Initiative
A clear and stirring mission statement for the @rfsgsinitiative.bsky.social from an inspiring video that opened the session @genetickidneydoc.bsky.social
December 9, 2024 at 2:25 PM
A clear and stirring mission statement for the @rfsgsinitiative.bsky.social from an inspiring video that opened the session @genetickidneydoc.bsky.social
Reposted by rFSGS Initiative
The epitome of a Physician-Scientist. @gbadegesinlab.bsky.social swoops in to DC this morning from being on call last night in North Carolina to moderate an early session here at @rfsgsinitiative.bsky.social
December 9, 2024 at 2:40 PM
The epitome of a Physician-Scientist. @gbadegesinlab.bsky.social swoops in to DC this morning from being on call last night in North Carolina to moderate an early session here at @rfsgsinitiative.bsky.social
We've kicked off the first-ever #rFSGSConference! We look forward to an impactful day by and for #rFSGS patients. #RareDisease #KidneyTransplant
December 9, 2024 at 2:20 PM
We've kicked off the first-ever #rFSGSConference! We look forward to an impactful day by and for #rFSGS patients. #RareDisease #KidneyTransplant
Reposted by rFSGS Initiative
This guy, @genetickidneydoc.bsky.social, with a great help, has put together a wonderful program for the inaugural @rfsgsinitiative.bsky.social meeting. Looking for to tomorrow’s big day #kidneyomics #NephSky
December 9, 2024 at 3:21 AM
This guy, @genetickidneydoc.bsky.social, with a great help, has put together a wonderful program for the inaugural @rfsgsinitiative.bsky.social meeting. Looking for to tomorrow’s big day #kidneyomics #NephSky
We look forward to seeing you tomorrow for the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference!
🔹7:30 a.m.–5:30 p.m.
🔹Hyatt Regency Washington on Capitol Hill
🔹Washington, DC
View our program to see what's in store: www.scgcorp.com/rFSGS2024/Ag... #rFSGSConference
🔹7:30 a.m.–5:30 p.m.
🔹Hyatt Regency Washington on Capitol Hill
🔹Washington, DC
View our program to see what's in store: www.scgcorp.com/rFSGS2024/Ag... #rFSGSConference
December 9, 2024 at 3:08 AM
We look forward to seeing you tomorrow for the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference!
🔹7:30 a.m.–5:30 p.m.
🔹Hyatt Regency Washington on Capitol Hill
🔹Washington, DC
View our program to see what's in store: www.scgcorp.com/rFSGS2024/Ag... #rFSGSConference
🔹7:30 a.m.–5:30 p.m.
🔹Hyatt Regency Washington on Capitol Hill
🔹Washington, DC
View our program to see what's in store: www.scgcorp.com/rFSGS2024/Ag... #rFSGSConference
📣REGISTRATION DEADLINE EXTENDED📣
There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...
#KidneyTransplant
#RareDisease
#nephsky
#skyneph
There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...
#KidneyTransplant
#RareDisease
#nephsky
#skyneph
December 5, 2024 at 2:40 PM
📣REGISTRATION DEADLINE EXTENDED📣
There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...
#KidneyTransplant
#RareDisease
#nephsky
#skyneph
There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...
#KidneyTransplant
#RareDisease
#nephsky
#skyneph
🚨 #rFSGSConference registration closes today! 🚨
Don't miss out! If you want to take part in the first-ever conference on #rFSGS with patients, accomplished researchers, political leaders, and more, register now: www.scgcorp.com/rFSGS2024/Re... #KidneyTransplant #RareDisease
Don't miss out! If you want to take part in the first-ever conference on #rFSGS with patients, accomplished researchers, political leaders, and more, register now: www.scgcorp.com/rFSGS2024/Re... #KidneyTransplant #RareDisease
December 3, 2024 at 9:24 PM
🚨 #rFSGSConference registration closes today! 🚨
Don't miss out! If you want to take part in the first-ever conference on #rFSGS with patients, accomplished researchers, political leaders, and more, register now: www.scgcorp.com/rFSGS2024/Re... #KidneyTransplant #RareDisease
Don't miss out! If you want to take part in the first-ever conference on #rFSGS with patients, accomplished researchers, political leaders, and more, register now: www.scgcorp.com/rFSGS2024/Re... #KidneyTransplant #RareDisease
We have 1⃣ WEEK until the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference!
Check out the latest #rFSGSConference program to see a day full of inspiring talks & groundbreaking research: www.scgcorp.com/rFSGS2024/Ag...
➡️Don't forget to register: www.scgcorp.com/rFSGS2024/Re...
Check out the latest #rFSGSConference program to see a day full of inspiring talks & groundbreaking research: www.scgcorp.com/rFSGS2024/Ag...
➡️Don't forget to register: www.scgcorp.com/rFSGS2024/Re...
December 2, 2024 at 11:26 PM
We have 1⃣ WEEK until the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference!
Check out the latest #rFSGSConference program to see a day full of inspiring talks & groundbreaking research: www.scgcorp.com/rFSGS2024/Ag...
➡️Don't forget to register: www.scgcorp.com/rFSGS2024/Re...
Check out the latest #rFSGSConference program to see a day full of inspiring talks & groundbreaking research: www.scgcorp.com/rFSGS2024/Ag...
➡️Don't forget to register: www.scgcorp.com/rFSGS2024/Re...
At the upcoming #rFSGSConference, you can meet 150+ attendees including patients, researchers, members of congress, senators, and more! 🤝
If you want to participate, check out more info on the first-ever conference all about #rFSGS! www.scgcorp.com/rFSGS2024/De... #RareDisease #KidneyTransplant
If you want to participate, check out more info on the first-ever conference all about #rFSGS! www.scgcorp.com/rFSGS2024/De... #RareDisease #KidneyTransplant
December 2, 2024 at 1:19 AM
At the upcoming #rFSGSConference, you can meet 150+ attendees including patients, researchers, members of congress, senators, and more! 🤝
If you want to participate, check out more info on the first-ever conference all about #rFSGS! www.scgcorp.com/rFSGS2024/De... #RareDisease #KidneyTransplant
If you want to participate, check out more info on the first-ever conference all about #rFSGS! www.scgcorp.com/rFSGS2024/De... #RareDisease #KidneyTransplant
You're in luck! It's not too late to register for the Recurrent Focal Segmental Glomerulosclerosis (rFSGS) Conference. Visit our website and submit your registration today to join us on Dec. 9: www.scgcorp.com/rFSGS2024/Re... #rFSGS #rFSGSConference
November 29, 2024 at 9:15 PM
You're in luck! It's not too late to register for the Recurrent Focal Segmental Glomerulosclerosis (rFSGS) Conference. Visit our website and submit your registration today to join us on Dec. 9: www.scgcorp.com/rFSGS2024/Re... #rFSGS #rFSGSConference
Recurrent focal segmental glomerulosclerosis (rFSGS) is characterized by the reoccurrence of FSGS within the first few weeks after a #KidneyTransplant. If you've been impacted by #rFSGS, join patients, caregivers, & researchers at our #rFSGSConference: www.scgcorp.com/rFSGS2024/Re...
November 28, 2024 at 3:30 AM
Recurrent focal segmental glomerulosclerosis (rFSGS) is characterized by the reoccurrence of FSGS within the first few weeks after a #KidneyTransplant. If you've been impacted by #rFSGS, join patients, caregivers, & researchers at our #rFSGSConference: www.scgcorp.com/rFSGS2024/Re...
Do you know someone with recurrent focal segmental glomerulosclerosis? If so, tell them about the first-ever #rFSGSConference coming to Washington, DC! This event will host patients, political leaders, and #rFSGS researchers. Register today: www.scgcorp.com/rFSGS2024/Re...
#RareDisease
#RareDisease
November 26, 2024 at 10:33 PM
Do you know someone with recurrent focal segmental glomerulosclerosis? If so, tell them about the first-ever #rFSGSConference coming to Washington, DC! This event will host patients, political leaders, and #rFSGS researchers. Register today: www.scgcorp.com/rFSGS2024/Re...
#RareDisease
#RareDisease
🚨 We are officially two weeks out from the #rFSGSConference! 🚨
Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...
Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...
November 26, 2024 at 2:05 AM
🚨 We are officially two weeks out from the #rFSGSConference! 🚨
Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...
Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...