pumpkin
pumpkinstars.bsky.social
pumpkin
@pumpkinstars.bsky.social
hi im pumpkin. she/her. 🧠🌶️. Asexual. Anti-racist. I like gardens and colors. ME/CFS, hEDS, MCAS, POTS, Fibro. bed tethered. i love people and also people scare me. 🇺🇸
Pinned
hi i’m pumpkin

i’m disabled and home bound, mostly bed bound. i write about my life and my experiences with #MECFS #MCAS #EDS #Fibro #POTS

oh! i also sometimes post nail art ☺️ my hobby

i used to do volunteer work in my community but i got too sick

now, i manage my illnesses and work from home
i feel bad today and just now remember it was supposed to rain today
so that’s why

i’m sad i didn’t get to finish my pizza i made in the oven yesterday
but glad i got to eat some of it hehe

needing lots of rest today.

also, annoyed at my BC because why am i spotting again jeez
November 29, 2025 at 1:01 AM
i remember once
at this big company party

the fire pit thing caught on fire. the outside of it. one of those mid century looking metal ones they painted.

so i kicked off my heels, grabbed the fire extinguisher, and went towards it.

but then…
November 29, 2025 at 12:40 AM
i think i overdid it yesterday making oven food 😅

needing much more rest today than before
November 28, 2025 at 9:42 PM
Reposted by pumpkin
Yes, I have a job and don't have $80 for a decent bed.

My paycheck goes straight to rent, food, utilities and paying off credit card debt that I ran up when I became homeless a few years ago.
Can any one spot me $80 to buy a bedframe please?

It's almost half off & I've been sleeping on a shitty mattress for a year.

I know there are so many others who have bigger needs, but if there's someone who has an abundance of resources, I could really do with a new bed 💜

ko-fi.com/beaeli
Buy Bea Eli a Coffee
Become a supporter of Bea Eli today!
ko-fi.com
November 28, 2025 at 9:07 PM
woke up and really had to pee because my IV flow yesterday was so off

and also i feel icky because i put the new bag on slow but apparently it didn’t drip at all so now i feel icky

it’s like every single tubing is different and i need to figure them out. same brand though.

#NEISvoid
November 28, 2025 at 4:00 PM
eee i made a food in the oven!! a pizza!!

a daiya vegan gluten free veggie pizza!!

and i accidentally did not turn the oven on, but then i did and i was able to make the whole thing!! and now i’m back in my room and i have a pizza!!!

omg yay what a treat

the veggies i want soooo bad
November 28, 2025 at 12:18 AM
i miss broccoli again

in summer i was able to make some
just microwave stuff

but lately it’s been difficult to microwave and eat
so i eat more calories and broccoli is way so much work to eat it just to be hungry again

which like
sucks hha broccolis are so good
November 27, 2025 at 11:18 PM
i get annoyed at the knowledge of how much my mom and family accommodated for everyone else’s health needs and even dietary preferences
but not mine
even though i helped cook the meals

no cranberry, dads allergic
no dairy, brother is intolerant
3 different kinds of potatoes
portions without salt
November 27, 2025 at 8:50 PM
hehe another funny thing from work a while back

i mentioned i use straws
and we talked about straws a bit

and my boss was all “yeah i use the plastic reusable straws… like in a starbucks cup… wait… how does that help the turtles??”

and i listened to her live-process that whole thing hehe
November 27, 2025 at 8:01 PM
hehe i woke up all excited to not have to deal with some major symptoms of bad hydration (low blood volume and brain fog)

but then my other symptoms came into focus after my excitement faded

yup i’m still sick! haha

but laughing about it
and still feeling pretty ok
November 27, 2025 at 5:44 PM
Reposted by pumpkin
please?

i'm in pain so i really just want to go home and rest and get something in my stomach this evening.

$0/120 (this will be enough for a ride, food and the pain medication)
hey friends,

i'll be discharged in an hour or so.

i'm sorry for asking, but i need $48 to get a ride home please?

also, i don't have any food (hoping i can get something from the food bank tomorrow, but i'll need a meal for tonight)

please help if you can 🙏🏽

paypal.me/thelongestroad
Pay RMM Creative using PayPal.Me
Go to paypal.me/thelongestroad and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.
paypal.me
November 27, 2025 at 2:10 PM
Reposted by pumpkin
hey friends,

i'll be discharged in an hour or so.

i'm sorry for asking, but i need $48 to get a ride home please?

also, i don't have any food (hoping i can get something from the food bank tomorrow, but i'll need a meal for tonight)

please help if you can 🙏🏽

paypal.me/thelongestroad
Pay RMM Creative using PayPal.Me
Go to paypal.me/thelongestroad and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.
paypal.me
November 27, 2025 at 1:51 PM
Reposted by pumpkin
FOLKS??

Rebeka needs a ride home. And a meal. On Thanksgiving!

ASAP
hey friends,

i'll be discharged in an hour or so.

i'm sorry for asking, but i need $48 to get a ride home please?

also, i don't have any food (hoping i can get something from the food bank tomorrow, but i'll need a meal for tonight)

please help if you can 🙏🏽

paypal.me/thelongestroad
Pay RMM Creative using PayPal.Me
Go to paypal.me/thelongestroad and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.
paypal.me
November 27, 2025 at 4:55 PM
Reposted by pumpkin
Its Turkey Day here in the US. Still at 0/800. I need AT LEAST 150 before Wednesday for weekly groceries and laundromat trips.

Anything helps.

dravenheart.carrd.co
#mutualaid #helpsky #helpfolkslive2025 💞💸
November 27, 2025 at 4:58 PM
Reposted by pumpkin
The struggle over history, from Wounded Knee to Thanksgiving to ICE detentions, is not a debate about the past. It is a struggle over who defines America and whose humanity matters.

A nation that cannot face its own history cannot repair its present.

truthout.org/articles/the...
The Right Wants to Write Indigenous People Out of US History. We Won’t Let Them.
The Trump administration is reviving the visual language of manifest destiny and weaponizing the US’s founding myths.
truthout.org
November 27, 2025 at 5:01 PM
ok so
i’ve been more dehydrated than i thought

i woke up feeling actually ok for a rare time

and the bag is nearly empty because i ended up just clamping the line and not my central line

i really do need 3L a day 😭 i feel so much better with proper fluids
ok yeah i am going to do that

hook up a new bag, clamp the line, sleep, hopefully not be in too bad a shape since i just had lots of fluids, and then unclamp the line when i wake up

that is what i will do

i think

i have several thingngs i wanna do this weekend! so hydrate up!
November 27, 2025 at 4:57 PM
i forgot to swap my pain meds patch again

i don’t think it does much at this point

but i keep forgetting to try to notice if there’s any help at all with it
and then putting a new one on in case it does help
only to suffer taking it off bc of EDS and MCAS adhesive reactions

#NEISvoid
#ChronicPain
November 27, 2025 at 5:22 AM
slow on replies today, sorry!

i had to work a little bit today and then, used my reading comprehension spoons up on that before i could do replies

but tomorrow i will be refreshed and have time to chat with y’all my friends! and that sounds really nice yes yes

to everyone traveling, be safe 💛💫
November 27, 2025 at 5:08 AM
Reposted by pumpkin
I've reached $90 so far- a pretty good start, thank you!

Can anyone else chip in tonight and help me keep the ball rolling to avoid a last minute panic? I MUST not be late this week- managers have warned they WILL NOT give extra time.

Please keep sharing?
Starting this week's rent quest at $15 of $700, also need $300 storage bill by Dec 1st.

If you donate before 5PM Eastern on Wednesday, I can choose the transfer option that doesn't charge a fee. #PleaseShare, and chip in if you can?

#MutualAidRequest
#DisabilityCrowdFund
#KeepFolksAlive
Multiply disabled heart patient in need of support!

$700 rent weekly, due 11AM Sundays
$300 monthly bills (phone, storage)

Please help if you can? I cannot survive the street AT ALL- need hygiene and privacy to eat and sleep.
paypal.com/donate/?hosted_button_id=EL5EB7BDZ3GTW
cash.app/$FalcoSkyWolf
November 27, 2025 at 4:36 AM
guess who got up, stepped on her central line Iv tubing, tripped on trash, and watched my blood exit my body into the tube

haha yeah not my greatest move

i am ok just living out that comedy movie life over here
November 27, 2025 at 4:19 AM
my central line IV fluids pacing is so off with these tubings that don’t work

it’s all they will send me and i can’t call them to work it out in a way they will understand
because i tried that and they just sent me the 1st tubing they sent that didn’t work
so
yeah

now i’m thinking on what to do
November 27, 2025 at 4:00 AM
i brushed my hair
yay!

i can’t do it often
which is why i have to keep my hair short now
it’s at a point where it can tangle again and i really like this length
so i have to try to take care of it yes yes

do my best! yay
November 27, 2025 at 3:17 AM
i play word puzzles to stretch my brain

i have a #TBI and lots of brain fog, and i’m often very low blood volume and anemic

at first they are incredibly uncomfortable. almost painful.

but recently, my latest new one stopped being bad and started being kinda nice
and that’s really nice

#NEISvoid
November 27, 2025 at 12:46 AM
Reposted by pumpkin
I just gifted a friend one of @fallonturing.bsky.social’s scarves — recipient says it is both beautiful and warm!

Maybe get yourself something?
Just 1-2 sales of anything other than the bookmarks or patterns (the cheapest things) would help me SO much! What's stopping you from supporting a disabled person's sole source of income while a discount is going on?
Currently running a 10% off holiday sale on everything in my shop tab! Use this link or the code HAPPYHOLIDAYS10. Expires 12/15.

In the 🧵below, I'll show what's currently for sale! Some new stuff too. 🧶 #BSNM #ShopSmall #QueerGiftShop #GiftShop #Discount #Holidays #Christmas
November 26, 2025 at 11:39 PM
Reposted by pumpkin
PSA:

Just because tomorrow is a "holiday", doesn't mean its all sunshine and rainbows for everyone on the skyline.

We got people fighting to survive with little to no support or family.

If you can, please help someone in need of #mutualaid and please be sure to like and reposts any requests.
November 26, 2025 at 11:52 PM