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lucyainsley.bsky.social
@lucyainsley.bsky.social
88 followers 310 following 37 posts
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lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #cute #vote #joy #LongCovidKids
October 25, 2025 at 10:48 AM
Reposted
georgemonbiot.bsky.social
On the one hand, medical science is beginning to get a handle on the very complex physiological basis of this disease. On the other hand, we can expect the greatest medical scandal (so far) of the 21st Century – the mass mistreatment and neglect of ME/CFS sufferers – to continue.
October 8, 2025 at 6:13 AM
Reposted
georgemonbiot.bsky.social
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:09 AM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #cute #animals #giraffe
September 21, 2025 at 7:27 PM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #cute #ducks
September 12, 2025 at 5:59 PM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #balloon
August 27, 2025 at 10:05 AM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #helpneeded
August 15, 2025 at 11:48 AM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #flowers #summer
August 3, 2025 at 3:29 PM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #cats
July 28, 2025 at 10:54 AM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #heatwave
July 13, 2025 at 8:14 PM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
July 7, 2025 at 8:54 AM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
July 2, 2025 at 8:24 AM
Reposted
cabruce.bsky.social
Third delay to #ME care plan prompts backlash from patients.

We #pwME are put firmly onto the back burner once again. No ring fencing for research, apparently no money available at all.

Let’s face it, they just don’t care.

www.thetimes.com/article/a09b...
Third delay to ME care plan prompts backlash from patients
The health department failed to explain the postponement to its long-awaited strategy for treating chronic fatigue syndrome which affects hundreds of thousands
www.thetimes.com
June 30, 2025 at 5:00 AM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
June 25, 2025 at 3:09 PM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
June 17, 2025 at 2:45 PM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
June 8, 2025 at 9:19 AM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
June 1, 2025 at 11:07 AM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...
May 21, 2025 at 2:38 PM
Reposted
tomkindlon.bsky.social
I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses.

Unlike Covid lockdowns, the lockdowns we have dealt with for years due to #ME continue

#May12 #MEcfs #PwME
MISSING Photo of Tom Kindlon TOM K ME/CFS SINCE 1989 MISSING FROM: GRADUATING, SPORTS, WORKING, INDEPENDENCE & LIVING IN MY OWN PLACE, TRIPS ABROAD, RELATIONSHIPS, CAREFREE LIVING WITHOUT DOZENS OF SYMPTOMS #MILLIONSMISSING #EMERGEAUSTRALIA #MECFS
May 10, 2025 at 6:26 PM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
May 10, 2025 at 10:07 AM
Reposted
davetuller1.bsky.social
well, the crowdfunder has reached two-thirds of the goal and there's still several days left! It's a very tough time all around so I'm pleased it's done this well: crowdfund.berkeley.edu/project/46120
David Tuller's Trial by Error Spring 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Spring 2025. Your gift will make a difference!
crowdfund.berkeley.edu
May 1, 2025 at 8:43 PM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
May 3, 2025 at 12:10 PM
Reposted
cjsergi9.bsky.social
Pls take a minute to vote for Invest in ME Research & help them receive a share of £500,000 in grants at MyGivingCircle.org.
Every vote counts, so let's rally together & make an impact. It’s free to vote so go on… pls
🙏🏻
mygivingcircle.org/invest-in-me...

#pwME #MECFS
Vote for the charities you love to share $500,000
Each year MyGivingCircle gives $1,500,000
MyGivingCircle.org
January 5, 2025 at 11:56 AM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME
April 25, 2025 at 4:03 PM
Reposted
tomkindlon.bsky.social
I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome

Particularly relevant when similarities with the #LongCovid presentation in some people are being missed

#MEcfs #CFS #PwLC

1/
APPENDIX 2. ME/CFS Symptom Prevalence and Severity (These prevalence and severity figures are from A definition-based analysis of symptoms in a large cohort of patients with chronic fatigue syndrome, P. De Becker, N. McGregor, and K. De Meirleir. Journal of Internal Medicine 2001;250:234-240.) A total of 2,073 consecutive patients with major complaints of prolonged fatigue were assessed. Among them 1,578 met the Fukuda criteria and of those, 951 met the Holmes criteria. The figures indicate the differences in prevalence and severity of symptoms between these patient groups.
March 28, 2025 at 6:37 PM