PomonaKa
@pomonaka.bsky.social
Artist, traveler, living with advanced endometrial cancer, dogs & cat. Proud, Liberal Californian. She/her.
Trying to deal with the frustration & abject terror of having to wait 6 weeks for a PET scan to determine if I am indeed having a 3rd recurrence. The only advice: Keep calling imaging to see if they’ve had a cancellation. #cansky #oncosky #thesystemisbroken
October 24, 2025 at 2:40 PM
Trying to deal with the frustration & abject terror of having to wait 6 weeks for a PET scan to determine if I am indeed having a 3rd recurrence. The only advice: Keep calling imaging to see if they’ve had a cancellation. #cansky #oncosky #thesystemisbroken
Nervous waiting room feet - MRI to determine if I’m having a 3rd recurrence of #endometrialcancer #cansky #oncosky #fuckcancer
October 20, 2025 at 1:18 PM
Nervous waiting room feet - MRI to determine if I’m having a 3rd recurrence of #endometrialcancer #cansky #oncosky #fuckcancer
The strange emotions of taking off for a 2 week trip to Japan while waiting for biopsy results that will determine if I’m having a third recurrence of #endometrialcancer and coming home to an MRI. Oh, and waiting for the pharmacy to deliver my xanax refill… #cansky #oncosky #stage4needsmore
October 3, 2025 at 4:22 PM
The strange emotions of taking off for a 2 week trip to Japan while waiting for biopsy results that will determine if I’m having a third recurrence of #endometrialcancer and coming home to an MRI. Oh, and waiting for the pharmacy to deliver my xanax refill… #cansky #oncosky #stage4needsmore
My second day of a one-month break from Lenvima in advance of an overseas trip. I’m hoping I can actually taste & tolerate food while I’m traveling. I’ve been on Lenvima for 10 months & it’s been wreaking havoc on my entire GI system. 🤞🏻#cansky #oncosky
September 18, 2025 at 3:06 PM
My second day of a one-month break from Lenvima in advance of an overseas trip. I’m hoping I can actually taste & tolerate food while I’m traveling. I’ve been on Lenvima for 10 months & it’s been wreaking havoc on my entire GI system. 🤞🏻#cansky #oncosky
Good news! My oncologist confirmed that the spot on my lung that lit up on my PET scan two weeks ago was probably nothing as the subsequent diagnostic CT scan did not show any nodule in that location. So I’m cleared for my upcoming travel with a one month break from Lenvima! #cansky #oncosky #oncsky
August 21, 2025 at 4:33 PM
Good news! My oncologist confirmed that the spot on my lung that lit up on my PET scan two weeks ago was probably nothing as the subsequent diagnostic CT scan did not show any nodule in that location. So I’m cleared for my upcoming travel with a one month break from Lenvima! #cansky #oncosky #oncsky
Just got home from the CT scan ordered to try to identify the spot in my right lung that showed up on my latest PET. Not much scanxiety this time, no idea why. I was a basket case waiting for the PET, but not this time. It will be what it will be.
August 12, 2025 at 8:38 PM
Just got home from the CT scan ordered to try to identify the spot in my right lung that showed up on my latest PET. Not much scanxiety this time, no idea why. I was a basket case waiting for the PET, but not this time. It will be what it will be.
After an anxious 2 days, I got my latest PET scan results yesterday. No evidence of new or residual disease! That makes 8 months since my brachytherapy & the addition of Lenvima along with the Keytruda. One unidentifiable new spot in my right lung. But I won’t worry about it until we have more info.
August 1, 2025 at 2:58 PM
After an anxious 2 days, I got my latest PET scan results yesterday. No evidence of new or residual disease! That makes 8 months since my brachytherapy & the addition of Lenvima along with the Keytruda. One unidentifiable new spot in my right lung. But I won’t worry about it until we have more info.
I had my first appointment with a Supportive Care Medicine doc yesterday. What a relief to have a doc spend an entire hour with me discussing my concerning, but not debilitating, side effects. Those would be the same SEs brushed off by my med onc because they don’t show up on lab tests. #cansky
July 8, 2025 at 11:08 PM
I had my first appointment with a Supportive Care Medicine doc yesterday. What a relief to have a doc spend an entire hour with me discussing my concerning, but not debilitating, side effects. Those would be the same SEs brushed off by my med onc because they don’t show up on lab tests. #cansky
Last year I got a PET scan for my birthday. This year I got a blood draw, a visit with my oncologist & an infusion. I would prefer cash. #cansky #oncosky #cityofhope
May 6, 2025 at 10:12 PM
Last year I got a PET scan for my birthday. This year I got a blood draw, a visit with my oncologist & an infusion. I would prefer cash. #cansky #oncosky #cityofhope
Cancer treatment is so weird. Due to side effects from Lenvima, I’ve lost almost 30 lbs since Nov. Nutritionist: “You need dense calories. Eat fat. Bacon, butter, cheese, olive oil. Drizzle a tablespoon of olive oil over your bowl of soup - that’s 100 more calories right there.” #cansky #oncosky
April 13, 2025 at 6:05 PM
My view from the infusion room today at the new Hope Plaza outpatient center at City of Hope Duarte campus. Not too shabby!
March 5, 2025 at 3:59 AM
My view from the infusion room today at the new Hope Plaza outpatient center at City of Hope Duarte campus. Not too shabby!
Well, my suspicion was correct: I am to stay on the Keytruda & Lenvima until either I have a recurrence or can no longer tolerate the side effects. Bleh. How is chocolate not tasting right a tolerable side effect? I’m not good with open- ended timelines. #cansky #oncosky
February 15, 2025 at 2:57 AM
Got my scan results just now - no evidence of residual disease! (And nothing new either!) Next is to find out how long I have to stay on this damned lenvatinib. So, back with NED, but now I know it’s a fickle relationship & won’t last. But I will enjoy it while it does!
January 18, 2025 at 1:39 AM
Got my scan results just now - no evidence of residual disease! (And nothing new either!) Next is to find out how long I have to stay on this damned lenvatinib. So, back with NED, but now I know it’s a fickle relationship & won’t last. But I will enjoy it while it does!
Of course, my semi-functional port (flushable but no blood return) worked perfectly at the fluoro check. 🤷 But that means it can be used tomorrow for my VIP (Very Important PET) tomorrow which will determine if the brachy/pembro/lenvatinib worked. Cue scanxiety in 3, 2, 1…
January 15, 2025 at 6:11 PM
Of course, my semi-functional port (flushable but no blood return) worked perfectly at the fluoro check. 🤷 But that means it can be used tomorrow for my VIP (Very Important PET) tomorrow which will determine if the brachy/pembro/lenvatinib worked. Cue scanxiety in 3, 2, 1…
Second in my new series of encaustic collages incorporating oncology journal articles. “Pearls of Wisdom,” 24x4, cyanotype, journal pages, encaustic & pastel on cradled panel. #cancerart #oncosky #cansky
January 3, 2025 at 9:32 PM
Second in my new series of encaustic collages incorporating oncology journal articles. “Pearls of Wisdom,” 24x4, cyanotype, journal pages, encaustic & pastel on cradled panel. #cancerart #oncosky #cansky
Greetings from an infusion room at City of Hope. Wishing all cancer peeps peace this holiday season. #cansky #oncosky #alliwantforxmasismyporttowork
December 24, 2024 at 11:02 PM
Greetings from an infusion room at City of Hope. Wishing all cancer peeps peace this holiday season. #cansky #oncosky #alliwantforxmasismyporttowork
Well, the 20 mg daily dose of Lenvima didn’t last long (17 days) Apparently my liver is not happy with the stuff (neither is my sore mouth). Dose reduced to 10 mg/day. Doc said to call if my eyes turn yellow. I guess I know what color I’ll be using in my next art piece. #cansky #oncosky #cancerbs
December 4, 2024 at 6:43 PM