Ali Turnbull
@parkytracks.bsky.social
Writer, #Parkinsons 6 years, tackling with fresh air, #exercise, music, humour and fabulous support from family and friends www.parkytracks.com #BuryStEdmunds #NeuroHeroes #ParkinsonsExcellenceNetwork
Pinned
Ali Turnbull
@parkytracks.bsky.social
· Mar 14
Zoom - ParkyTracks
It’s five years this month since lockdown forced us all indoors, our faces squashed into a gallery of flat squares. What’s happened since then? For me, lots of good things.
www.parkytracks.com
It’s five years this month since lockdown forced us all indoors, our faces squashed into a gallery of flat squares. What’s happened since then? For me, lots of good things.
www.parkytracks.com/zoom/
www.parkytracks.com/zoom/
@peterprinsleymp.bsky.social Thank you for your dogged persistence with rural bus services. Mulleys M40 Thurston-Bury has been a lifeline since it launched in July. The service runs to time and many people now rely on it. But not all at the same time! Might a smaller bus be better?
November 21, 2025 at 2:59 PM
@peterprinsleymp.bsky.social Thank you for your dogged persistence with rural bus services. Mulleys M40 Thurston-Bury has been a lifeline since it launched in July. The service runs to time and many people now rely on it. But not all at the same time! Might a smaller bus be better?
@mrandrewcotter.bsky.social best player ever on @richardosman1.bsky.social House of Games
November 20, 2025 at 7:25 PM
@mrandrewcotter.bsky.social best player ever on @richardosman1.bsky.social House of Games
I took a tumble on holiday. My first big #parkinson’s fall in six years.
It wasn’t pretty, and it wasn’t quite what I was expecting, but I’m still in one piece and raring to go. Here’s how I might improve things next time.
www.parkytracks.com/i-get-knocke...
It wasn’t pretty, and it wasn’t quite what I was expecting, but I’m still in one piece and raring to go. Here’s how I might improve things next time.
www.parkytracks.com/i-get-knocke...
I get knocked down... - ParkyTracks
I took a tumble on holiday. It wasn’t pretty, and it wasn’t quite what I was expecting, but I’m still in one piece and raring to go. Here’s how I might improve things next time.
www.parkytracks.com
September 29, 2025 at 7:07 AM
I took a tumble on holiday. My first big #parkinson’s fall in six years.
It wasn’t pretty, and it wasn’t quite what I was expecting, but I’m still in one piece and raring to go. Here’s how I might improve things next time.
www.parkytracks.com/i-get-knocke...
It wasn’t pretty, and it wasn’t quite what I was expecting, but I’m still in one piece and raring to go. Here’s how I might improve things next time.
www.parkytracks.com/i-get-knocke...
Reposted by Ali Turnbull
Unsolicited writing advice, no. 42:
The thesaurus is not your friend. You don’t need new words to make your writing more interesting; you need more interesting things to say using the words you already have.
The thesaurus is not your friend. You don’t need new words to make your writing more interesting; you need more interesting things to say using the words you already have.
September 26, 2025 at 2:51 PM
Unsolicited writing advice, no. 42:
The thesaurus is not your friend. You don’t need new words to make your writing more interesting; you need more interesting things to say using the words you already have.
The thesaurus is not your friend. You don’t need new words to make your writing more interesting; you need more interesting things to say using the words you already have.
@the-ciep.bsky.social Happy conference everyone! I have so many happy memories of past conferences, where I’ve learned so much and met so many amazing people, many of whom still follow my Parky progress - thanks for your support!
September 20, 2025 at 4:32 PM
@the-ciep.bsky.social Happy conference everyone! I have so many happy memories of past conferences, where I’ve learned so much and met so many amazing people, many of whom still follow my Parky progress - thanks for your support!
@peterprinsleymp.bsky.social You did very well to get ‘precious Suffolk chalk streams’ out without tripping over your tongue! I would have failed miserably…,,
July 22, 2025 at 10:42 PM
@peterprinsleymp.bsky.social You did very well to get ‘precious Suffolk chalk streams’ out without tripping over your tongue! I would have failed miserably…,,
A breakthrough in early detection of #parkinsons could diagnose the condition years before we notice any visible symptoms. But would you want/have wanted to know sooner? I’m not sure. www.parkytracks.com/something-in...
Something in the air - ParkyTracks
A breakthrough in early detection of Parkinson’s could diagnose the condition years before we notice any visible symptoms. But would you want/have wanted to know sooner? I’m not sure.
www.parkytracks.com
July 18, 2025 at 7:04 AM
A breakthrough in early detection of #parkinsons could diagnose the condition years before we notice any visible symptoms. But would you want/have wanted to know sooner? I’m not sure. www.parkytracks.com/something-in...
“How long have you had Parkinson’s?” It’s a question I’m often asked, and there is always more than one answer. www.parkytracks.com/how-long/ #parkinsons
How long? - ParkyTracks
“How long have you had Parkinson’s?” It’s a question I’m often asked, and there is always more than one answer.
www.parkytracks.com
July 14, 2025 at 7:27 AM
“How long have you had Parkinson’s?” It’s a question I’m often asked, and there is always more than one answer. www.parkytracks.com/how-long/ #parkinsons
@peterprinsleymp.bsky.social “If we all knew a little bit more about our health, we might all look after it a little bit better.” Well said - we need to put ourselves at the centre of our healthcare teams.
July 4, 2025 at 8:36 AM
@peterprinsleymp.bsky.social “If we all knew a little bit more about our health, we might all look after it a little bit better.” Well said - we need to put ourselves at the centre of our healthcare teams.
Balance is a complicated topic to explain well, but @Neuro Heroes' Laura Douglas does it with ease, authority and fun. Another brilliant pod from the @2parkiesinapod.bsky.social Dave and Kuhan. Ooh, and there’s a little surprise at 44:45! #parkinsons #balance podcasts.apple.com/gb/podcast/g...
Getting the Balance Right
Podcast Episode · 2 Parkies in a Pod: a Parkinson's Podcast · 08/06/2025 · 1h 10m
podcasts.apple.com
June 9, 2025 at 7:18 AM
Balance is a complicated topic to explain well, but @Neuro Heroes' Laura Douglas does it with ease, authority and fun. Another brilliant pod from the @2parkiesinapod.bsky.social Dave and Kuhan. Ooh, and there’s a little surprise at 44:45! #parkinsons #balance podcasts.apple.com/gb/podcast/g...
Day to day, in my home exercise routine, I don’t always notice the small improvements I’m making. But the benefits really showed up on our recent holiday. www.parkytracks.com/little-thing... #parkinsons #balance
Little things mean a lot - ParkyTracks
Day to day, in my home exercise routine, I don't always notice the small improvements I’m making. But the benefits really show up on holiday.
www.parkytracks.com
June 2, 2025 at 7:51 AM
Day to day, in my home exercise routine, I don’t always notice the small improvements I’m making. But the benefits really showed up on our recent holiday. www.parkytracks.com/little-thing... #parkinsons #balance
Apparently today has been World Tai Chi day. I’ve missed the fun and games, but here’s some mischief of my own www.parkytracks.com/too-much-mon... #taichi #parkinsons
Too much monkey business - ParkyTracks
How slowing down with Tai Chi has helped me speed up my life.
www.parkytracks.com
April 26, 2025 at 2:58 PM
Apparently today has been World Tai Chi day. I’ve missed the fun and games, but here’s some mischief of my own www.parkytracks.com/too-much-mon... #taichi #parkinsons
There’s life in the old blog yet
I’m shamelessly recycling and repurposing my blog content to meet the needs of a new cohort of people with #parkinsons and their supporters.
www.parkytracks.com/lets-go-roun...
I’m shamelessly recycling and repurposing my blog content to meet the needs of a new cohort of people with #parkinsons and their supporters.
www.parkytracks.com/lets-go-roun...
Let's go round again - ParkyTracks
I’m shamelessly recycling and repurposing my blog content to meet the needs of a new cohort of people with Parkinson’s, and their supporters.
www.parkytracks.com
April 22, 2025 at 7:02 AM
There’s life in the old blog yet
I’m shamelessly recycling and repurposing my blog content to meet the needs of a new cohort of people with #parkinsons and their supporters.
www.parkytracks.com/lets-go-roun...
I’m shamelessly recycling and repurposing my blog content to meet the needs of a new cohort of people with #parkinsons and their supporters.
www.parkytracks.com/lets-go-roun...
I can tell how well my day is going to go by how much sleep I've had the night before (today will be a good one). This latest podcast from 2 Parkies in a Pod is a must-listen for anyone (#parkinsons or not) struggling to get a good night's sleep. podcasts.apple.com/gb/podcast/2...
2 Parkies in a Pod: a Parkinson's Podcast
Health & Fitness Podcast · Updated fortnightly · If you want to know more about Parkinson's, or how to cope with chronic illness, then this is the Podcast for you. Between them Clarky and Kuhan have b...
podcasts.apple.com
April 16, 2025 at 9:37 AM
I can tell how well my day is going to go by how much sleep I've had the night before (today will be a good one). This latest podcast from 2 Parkies in a Pod is a must-listen for anyone (#parkinsons or not) struggling to get a good night's sleep. podcasts.apple.com/gb/podcast/2...
Today, #worldparkinsonsday, I pay tribute to the many people who make my life with #parkinsons so much easier www.parkytracks.com/thank-you-fo...
Thank you for being a friend - ParkyTracks
If I had to deliver an Oscar thank-you speech for all the people who have supported me over the last six years, we’d all be here till next Tuesday fortnight and miss the Vanity Fair party.
www.parkytracks.com
April 11, 2025 at 8:38 AM
Today, #worldparkinsonsday, I pay tribute to the many people who make my life with #parkinsons so much easier www.parkytracks.com/thank-you-fo...
@peterprinsleymp.bsky.social Health professionals living with #parkinsons plea for parkinsons meds to be on the exemption list in England www.youtube.com/watch?v=0a9W...
The NHS Postcode Lottery
YouTube video by Jonny Acheson
www.youtube.com
April 5, 2025 at 1:59 PM
@peterprinsleymp.bsky.social Health professionals living with #parkinsons plea for parkinsons meds to be on the exemption list in England www.youtube.com/watch?v=0a9W...
What do you do if your parent is diagnosed with #parkinsons? Give them nothing to worry about. This Mother’s Day I salute my daughter Rosie, and the ‘problem-free philosophy’ that helps her to help me.
www.parkytracks.com/hakuna-matat...
www.parkytracks.com/hakuna-matat...
Hakuna Matata (no worries) - ParkyTracks
What do you do if your parent is diagnosed with Parkinson’s? Give them nothing to worry about. Here's how you can help.
www.parkytracks.com
March 30, 2025 at 6:37 AM
What do you do if your parent is diagnosed with #parkinsons? Give them nothing to worry about. This Mother’s Day I salute my daughter Rosie, and the ‘problem-free philosophy’ that helps her to help me.
www.parkytracks.com/hakuna-matat...
www.parkytracks.com/hakuna-matat...
@peterprinsleymp.bsky.social Thank you for raising the Issue of managing long-term conditions. If only #Parkinsons (and other neuro conds) had a registry as robust as that for cancer ....https://digital.nhs.uk/ndrs/about/ncras
Cancer - NDRS
Find out more about the National Cancer Registration and Analysis Service (NCRAS) - one of the 2 disease registration services within the National Disease Registration Service (NDRS)
digital.nhs.uk
March 29, 2025 at 9:08 AM
@peterprinsleymp.bsky.social Thank you for raising the Issue of managing long-term conditions. If only #Parkinsons (and other neuro conds) had a registry as robust as that for cancer ....https://digital.nhs.uk/ndrs/about/ncras
@peterprinsleymp.bsky.social Here’s some perspective on #pifu from #parkinsons UK www.parkinsons.org.uk/about-us/pat...
Patient initiated follow-up
Find out what we think about patient initiated follow-up/review pathways.
www.parkinsons.org.uk
March 22, 2025 at 9:15 AM
@peterprinsleymp.bsky.social Here’s some perspective on #pifu from #parkinsons UK www.parkinsons.org.uk/about-us/pat...
@peterprinsleymp.bsky.social Cleft stick - to travel comfortably to a #PIP assessment, people with #Parkinsons need to be well-medicated. But if we turn up well-medicated, the assessors won't see us at our very worst.
March 18, 2025 at 5:21 PM
@peterprinsleymp.bsky.social Cleft stick - to travel comfortably to a #PIP assessment, people with #Parkinsons need to be well-medicated. But if we turn up well-medicated, the assessors won't see us at our very worst.
It’s five years this month since lockdown forced us all indoors, our faces squashed into a gallery of flat squares. What’s happened since then? For me, lots of good things.
www.parkytracks.com/zoom/
www.parkytracks.com/zoom/
Zoom - ParkyTracks
It’s five years this month since lockdown forced us all indoors, our faces squashed into a gallery of flat squares. What’s happened since then? For me, lots of good things.
www.parkytracks.com
March 14, 2025 at 4:27 PM
It’s five years this month since lockdown forced us all indoors, our faces squashed into a gallery of flat squares. What’s happened since then? For me, lots of good things.
www.parkytracks.com/zoom/
www.parkytracks.com/zoom/
@iainliddle.com in reply to your Substack post, I'm with you. If I've settled down to some blog or newsletter reading, I don't suddenly want content pushed out in another medium. We all have different learning styles, and mine is strongly skewed in the direction of 'R' vark-learn.com
VARK Learning Styles
Helping you learn better.
vark-learn.com
March 9, 2025 at 2:41 PM
@iainliddle.com in reply to your Substack post, I'm with you. If I've settled down to some blog or newsletter reading, I don't suddenly want content pushed out in another medium. We all have different learning styles, and mine is strongly skewed in the direction of 'R' vark-learn.com
Last week at @Movers & Shakers Live, Paul Mayhew-Archer was talking about small handwriting #micrographia. With our increased use of computers and word processing, we’re all losing the skill. But it’s worse for people with #Parkinsons. Here are some things that have helped me write larger. /2
February 5, 2025 at 5:47 PM
Last week at @Movers & Shakers Live, Paul Mayhew-Archer was talking about small handwriting #micrographia. With our increased use of computers and word processing, we’re all losing the skill. But it’s worse for people with #Parkinsons. Here are some things that have helped me write larger. /2
I’m proud to be a voice in the group that has put this new guide together to help people with #Parkinsons access care from a wide range of health professionals.
#ParkinsonsExcellenceNetwork #AccessToCare
prksn.uk/4gdqxnL
#ParkinsonsExcellenceNetwork #AccessToCare
prksn.uk/4gdqxnL
Health professionals and Parkinson’s
Getting the right care from health professionals is important to make sure your symptoms are managed well. This page introduces some of the health professionals you might see on your Parkinson’s journ...
prksn.uk
February 5, 2025 at 10:22 AM
I’m proud to be a voice in the group that has put this new guide together to help people with #Parkinsons access care from a wide range of health professionals.
#ParkinsonsExcellenceNetwork #AccessToCare
prksn.uk/4gdqxnL
#ParkinsonsExcellenceNetwork #AccessToCare
prksn.uk/4gdqxnL