@retinauk.bsky.social
Join us for an “Ask the Expert” webinar with Prof Marcela Votruba, Professor of Ophthalmology at Cardiff University and Consultant at University Hospital Wales, where she leads the genetic eye clinic.
Register now: https://retinauk.org.uk/event/webinar-ask-the-expert-with-professor-marcela-votruba/
Register now: https://retinauk.org.uk/event/webinar-ask-the-expert-with-professor-marcela-votruba/
November 14, 2025 at 1:01 PM
Join us for an “Ask the Expert” webinar with Prof Marcela Votruba, Professor of Ophthalmology at Cardiff University and Consultant at University Hospital Wales, where she leads the genetic eye clinic.
Register now: https://retinauk.org.uk/event/webinar-ask-the-expert-with-professor-marcela-votruba/
Register now: https://retinauk.org.uk/event/webinar-ask-the-expert-with-professor-marcela-votruba/
Breaking news from the Sahara - they have done it! 🏜️
Over the past week, 16 incredible Retina UK supporters conquered the desert, raising an amazing £40,000 (including offline gifts)! We are so grateful to them for their inspiring efforts, which will make such a huge difference for our community 💙
Over the past week, 16 incredible Retina UK supporters conquered the desert, raising an amazing £40,000 (including offline gifts)! We are so grateful to them for their inspiring efforts, which will make such a huge difference for our community 💙
November 12, 2025 at 4:31 PM
Breaking news from the Sahara - they have done it! 🏜️
Over the past week, 16 incredible Retina UK supporters conquered the desert, raising an amazing £40,000 (including offline gifts)! We are so grateful to them for their inspiring efforts, which will make such a huge difference for our community 💙
Over the past week, 16 incredible Retina UK supporters conquered the desert, raising an amazing £40,000 (including offline gifts)! We are so grateful to them for their inspiring efforts, which will make such a huge difference for our community 💙
We'll be exhibiting at #SightVillage London on the 18 and 19 November!
You'll be able to meet us in person and find out more about what we offer. Pre-registration is available and recommended by calling 0121 803 5313 or by emailing sv@qac.ac.uk.
We look forward to seeing you on the day!
You'll be able to meet us in person and find out more about what we offer. Pre-registration is available and recommended by calling 0121 803 5313 or by emailing sv@qac.ac.uk.
We look forward to seeing you on the day!
November 11, 2025 at 3:31 PM
We'll be exhibiting at #SightVillage London on the 18 and 19 November!
You'll be able to meet us in person and find out more about what we offer. Pre-registration is available and recommended by calling 0121 803 5313 or by emailing sv@qac.ac.uk.
We look forward to seeing you on the day!
You'll be able to meet us in person and find out more about what we offer. Pre-registration is available and recommended by calling 0121 803 5313 or by emailing sv@qac.ac.uk.
We look forward to seeing you on the day!
RNIB is running a 20-min anonymous survey on how people listen, enjoy, and what could improve.
Closes 24 Nov 2025.
Your feedback shapes RNIB Connect Radio.
Take part: https://www.surveymonkey.com/r/LT3GTJC or call Nicola 07736 462071. Questions? research@rnib.org.uk / 0303 123 9999
Closes 24 Nov 2025.
Your feedback shapes RNIB Connect Radio.
Take part: https://www.surveymonkey.com/r/LT3GTJC or call Nicola 07736 462071. Questions? research@rnib.org.uk / 0303 123 9999
November 10, 2025 at 4:31 PM
RNIB is running a 20-min anonymous survey on how people listen, enjoy, and what could improve.
Closes 24 Nov 2025.
Your feedback shapes RNIB Connect Radio.
Take part: https://www.surveymonkey.com/r/LT3GTJC or call Nicola 07736 462071. Questions? research@rnib.org.uk / 0303 123 9999
Closes 24 Nov 2025.
Your feedback shapes RNIB Connect Radio.
Take part: https://www.surveymonkey.com/r/LT3GTJC or call Nicola 07736 462071. Questions? research@rnib.org.uk / 0303 123 9999
On Sunday, 16th November exactly one week today, #RetinaUK will be live on #BBC with our #Lifeline appeal 📺. We are so excited to have this opoprtunity to showcase the work we do and spread awareness of our cause. If you have 10 minutes to spare, please tune in to make the appeal a great success 🧑💻.
November 9, 2025 at 2:02 PM
On Sunday, 16th November exactly one week today, #RetinaUK will be live on #BBC with our #Lifeline appeal 📺. We are so excited to have this opoprtunity to showcase the work we do and spread awareness of our cause. If you have 10 minutes to spare, please tune in to make the appeal a great success 🧑💻.
🎃 This Halloween… it’s time to face your fears! 🪂
Think you’re brave enough to jump from 13,000 feet? Our Spring Skydive takes place in March, but now’s the perfect time to book your place and start fundraising for Retina UK.
Sign up now: https://retinauk.org.uk/event/spring-skydive-2026/
Think you’re brave enough to jump from 13,000 feet? Our Spring Skydive takes place in March, but now’s the perfect time to book your place and start fundraising for Retina UK.
Sign up now: https://retinauk.org.uk/event/spring-skydive-2026/
October 31, 2025 at 11:01 AM
🎃 This Halloween… it’s time to face your fears! 🪂
Think you’re brave enough to jump from 13,000 feet? Our Spring Skydive takes place in March, but now’s the perfect time to book your place and start fundraising for Retina UK.
Sign up now: https://retinauk.org.uk/event/spring-skydive-2026/
Think you’re brave enough to jump from 13,000 feet? Our Spring Skydive takes place in March, but now’s the perfect time to book your place and start fundraising for Retina UK.
Sign up now: https://retinauk.org.uk/event/spring-skydive-2026/
🌟 Volunteer Spotlight 2025 🌟
This month, we shine a spotlight on Simon Lakin, who is part of our email helpline team. Simon’s support helps our community feel heard and supported every day.
We're so grateful for volunteers like Simon! 🙌💙
This month, we shine a spotlight on Simon Lakin, who is part of our email helpline team. Simon’s support helps our community feel heard and supported every day.
We're so grateful for volunteers like Simon! 🙌💙
October 29, 2025 at 11:30 AM
🌟 Volunteer Spotlight 2025 🌟
This month, we shine a spotlight on Simon Lakin, who is part of our email helpline team. Simon’s support helps our community feel heard and supported every day.
We're so grateful for volunteers like Simon! 🙌💙
This month, we shine a spotlight on Simon Lakin, who is part of our email helpline team. Simon’s support helps our community feel heard and supported every day.
We're so grateful for volunteers like Simon! 🙌💙
Join us on 19 Nov at 7pm for Steps Through the Sand: Stories from the Retina UK Sahara Trek. Hear from trekkers who braved the desert to raise funds for sight loss support.
Register now: https://retinauk.org.uk/event/webinar-steps-through-the-sand-stories-from-the-retina-uk-sahara-trek/
Register now: https://retinauk.org.uk/event/webinar-steps-through-the-sand-stories-from-the-retina-uk-sahara-trek/
October 28, 2025 at 3:02 PM
Join us on 19 Nov at 7pm for Steps Through the Sand: Stories from the Retina UK Sahara Trek. Hear from trekkers who braved the desert to raise funds for sight loss support.
Register now: https://retinauk.org.uk/event/webinar-steps-through-the-sand-stories-from-the-retina-uk-sahara-trek/
Register now: https://retinauk.org.uk/event/webinar-steps-through-the-sand-stories-from-the-retina-uk-sahara-trek/
wo weeks ago, we held a bake sale at Whiteleaf Business Centre for Retina UK Day 🍰 Thanks to everyone’s generosity, we raised £125 to support people with inherited sight loss. A big thank you to all the companies who stopped by, bought a treat, or donated a cake, your kindness means so much. 💙
October 23, 2025 at 10:02 AM
wo weeks ago, we held a bake sale at Whiteleaf Business Centre for Retina UK Day 🍰 Thanks to everyone’s generosity, we raised £125 to support people with inherited sight loss. A big thank you to all the companies who stopped by, bought a treat, or donated a cake, your kindness means so much. 💙
For only £1 per entry, you’ll be in with a chance to win prizes up to £25,000 every week, all while helping Retina UK support people living with inherited sight loss.
Every ticket helps fund life-changing support and vital research.
Join today 👉 https://retinauk.affinitylottery.org.uk/lottery.
Every ticket helps fund life-changing support and vital research.
Join today 👉 https://retinauk.affinitylottery.org.uk/lottery.
October 17, 2025 at 2:04 PM
For only £1 per entry, you’ll be in with a chance to win prizes up to £25,000 every week, all while helping Retina UK support people living with inherited sight loss.
Every ticket helps fund life-changing support and vital research.
Join today 👉 https://retinauk.affinitylottery.org.uk/lottery.
Every ticket helps fund life-changing support and vital research.
Join today 👉 https://retinauk.affinitylottery.org.uk/lottery.
In exactly 1 month, Retina UK will be the focus of a BBC Lifeline Appeal on BBC One. 📺
Save the date of Sunday 16 November 2025 and spread the word with your family and friends about our exciting appeal. 👪
Sign up for a reminder: https://retinauk.org.uk/get-involved/donate/bbc-lifeline-appeal. ⭐
Save the date of Sunday 16 November 2025 and spread the word with your family and friends about our exciting appeal. 👪
Sign up for a reminder: https://retinauk.org.uk/get-involved/donate/bbc-lifeline-appeal. ⭐
October 16, 2025 at 3:03 PM
In exactly 1 month, Retina UK will be the focus of a BBC Lifeline Appeal on BBC One. 📺
Save the date of Sunday 16 November 2025 and spread the word with your family and friends about our exciting appeal. 👪
Sign up for a reminder: https://retinauk.org.uk/get-involved/donate/bbc-lifeline-appeal. ⭐
Save the date of Sunday 16 November 2025 and spread the word with your family and friends about our exciting appeal. 👪
Sign up for a reminder: https://retinauk.org.uk/get-involved/donate/bbc-lifeline-appeal. ⭐
Happy #RetinaUKDay & #WorldSightDay! 💙
As we celebrate 50 years, our community across the UK is raising awareness & funds for inherited sight loss. Text RETINAUKDAY to 70450 to donate £5 ⭐
#Accessible A photo of our 50th anniversary cake, with the caption: “Today is Retina UK Day 2025!”.
As we celebrate 50 years, our community across the UK is raising awareness & funds for inherited sight loss. Text RETINAUKDAY to 70450 to donate £5 ⭐
#Accessible A photo of our 50th anniversary cake, with the caption: “Today is Retina UK Day 2025!”.
October 9, 2025 at 9:02 AM
Happy #RetinaUKDay & #WorldSightDay! 💙
As we celebrate 50 years, our community across the UK is raising awareness & funds for inherited sight loss. Text RETINAUKDAY to 70450 to donate £5 ⭐
#Accessible A photo of our 50th anniversary cake, with the caption: “Today is Retina UK Day 2025!”.
As we celebrate 50 years, our community across the UK is raising awareness & funds for inherited sight loss. Text RETINAUKDAY to 70450 to donate £5 ⭐
#Accessible A photo of our 50th anniversary cake, with the caption: “Today is Retina UK Day 2025!”.
🚨 Don’t miss out! Our next free webinar is happening next Thursday and we’re teaming up with British Blind Sport!
👉 Head to the link to register: https://retinauk.org.uk/event/webinar-getting-active-sport-and-sight-loss-with-british-blind-sport/
👉 Head to the link to register: https://retinauk.org.uk/event/webinar-getting-active-sport-and-sight-loss-with-british-blind-sport/
October 8, 2025 at 2:30 PM
🚨 Don’t miss out! Our next free webinar is happening next Thursday and we’re teaming up with British Blind Sport!
👉 Head to the link to register: https://retinauk.org.uk/event/webinar-getting-active-sport-and-sight-loss-with-british-blind-sport/
👉 Head to the link to register: https://retinauk.org.uk/event/webinar-getting-active-sport-and-sight-loss-with-british-blind-sport/
We wish to thank Stavros Niarchos Foundation for their recent grant to Retina UK, supporting Professor Rachael Pearson’s research project on retinal organoids.
Please see our recent edition of Look Forward to find out more: https://retinauk.org.uk/wp-content/uploads/2025/09/LF-ISSUE-187-LR.pdf.
Please see our recent edition of Look Forward to find out more: https://retinauk.org.uk/wp-content/uploads/2025/09/LF-ISSUE-187-LR.pdf.
October 6, 2025 at 11:02 AM
We wish to thank Stavros Niarchos Foundation for their recent grant to Retina UK, supporting Professor Rachael Pearson’s research project on retinal organoids.
Please see our recent edition of Look Forward to find out more: https://retinauk.org.uk/wp-content/uploads/2025/09/LF-ISSUE-187-LR.pdf.
Please see our recent edition of Look Forward to find out more: https://retinauk.org.uk/wp-content/uploads/2025/09/LF-ISSUE-187-LR.pdf.
We’re here to tell you about the #RetinaUK Membership, open to the inherited sight loss community. 🚨 Join our club for just £24 a year and have your voice heard. 💙
Find out more: https://retinauk.org.uk/membership
#Accessible Video of a staff member talking about membership.
Find out more: https://retinauk.org.uk/membership
#Accessible Video of a staff member talking about membership.
October 2, 2025 at 3:04 PM
We’re here to tell you about the #RetinaUK Membership, open to the inherited sight loss community. 🚨 Join our club for just £24 a year and have your voice heard. 💙
Find out more: https://retinauk.org.uk/membership
#Accessible Video of a staff member talking about membership.
Find out more: https://retinauk.org.uk/membership
#Accessible Video of a staff member talking about membership.
We’d love you to browse this year’s Christmas cards and spread festive joy by stocking up today! 🎄 Two designs are by Adrian Paternoster & Tina Wray, who both live with retinitis pigmentosa. Please visit our shop: https://retinauk.org.uk/shop/ 💙
September 29, 2025 at 3:03 PM
We’d love you to browse this year’s Christmas cards and spread festive joy by stocking up today! 🎄 Two designs are by Adrian Paternoster & Tina Wray, who both live with retinitis pigmentosa. Please visit our shop: https://retinauk.org.uk/shop/ 💙
Phew… what a conference! 🎉
A massive thank you to everyone who joined us – our exhibitors, speakers, and attendees made it truly unforgettable.
Now it’s time to put our feet up (literally) and reflect on two days full of learning, inspiration, and connection. See you all next year! 💙
A massive thank you to everyone who joined us – our exhibitors, speakers, and attendees made it truly unforgettable.
Now it’s time to put our feet up (literally) and reflect on two days full of learning, inspiration, and connection. See you all next year! 💙
September 26, 2025 at 9:30 AM
Phew… what a conference! 🎉
A massive thank you to everyone who joined us – our exhibitors, speakers, and attendees made it truly unforgettable.
Now it’s time to put our feet up (literally) and reflect on two days full of learning, inspiration, and connection. See you all next year! 💙
A massive thank you to everyone who joined us – our exhibitors, speakers, and attendees made it truly unforgettable.
Now it’s time to put our feet up (literally) and reflect on two days full of learning, inspiration, and connection. See you all next year! 💙
💙 Play the #RetinaUK #Lottery for just £1 a go & you could win £25,000 weekly! 💥 28 supporters have already won – you could be next: https://retinauk.org.uk/lottery
#Accessible: Photo of lottery balls with text “Win £25,000 in time for Christmas with the Retina UK Lottery!”.
#Accessible: Photo of lottery balls with text “Win £25,000 in time for Christmas with the Retina UK Lottery!”.
September 24, 2025 at 12:20 PM
💙 Play the #RetinaUK #Lottery for just £1 a go & you could win £25,000 weekly! 💥 28 supporters have already won – you could be next: https://retinauk.org.uk/lottery
#Accessible: Photo of lottery balls with text “Win £25,000 in time for Christmas with the Retina UK Lottery!”.
#Accessible: Photo of lottery balls with text “Win £25,000 in time for Christmas with the Retina UK Lottery!”.
Exciting news! Retina UK will be the focus of a BBC Lifeline Appeal on BBC One!
Save the date and tune in on Sunday 16 November 2025. 🚨
Find out more and sign up for a reminder: https://retinauk.org.uk/get-involved/donate/bbc-lifeline-appeal. ⭐
Save the date and tune in on Sunday 16 November 2025. 🚨
Find out more and sign up for a reminder: https://retinauk.org.uk/get-involved/donate/bbc-lifeline-appeal. ⭐
September 23, 2025 at 4:02 PM
Exciting news! Retina UK will be the focus of a BBC Lifeline Appeal on BBC One!
Save the date and tune in on Sunday 16 November 2025. 🚨
Find out more and sign up for a reminder: https://retinauk.org.uk/get-involved/donate/bbc-lifeline-appeal. ⭐
Save the date and tune in on Sunday 16 November 2025. 🚨
Find out more and sign up for a reminder: https://retinauk.org.uk/get-involved/donate/bbc-lifeline-appeal. ⭐
And that’s a wrap on an incredible weekend at the Retina UK Annual Conference – what a great 2 days! 🎉
Thank you to everyone who joined us. We are so grateful for your continued support and commitment to our community.
#RetinaUKConf25
#AnnualConference
#Volunteers
#ThankYou
Thank you to everyone who joined us. We are so grateful for your continued support and commitment to our community.
#RetinaUKConf25
#AnnualConference
#Volunteers
#ThankYou
September 20, 2025 at 3:40 PM
And that’s a wrap on an incredible weekend at the Retina UK Annual Conference – what a great 2 days! 🎉
Thank you to everyone who joined us. We are so grateful for your continued support and commitment to our community.
#RetinaUKConf25
#AnnualConference
#Volunteers
#ThankYou
Thank you to everyone who joined us. We are so grateful for your continued support and commitment to our community.
#RetinaUKConf25
#AnnualConference
#Volunteers
#ThankYou
Our ‘Ask the Expert’ session with Prof Julie Silvestri was a fantastic opportunity for delegates to explore the latest in care and research.
🩺 She answered questions from our community, sharing insights and practical guidance
#RetinaUKConf25
#AskTheExpert
#SightLossSupport
#Ophthalmology
🩺 She answered questions from our community, sharing insights and practical guidance
#RetinaUKConf25
#AskTheExpert
#SightLossSupport
#Ophthalmology
September 20, 2025 at 3:07 PM
Our ‘Ask the Expert’ session with Prof Julie Silvestri was a fantastic opportunity for delegates to explore the latest in care and research.
🩺 She answered questions from our community, sharing insights and practical guidance
#RetinaUKConf25
#AskTheExpert
#SightLossSupport
#Ophthalmology
🩺 She answered questions from our community, sharing insights and practical guidance
#RetinaUKConf25
#AskTheExpert
#SightLossSupport
#Ophthalmology
That was such a powerful session! Community choices sharing their lived experience across various topics.
A powerful reminder that research and innovation must remain anchored in lived experience.
#RetinaUKConf25
#LivedExperience
A powerful reminder that research and innovation must remain anchored in lived experience.
#RetinaUKConf25
#LivedExperience
September 20, 2025 at 2:24 PM
That was such a powerful session! Community choices sharing their lived experience across various topics.
A powerful reminder that research and innovation must remain anchored in lived experience.
#RetinaUKConf25
#LivedExperience
A powerful reminder that research and innovation must remain anchored in lived experience.
#RetinaUKConf25
#LivedExperience
Thank you to the Income Generation team for that session! The session emphasized that real change arises when researchers, clinicians, funders, and community members come together with shared purpose.
#RetinaUKConf25
#CreatingChange
#RetinaUKConf25
#CreatingChange
September 20, 2025 at 1:17 PM
Thank you to the Income Generation team for that session! The session emphasized that real change arises when researchers, clinicians, funders, and community members come together with shared purpose.
#RetinaUKConf25
#CreatingChange
#RetinaUKConf25
#CreatingChange
Christopher Patnoe (Google) led a reflective session on the power of inclusive design and iterative innovation.
Delegates left with a renewed appreciation for how technology can reshape daily life and expand possibilities.
#RetinaUKConf25
#AccessibleTech
#InclusiveDesign
Delegates left with a renewed appreciation for how technology can reshape daily life and expand possibilities.
#RetinaUKConf25
#AccessibleTech
#InclusiveDesign
September 20, 2025 at 12:49 PM
Christopher Patnoe (Google) led a reflective session on the power of inclusive design and iterative innovation.
Delegates left with a renewed appreciation for how technology can reshape daily life and expand possibilities.
#RetinaUKConf25
#AccessibleTech
#InclusiveDesign
Delegates left with a renewed appreciation for how technology can reshape daily life and expand possibilities.
#RetinaUKConf25
#AccessibleTech
#InclusiveDesign
Speakers from AAVantgarde, Octant, Alkeus, Sepul Bio, and Beacon Therapeutics shared how discoveries at the bench are moving closer to real-world impact.
#RetinaUKConf25 #BiotechForSight
#RetinaUKConf25 #BiotechForSight
September 20, 2025 at 11:33 AM
Speakers from AAVantgarde, Octant, Alkeus, Sepul Bio, and Beacon Therapeutics shared how discoveries at the bench are moving closer to real-world impact.
#RetinaUKConf25 #BiotechForSight
#RetinaUKConf25 #BiotechForSight