Rare Disease Mom
@rarediseasemom.bsky.social
Lindsay. Democratic nominee for VA House of Delegates district 69 (I had to resign from running sadly due to unexpected health emergency) Super focused on my local community ( Hampton Roads ) and rare disease advocacy.
Attention: Missing (in the middle of a Constitutional Crisis) Congressman!
February 25, 2025 at 7:13 PM
Attention: Missing (in the middle of a Constitutional Crisis) Congressman!
Reposted by Rare Disease Mom
Possibly the best clap back against ignorant antivaxxers.
January 5, 2025 at 4:04 PM
Possibly the best clap back against ignorant antivaxxers.
Reposted by Rare Disease Mom
If you think the reason the Republicans won is because of Fox and other MSM you’re truly missing the entire information ecosystem that exists. Most people aren’t even watching MSM anymore. It’s a massive diverse information world. Remember mocking Trump for going on WWE and comedy podcasts?
Yeah.
Yeah.
November 21, 2024 at 2:16 PM
If you think the reason the Republicans won is because of Fox and other MSM you’re truly missing the entire information ecosystem that exists. Most people aren’t even watching MSM anymore. It’s a massive diverse information world. Remember mocking Trump for going on WWE and comedy podcasts?
Yeah.
Yeah.
Every book I want to read is already checked out, and honestly it’s a good problem to have but frustrating regardless.
November 20, 2024 at 6:39 PM
Every book I want to read is already checked out, and honestly it’s a good problem to have but frustrating regardless.
I’ve seen book lists floating around, and just finished up my to be read. Can someone tag me in or point me in the direction of disability activism books? Trying to see what gems are out there I’ve overlooked.
November 19, 2024 at 5:26 PM
I’ve seen book lists floating around, and just finished up my to be read. Can someone tag me in or point me in the direction of disability activism books? Trying to see what gems are out there I’ve overlooked.
Reposted by Rare Disease Mom
In the Chesapeake Bay: “The current trajectory of our striped bass population is alarming.” www.pilotonline.com/2024/11/17/f...
For 2nd year, Chesapeake Bay’s striped bass population is down. Regulators will decide if more rules are needed.
According to a 2024 survey from the Virginia Institute of Marine Science, this year’s average was “significantly lower” than the historical average.
www.pilotonline.com
November 19, 2024 at 2:21 AM
In the Chesapeake Bay: “The current trajectory of our striped bass population is alarming.” www.pilotonline.com/2024/11/17/f...
Reposted by Rare Disease Mom
This is the shot of the night.
Chuck Schumer is filing cloture on several judicial nominations. The Republicans are forcing them to go into executive session separately for each nomination. Schumer and the Democrats are just pushing ahead. Here was Schumer before the 10th vote, by my count, began.
Chuck Schumer is filing cloture on several judicial nominations. The Republicans are forcing them to go into executive session separately for each nomination. Schumer and the Democrats are just pushing ahead. Here was Schumer before the 10th vote, by my count, began.
November 19, 2024 at 2:48 AM
This is the shot of the night.
Chuck Schumer is filing cloture on several judicial nominations. The Republicans are forcing them to go into executive session separately for each nomination. Schumer and the Democrats are just pushing ahead. Here was Schumer before the 10th vote, by my count, began.
Chuck Schumer is filing cloture on several judicial nominations. The Republicans are forcing them to go into executive session separately for each nomination. Schumer and the Democrats are just pushing ahead. Here was Schumer before the 10th vote, by my count, began.
Reposted by Rare Disease Mom
Bluesky tip for newbies: Bluesky has no real algorithm. Likes here do nothing but show the poster that you enjoyed their content.
That kindness is always going to be appreciated by creators, but if you want to help to boost something here, you have to repost it so others see it. 🙂
That kindness is always going to be appreciated by creators, but if you want to help to boost something here, you have to repost it so others see it. 🙂
November 18, 2024 at 10:27 AM
Bluesky tip for newbies: Bluesky has no real algorithm. Likes here do nothing but show the poster that you enjoyed their content.
That kindness is always going to be appreciated by creators, but if you want to help to boost something here, you have to repost it so others see it. 🙂
That kindness is always going to be appreciated by creators, but if you want to help to boost something here, you have to repost it so others see it. 🙂
My husband is a teacher. He promised his students he’d shave his beard in whatever weird way they request if they get good test scores. They did, and he’ll be walking into work with cat whiskers.
November 18, 2024 at 2:36 PM
My husband is a teacher. He promised his students he’d shave his beard in whatever weird way they request if they get good test scores. They did, and he’ll be walking into work with cat whiskers.
Finding out other adults are also finding out they’re autistic late in life has been so incredibly comforting.
November 18, 2024 at 3:46 AM
Finding out other adults are also finding out they’re autistic late in life has been so incredibly comforting.
Such great advice/how to instructions!
November 18, 2024 at 2:00 AM
Such great advice/how to instructions!
Reposted by Rare Disease Mom
Got the #DisabledInSTEM Starter Pack up and running!
Can't wait to see the list grow and meet new connections! 💜
go.bsky.app/SwJ4rFX
Can't wait to see the list grow and meet new connections! 💜
go.bsky.app/SwJ4rFX
November 17, 2024 at 6:19 PM
Got the #DisabledInSTEM Starter Pack up and running!
Can't wait to see the list grow and meet new connections! 💜
go.bsky.app/SwJ4rFX
Can't wait to see the list grow and meet new connections! 💜
go.bsky.app/SwJ4rFX
Reposted by Rare Disease Mom
If you know people still on twitter who WANT to leave but are struggling to make the leap - my latest article is designed to ease the transition.
It’s got tips and tricks as well as suggestions for how to ensure communities stick together.
Small 🧵 of other helpful articles I’ve found /1
It’s got tips and tricks as well as suggestions for how to ensure communities stick together.
Small 🧵 of other helpful articles I’ve found /1
The Xitter Exodus and What it Means for the Disability Community
Disabled and chronically ill people have long used Twitter/X for community, fundraising, companionship and support. With folks leaving in droves - where will we go and how can we stick together?
www.disabledginger.com
November 17, 2024 at 3:38 AM
If you know people still on twitter who WANT to leave but are struggling to make the leap - my latest article is designed to ease the transition.
It’s got tips and tricks as well as suggestions for how to ensure communities stick together.
Small 🧵 of other helpful articles I’ve found /1
It’s got tips and tricks as well as suggestions for how to ensure communities stick together.
Small 🧵 of other helpful articles I’ve found /1
I didn’t purchase this, and am filled with regret.
November 17, 2024 at 8:08 PM
I didn’t purchase this, and am filled with regret.
Homemade apple fritters, my apple cider donuts were a fail but these are so good!
November 17, 2024 at 5:08 PM
Homemade apple fritters, my apple cider donuts were a fail but these are so good!
I recently found out about Community Shared Agriculture! It appears to have some financial obstacles that may be a barrier to entry, but if you already get fresh veggies & fruit it could be a cost effective way to develop stronger communities vs mega store profits.
www.ams.usda.gov/local-food-d...
www.ams.usda.gov/local-food-d...
Local Food Directories: Community Supported Agriculture (CSA) Directory | Agricultural Marketing ServiceLock
www.ams.usda.gov
November 17, 2024 at 4:29 PM
I recently found out about Community Shared Agriculture! It appears to have some financial obstacles that may be a barrier to entry, but if you already get fresh veggies & fruit it could be a cost effective way to develop stronger communities vs mega store profits.
www.ams.usda.gov/local-food-d...
www.ams.usda.gov/local-food-d...
I left Twitter when Elon bought it, and sort of hibernated from social media. Blue sky is nice, early Twitter vibes without the popularity contest and bots.
November 16, 2024 at 1:49 PM
I left Twitter when Elon bought it, and sort of hibernated from social media. Blue sky is nice, early Twitter vibes without the popularity contest and bots.
Happy Saturday.
November 16, 2024 at 12:28 PM
Happy Saturday.
I still don’t think I can talk politics in a productive manner, so I’m going to take a little more time. Meanwhile here are my coworkers.
November 15, 2024 at 6:08 PM
I still don’t think I can talk politics in a productive manner, so I’m going to take a little more time. Meanwhile here are my coworkers.
If I could just take a vacation and live in my animal crossing world for a week or so, I think I’ll be able to emotionally withstand the next few years.
November 13, 2024 at 10:13 PM
If I could just take a vacation and live in my animal crossing world for a week or so, I think I’ll be able to emotionally withstand the next few years.