Andrea Fighting for #MECFS Diagnostic Biomarkers
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mecfsnanoneedle.bsky.social
Andrea Fighting for #MECFS Diagnostic Biomarkers
@mecfsnanoneedle.bsky.social
430 followers 610 following 60 posts
Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSDiagnosticBiomarkers

Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials.

https://mecfsdiagnosticbiomarkers.substack.com/
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mecfsnanoneedle.bsky.social
Andrea Fighting for #MECFS Diagnostic Biomarkers @mecfsnanoneedle.bsky.social · Oct 27
My cause is an #MECFS diagnostic blood test:

cen.acs.org/pharmaceutic...

Join me in supporting the scientists, researchers, universities, and ME/CFS organizations funding and fighting with the same goal.

#pwME #MillionsMissing #MECFSIsInTheBlood
My cause is an #MECFS diagnostic blood test so that : No ME/CFS patient will be sectioned or starved again So friends and family, doctors and hospitals will believe us The FDA will vote yes to treatments Medical education will improve ME/CFS research funding will increase We will gain allies NIH will study ME/CFS from an ImmunoBiological basis If we focus on funding and finding a ME/CFS diagnostic test so many issues will be solved! https://cen.acs.org/pharmaceuticals/Reactions-Long-COVID-RD/102/i33
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
decodemestudy.bsky.social
The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).

We're letting you know the timing in advance so you can pace beforehand.

Thank you to our participants & supporters.
Dark blue background with image of DNA helix. At the top of the DecodeME ‘the results’ logo. Two spotlights shine on a speech bubble that says ‘Initial DNA results’. To the right of this is an image of a research paper. At the bottom of the graphic it says ‘Wednesday 7pm BST’.
August 4, 2025 at 5:23 PM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
murtoz.bsky.social
www.change.org/p/save-savan...

www.change.org/p/the-nhs-mu...

www.change.org/p/save-karen...
Sign the Petition
Save Savannah Victora-May - Prevent Another ME/CFS Tragedy
www.change.org
July 31, 2025 at 1:40 PM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
swastrosarah.bsky.social
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
July 31, 2025 at 6:45 AM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
murtoz.bsky.social
Within a week of the plan being published, There were three petitions for people with severe ME being held against their will by the NHS. And now this mother of a child with ME being *arrested* for her death despite the harms caused by THE NHS!!!
July 31, 2025 at 1:38 PM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
swastrosarah.bsky.social
@rthonwesstreeting.bsky.social
I can't find Ashley Dalton on here so tagging you in with total support for what you have had to do.
Hope BMA negotiations are going better.
murtoz.bsky.social Michiel @murtoz.bsky.social · Jul 31
Within a week of the plan being published, There were three petitions for people with severe ME being held against their will by the NHS. And now this mother of a child with ME being *arrested* for her death despite the harms caused by THE NHS!!!
July 31, 2025 at 1:41 PM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
swastrosarah.bsky.social
@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
swastrosarah.bsky.social sarah boothby @swastrosarah.bsky.social · Jul 31
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
July 31, 2025 at 7:11 AM
mecfsnanoneedle.bsky.social
10 minute out of 65 minute interview with CEO Linda Tannenbaum on the Make Visible Podcast transcribed .

#MECFS biomarkers and the OMF BioQuest Project to find a ME/CFS Biomarker Signature/Subsets is discussed.

mecfsdiagnosticbiomarkers.substack.com/p/make-visib...
Make Visible Podcast: July 14, 2025 Emily Kate Stephens interviews Linda Tannenbaum about OMF's BioQuest Large scale ME/CFS biomarker study CEO and Founder of Open Medicine Foundation. Leading Research. Delivering Hope. MECFSDIAGNOSTICBIOMARKERS.SUBSTACK.COM
July 14, 2025 at 11:43 PM
mecfsnanoneedle.bsky.social
mecfsdiagnosticbiomarkers.substack.com/p/replicated...

Replicated blood biomarkers for ME/CFS?
ME/CFS needs well-defined, quality cases stored in Biobanks

#MECFS #pwME #MillionsMissing #Biomarkers
Replicated Blood Biomarkers for ME/CFS? ME/CFS need well-defined, quality cases stored in Biobanks.
June 26, 2025 at 12:29 PM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
danielmissailidis.bsky.social
Did you wake up with a craving for a new ME/CFS book with dozens of chapters about research methods? Well, it’s your lucky day link.springer.com/book/10.1007...
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
This book examines Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and techniques used to explore dysfunctional pathophysiology in patients.
link.springer.com
May 16, 2025 at 2:19 AM
mecfsnanoneedle.bsky.social
Today is Blue Sunday for #MECFS
Support #MECFS Biomarker projects directly.
Please donate to the largest ME/CFS Biomarker study
Help make a ME/CFS diagnostic test a reality
tinyurl.com/BlueOMFBioQu...
#pwME #MillionsMissing #BlueSunday
This Blue Sunday for ME/CFS Support ME/CFS Biomarker Projects Picture of blue and white teapot and cup and saucer Donate OMF BioQuest 1200 Samples (600 ME/CFS Samples) Analyzing 10,000 Proteins and Metabolites https://tinyurl.com/BlueOMFBioQuest
May 18, 2025 at 8:23 AM
mecfsnanoneedle.bsky.social
I have #SevereMECFS. I am bedridden. I can no longer speak.
I know that each day I am here because #Science ignores the biological and immunological underpinnings of disease in women.
Right now, I am watching a lecture series in Undergraduate Immunology by @bioprofbarker.bsky.social line by line.
"Every cell in a woman's body produces Xist," Chang said. "But for several decades, we've used a male cell line as the standard of reference. That male cell line produced no Xist and no Xist/protein/DNA complexes, nor have other cells used since for the test. So, all of a female patient's anti-Xist-complex antibodies - a huge source of women's autoimmune susceptibility - go unseen." Dr. Howard Chang, PhD, MD, Professor of Dermatology and of Genetics and a Howard Hughes Medical Institute investigator. https://med.stanford.edu/news/all-news/2024/02/women-autoimmune.html
February 28, 2025 at 1:32 AM
mecfsnanoneedle.bsky.social
The largest #MECFS Biomarker study - BioQuest
Patient selection will be based on the Canadian Consensus Criteria (CCC) and patients will be clinically diagnosed by physicians at Harvard and Uppsala.
Read More and Donate to BioQuest #Fundraising
mecfsdiagnosticbiomarkers.substack.com
OMF BioQuest #MECFS Patient Selection “The patients will be accessed using the Canadian Consensus Criteria and will have been diagnosed by physicians at Harvard Medical School and Uppsala University.” CEO of Open Medicine Foundation Linda Tannenbaum MECFSDIAGNOSTICBIOMARKERS.SUBSTACK.COM
February 4, 2025 at 4:45 PM
mecfsnanoneedle.bsky.social
Open Medicine Foundation BioQuest update.
OMF has raised $950,000 of the $2.4 Million dollars needed to analyze 1200 samples in the largest scale #MECFS Biomarker study
They have raised 40% of their goal.
mecfsdiagnosticbiomarkers.substack.com/p/omf-bioque...
Open Medicine Foundation announced it has raised $950,000 towards its $2.4 Million goal to fund the largest scale ME/CFS Biomarker Study BioQuest Screenshot of BioQuest funding: With two generous grants and additional funds from the OMF community, we secured $950,000- 40. per cent of our goal- to launch a large scale ME/CFS biomarker study BioQuest Meter with 40 per cent Aquamarine filled out Donate to BioQuest Interview with Linda Tannenbaum about BioQuest Link in Bio MECFSDIAGNOSTICBIOMARKERS.SUBSTACK.COM
January 30, 2025 at 8:58 PM
mecfsnanoneedle.bsky.social
mecfsdiagnosticbiomarkers.substack.com/p/2025-mecfs...

Your pocket guide to potential Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Diagnostic Blood tests
Get information on the 8 #MECFS diagnostic blood tests in development and more!

#MECFS #MyalgicEncephalomyelitis #pwME
2025: ME/CFS Diagnostic Biomarkers in Review
A ME/CFS diagnostic blood test Pocket Guide
mecfsdiagnosticbiomarkers.substack.com
January 29, 2025 at 5:30 PM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
openmedf.bsky.social
Exclusive Interview by @mecfsnanoneedle.bsky.social: OMF Founder and CEO, Linda Tannenbaum, on the Large-Scale ME/CFS Biomarker Study (BioQuest)!🌟

👉 Read the interview: ow.ly/FT1i50UOFII

💙 Donate to BioQuest: ow.ly/wEHU50UOFIJ

#mecfs #mecfsbiomarker #pwME
The image features Linda Tannenbaum, OMF Founder and CEO, wearing glasses and a blue top. The image includes a text overlay with the words "BioQuest Interview".
January 28, 2025 at 3:37 PM
mecfsnanoneedle.bsky.social
mecfsdiagnosticbiomarkers.substack.com/p/omf-bioque...

Open Medicine Foundation's BioQuest: Welcome to the Future

Interview with OMF's CEO Linda Tannenbaum about the largest #MECFS Biomarker Study

#MECFS #pwME #MillionsMissing #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Blue background. In the middle pictured is Open Medicine Foundation's Linda Tannenbaum. She has light brown hair. A kind smiling face. She is wearing glasses. OMF BioQuest: Welcome to the Future Email Interview with OMF's CEO Linda Tannenbaum about the largest #MECFS Biomarker Study MECFSDIAGNOSTICBIOMARKERS.SUBSTACK.COM
January 27, 2025 at 4:57 PM
mecfsnanoneedle.bsky.social
67 Million people have #MECFS worldwide
#MECFS has double the disease burden of HIV with no treatments.
A diagnostic blood test would transform medicine for #MECFS patients.
Please #Donate to the largest #MECFS biomarker study
#SocialGood #Change
www.omf.ngo/me-cfs-new-b...
Announcement!!! A New Large-Scale ME/CFS Biomarker Study (BioQuest)! - Open Medicine Foundation
Learn about BioQuest, OMF's new ME/CFS biomarker study to identify a biomarker for ME/CFS that can be evaluated through a blood test.
www.omf.ngo
January 9, 2025 at 3:17 PM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
exceedhergrasp1.bsky.social
Worth a read
gregggonsalves.bsky.social Gregg Gonsalves @gregggonsalves.bsky.social · Jan 2
So, you may ask, why do I get so angry about the new liberal spin on RFK Jr, as in, "he gets some things right, so let's collaborate on those" or "we have to work with him because he has a huge following we need to reach"? Because I've seen this movie before. 1/
January 2, 2025 at 1:30 PM
mecfsnanoneedle.bsky.social
I am excited about all the various #MECFS diagnostic blood tests in development - but my hope for 2025 is BioQuest #OMFBioQuest.
We need to focus on funding those 1200 samples!!!

www.omf.ngo/me-cfs-new-b...

@openmedf.bsky.social
Announcement!!! A New Large-Scale ME/CFS Biomarker Study (BioQuest)! - Open Medicine Foundation
Learn about BioQuest, OMF's new ME/CFS biomarker study to identify a biomarker for ME/CFS that can be evaluated through a blood test.
www.omf.ngo
December 31, 2024 at 6:27 PM
mecfsnanoneedle.bsky.social
We started 2024 with 3 #MECFS diagnostic blood tests in development and we end 2024 with 7 diagnostic blood tests in various stages of development.
The most notable thing to happen is Open Medicine Foundation's BioQuest project www.omf.ngo/me-cfs-new-b.... @openmedf.bsky.social
#MECFS #pwME
Current ME/CFS diagnostic blood tests in development 2024: 1. tinyurl.com/OMFBioQuest 2. MicroRNAs (University of Montreal) 3. Electrophyisological properties of white cells (University of Surrey) 4. Red Cell Deformability (UC Davis) 5. Electrical Signature (LeHigh University) 6. Raman Spectroscopy (Oxford) 7. Molecular and Cellular Signature of ME/CFS (LaTrobe University)
December 24, 2024 at 10:02 PM
mecfsnanoneedle.bsky.social
An #MECFS patient does not need professional help to move more. An #MECFS patient needs professional help to explain to friends and family that they need to move less and rest until pharmacological interventions for low ATP, T cell exhaustion and mitochondrial dysfunction are found
#MillionsMissing
December 22, 2024 at 5:31 AM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
sunsopeningband.bsky.social
You can have severe fatigue and cognitive dysfunction from another condition, but that doesn’t mean you have PEM. There’s way more to it and failing to acknowledge that leads to over-simplification. I can’t tell you how discouraging it is to see people get this wrong so publicly as often as they do.
December 19, 2024 at 3:29 AM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
sunsopeningband.bsky.social
Like, PEM isn’t a feature of other conditions. It’s something we see in ME. That’s basically it. People may *screen positive for bits and pieces* of PEM in other conditions. People may have ME *and* another condition, but it’s very important we’re clear that PEM isn’t a part of other conditions.
December 19, 2024 at 3:26 AM
mecfsnanoneedle.bsky.social
The best way to help #MECFS patients right now is to donate to BioQuest.
A large-scale Biomarker study that will analyze 10,000 proteins and metabolites in 1200 samples when fully funded. It is 1/3 funded right now, let's fully fund it.

#philanthropy #fundraising

www.omf.ngo/me-cfs-new-b...
Announcement!!! A New Large-Scale ME/CFS Biomarker Study (BioQuest)! - Open Medicine Foundation
Learn about BioQuest, OMF's new ME/CFS biomarker study to identify a biomarker for ME/CFS that can be evaluated through a blood test.
www.omf.ngo
December 18, 2024 at 4:56 PM
Reposted by Andrea Fighting for #MECFS Diagnostic Biomarkers
broadwaybabyto.bsky.social
In less than a year - Trump has gone from being a convicted felon & rapist to President Elect & Time Person of the Year

My heart is breaking for women all over the world

I think of Gisele Pelicot & everything she’s done to bring accountability to rapists. Then this happens

No wonder we’re angry
December 12, 2024 at 9:20 PM