Kristina | Patient Advocate
@kppatientadvocate.bsky.social
📚 Board Certified Patient Advocate
🥴 Chronic Illness Crusader
📖 How to Be a Badass in a Broken Healthcare System (Amazon, Audible, and B&N)
littleenginepatientadvocacy.com
🥴 Chronic Illness Crusader
📖 How to Be a Badass in a Broken Healthcare System (Amazon, Audible, and B&N)
littleenginepatientadvocacy.com
Feeling grateful, and excited for my second book about building a custom career with a #chronicillness. First draft is 95% complete! ☺️
September 14, 2025 at 6:24 PM
Feeling grateful, and excited for my second book about building a custom career with a #chronicillness. First draft is 95% complete! ☺️
I was honored to be invited on the Uncompany CMDQ Podcast, which explores what it’s like to leave things behind. Through sharing my story, I talked about quitting being a passenger in your healthcare journey and how to stay in the driver's seat.
www.weareuncompany.com/podcasts/cmd...
www.weareuncompany.com/podcasts/cmd...
May 13, 2025 at 4:46 PM
I was honored to be invited on the Uncompany CMDQ Podcast, which explores what it’s like to leave things behind. Through sharing my story, I talked about quitting being a passenger in your healthcare journey and how to stay in the driver's seat.
www.weareuncompany.com/podcasts/cmd...
www.weareuncompany.com/podcasts/cmd...
Honored to be in @sarahschafermd.bsky.social recent newsletter. Her kind words about my book have me smiling from ear to ear! #autoimmunelife #sjogrens #patientadvocate
May 3, 2025 at 4:13 PM
Honored to be in @sarahschafermd.bsky.social recent newsletter. Her kind words about my book have me smiling from ear to ear! #autoimmunelife #sjogrens #patientadvocate
Understanding dysautonomia played a significant role in advocating for my Sjogren’s diagnosis. Excellent article that dispels myths around this autoimmune disease. dysautonomiainternational.org/blog/wordpre...
Your dysautonomia may be caused by Sjogren’s disease. Here’s why that matters. | The Dysautonomia Dispatch
dysautonomiainternational.org
April 27, 2025 at 3:25 PM
Understanding dysautonomia played a significant role in advocating for my Sjogren’s diagnosis. Excellent article that dispels myths around this autoimmune disease. dysautonomiainternational.org/blog/wordpre...
Do you struggle with finding support or asking for support as someone with a chronic illness?
littleenginepatientadvocacy.com/2025/04/16/c...
littleenginepatientadvocacy.com/2025/04/16/c...
Creating Your Chronic Illness Support Circle
When you’re living with chronic illness, the phrase “you’re not alone” is tossed around more than a football on a Friday night. But being surrounded by people doesn’t necessarily mean you feel supp…
littleenginepatientadvocacy.com
April 16, 2025 at 4:03 PM
Do you struggle with finding support or asking for support as someone with a chronic illness?
littleenginepatientadvocacy.com/2025/04/16/c...
littleenginepatientadvocacy.com/2025/04/16/c...
But it’s the 5/5⭐️s across all platforms that has me 😭
Available on Amazon, Audible and Barnes & Noble online.
Available on Amazon, Audible and Barnes & Noble online.
April 9, 2025 at 12:51 AM
But it’s the 5/5⭐️s across all platforms that has me 😭
Available on Amazon, Audible and Barnes & Noble online.
Available on Amazon, Audible and Barnes & Noble online.
I’m at 99 books sold in less than 3 weeks! Snag the 100th copy…for you, a friend, a neighbor, or a loved one. 5/5 ⭐️ across ebook, paperback and audible. Giddy & grateful. 🥰
🛒 Amazon, Audible and Barnes & Nobles online
📷: Buddy the Foxhound
🛒 Amazon, Audible and Barnes & Nobles online
📷: Buddy the Foxhound
April 8, 2025 at 1:01 AM
I’m at 99 books sold in less than 3 weeks! Snag the 100th copy…for you, a friend, a neighbor, or a loved one. 5/5 ⭐️ across ebook, paperback and audible. Giddy & grateful. 🥰
🛒 Amazon, Audible and Barnes & Nobles online
📷: Buddy the Foxhound
🛒 Amazon, Audible and Barnes & Nobles online
📷: Buddy the Foxhound
Shared with permission:
“I cannot thank Kristina enough. That book is a game changer for me. I've been sitting here blaming God. Blaming myself. Thinking it was just me -that nobody cared about me and that's why no one was helping me because it was what I deserved...
“I cannot thank Kristina enough. That book is a game changer for me. I've been sitting here blaming God. Blaming myself. Thinking it was just me -that nobody cared about me and that's why no one was helping me because it was what I deserved...
April 1, 2025 at 11:25 PM
Shared with permission:
“I cannot thank Kristina enough. That book is a game changer for me. I've been sitting here blaming God. Blaming myself. Thinking it was just me -that nobody cared about me and that's why no one was helping me because it was what I deserved...
“I cannot thank Kristina enough. That book is a game changer for me. I've been sitting here blaming God. Blaming myself. Thinking it was just me -that nobody cared about me and that's why no one was helping me because it was what I deserved...
I never heard about Breast Implant Illness (with no leakage) until this brave woman shared her story. She knew what was wrong, but doctors wouldn’t listen. This is true self-advocacy work on her part.
littleenginepatientadvocacy.com/2025/03/24/t...
littleenginepatientadvocacy.com/2025/03/24/t...
Trusting Your Gut and Taking Control: A Story of Advocacy in the Face of Breast Implant Illness
The world needs to know that women’s health issues often get swept under the rug, and it’s high time we start listening, talking, and advocating for ourselves. This is why I’m so thankful to …
littleenginepatientadvocacy.com
March 24, 2025 at 10:04 PM
I never heard about Breast Implant Illness (with no leakage) until this brave woman shared her story. She knew what was wrong, but doctors wouldn’t listen. This is true self-advocacy work on her part.
littleenginepatientadvocacy.com/2025/03/24/t...
littleenginepatientadvocacy.com/2025/03/24/t...
Knowing how many people buy a book and never finish it (guilty myself), I had a goal of how many books I wanted to sell my 1st year. My book has been out for 4 days and I’m 60% to goal. If I didn’t have Sjogren’s, I would have tears of joy 🥹 I hope it empowers readers & gives them hope (& a laugh).
March 21, 2025 at 2:48 PM
Knowing how many people buy a book and never finish it (guilty myself), I had a goal of how many books I wanted to sell my 1st year. My book has been out for 4 days and I’m 60% to goal. If I didn’t have Sjogren’s, I would have tears of joy 🥹 I hope it empowers readers & gives them hope (& a laugh).
It is my book birthday! 🎉 As a chronically ill patient and board certified patient advocate, I wanted to create a self-help book that provided patients with validation through relatable stories and proven strategies on how to battle through common healthcare challenges. On Amazon & B&N online. ☺️
March 18, 2025 at 8:14 PM
It is my book birthday! 🎉 As a chronically ill patient and board certified patient advocate, I wanted to create a self-help book that provided patients with validation through relatable stories and proven strategies on how to battle through common healthcare challenges. On Amazon & B&N online. ☺️
Reposted by Kristina | Patient Advocate
Double duty: patient with Sjögren's & dysautonomia AND a physician. Just finished "Being a Badass in a Broken Healthcare System" by @kppatientadvocate.bsky.social 🤯 It's like she wrote my life story... but also gave me a manual for how to be a better doc. 😅
🧵1/4
🧵1/4
March 18, 2025 at 11:59 AM
Double duty: patient with Sjögren's & dysautonomia AND a physician. Just finished "Being a Badass in a Broken Healthcare System" by @kppatientadvocate.bsky.social 🤯 It's like she wrote my life story... but also gave me a manual for how to be a better doc. 😅
🧵1/4
🧵1/4
3 more days until 🚀! I poured my heart and spoons into this book for the past 13 months. I wrote it for anyone who feels alone, scared, frustrated, and abandoned in their chronic illness journey.
Get your copy Tuesday, March 18th on Amazon and Barnes & Noble online. ☺️
#spoonies #zebras #healthcare
Get your copy Tuesday, March 18th on Amazon and Barnes & Noble online. ☺️
#spoonies #zebras #healthcare
March 16, 2025 at 1:12 PM
3 more days until 🚀! I poured my heart and spoons into this book for the past 13 months. I wrote it for anyone who feels alone, scared, frustrated, and abandoned in their chronic illness journey.
Get your copy Tuesday, March 18th on Amazon and Barnes & Noble online. ☺️
#spoonies #zebras #healthcare
Get your copy Tuesday, March 18th on Amazon and Barnes & Noble online. ☺️
#spoonies #zebras #healthcare
March 11, 2025 at 1:42 PM
5 Reasons to Preorder "How to Be a Badass in a Broken Healthcare System" on Barnes & Noble! 📚
March 8, 2025 at 2:43 AM
5 Reasons to Preorder "How to Be a Badass in a Broken Healthcare System" on Barnes & Noble! 📚
The audiobook version of my book is live! Available on Audible and iTunes. It’s a mix of relatable stories and proven strategies for my fellow chronic illness warriors or caregivers. Ebook & paperback will be available Tuesday, March 18th on Amazon and B&N online.
March 7, 2025 at 1:55 AM
The audiobook version of my book is live! Available on Audible and iTunes. It’s a mix of relatable stories and proven strategies for my fellow chronic illness warriors or caregivers. Ebook & paperback will be available Tuesday, March 18th on Amazon and B&N online.
My debut book, How to Be a Badass in a Broken Healthcare System, is #1 and #2 in new releases in two categories 🥰 for Kindle preorder. Thank you for the early support. All formats come out Tuesday, March 18th on Amazon and Barnes & Noble online. Let’s feel better together!
March 5, 2025 at 12:58 PM
My debut book, How to Be a Badass in a Broken Healthcare System, is #1 and #2 in new releases in two categories 🥰 for Kindle preorder. Thank you for the early support. All formats come out Tuesday, March 18th on Amazon and Barnes & Noble online. Let’s feel better together!
It’s Rare Disease Day. As someone navigating a rare disease, I know how challenging it can be to get that elusive diagnosis, find a care team you can truly trust, and then figure out what actually works for your body. It’s like trying to solve a puzzle that doesn’t even have all the pieces.
February 28, 2025 at 12:46 PM
It’s Rare Disease Day. As someone navigating a rare disease, I know how challenging it can be to get that elusive diagnosis, find a care team you can truly trust, and then figure out what actually works for your body. It’s like trying to solve a puzzle that doesn’t even have all the pieces.
Only a few spots remain for advanced copy readers (ARC) for my new book. Free ebook for an honest review. It’s a mix of stories (told with sass & humor) and strategies from a board certified patient advocate to empower chronically ill patients.
Reach out if interested & I’ll send more details.
Reach out if interested & I’ll send more details.
February 21, 2025 at 2:57 PM
Only a few spots remain for advanced copy readers (ARC) for my new book. Free ebook for an honest review. It’s a mix of stories (told with sass & humor) and strategies from a board certified patient advocate to empower chronically ill patients.
Reach out if interested & I’ll send more details.
Reach out if interested & I’ll send more details.
Do your doctors appointments leave you feeling dismissed, hopeless, angry & confused? We can’t control how providers show up, but we can control how we show up. The Patient Empowerment Workbook teaches effective communication & goal setting. resources.littleenginepatientadvocacy.com/patient-empo...
January 16, 2025 at 2:55 PM
Do your doctors appointments leave you feeling dismissed, hopeless, angry & confused? We can’t control how providers show up, but we can control how we show up. The Patient Empowerment Workbook teaches effective communication & goal setting. resources.littleenginepatientadvocacy.com/patient-empo...
Getting excited for my book, How to be a Badass in a Broken System! It was written for chronically ill patients who want to go from overwhelmed to empowered. Coming out in March!
January 13, 2025 at 9:51 PM
Getting excited for my book, How to be a Badass in a Broken System! It was written for chronically ill patients who want to go from overwhelmed to empowered. Coming out in March!
Coming in March! A complete guide for being your own best advocate. Perfect for chronic illness patients struggling to be seen and heard in the healthcare system. Help get the care you deserve!
Still same spots available for ARC readers. Let me know if you’re interested.
Still same spots available for ARC readers. Let me know if you’re interested.
December 15, 2024 at 12:56 PM
Coming in March! A complete guide for being your own best advocate. Perfect for chronic illness patients struggling to be seen and heard in the healthcare system. Help get the care you deserve!
Still same spots available for ARC readers. Let me know if you’re interested.
Still same spots available for ARC readers. Let me know if you’re interested.
MS got all the attention before I was correctly diagnosed with hEDS (and later Sjogrens & myasthenia gravis) because the symptoms can mimic each other. littleenginepatientadvocacy.com/2024/12/04/m...
MSing the Mark: Hypermobile Ehlers Danlos Syndrome Mimicking Multiple Sclerosis
Note: I am not a medical provider. Opinions in this article are based on my own research and personal experiences. Mission: Diagnosis After a particularly bad virus the month prior, I awoke to pins…
littleenginepatientadvocacy.com
December 13, 2024 at 12:10 PM
MS got all the attention before I was correctly diagnosed with hEDS (and later Sjogrens & myasthenia gravis) because the symptoms can mimic each other. littleenginepatientadvocacy.com/2024/12/04/m...
If you struggled to get diagnosed with your chronic illness, would you have joined a program / bought a course that provided tips & tactics to help reduce time to diagnosis & care?
November 27, 2024 at 1:40 PM
If you struggled to get diagnosed with your chronic illness, would you have joined a program / bought a course that provided tips & tactics to help reduce time to diagnosis & care?
Reposted by Kristina | Patient Advocate
Week 52 efficacy results and up to 2-year safety follow-up of ianalumab in patients with Sjögren’s disease from a phase 2b dose-finding study
In A&R
acr.tw/3CEmaUJ
#Medsky
Figures
(1) Summary of efficacy data at week 52 compared to week 24
(2) Stimulated salivary flow rate over time up to week 48
In A&R
acr.tw/3CEmaUJ
#Medsky
Figures
(1) Summary of efficacy data at week 52 compared to week 24
(2) Stimulated salivary flow rate over time up to week 48
November 25, 2024 at 1:27 PM
Week 52 efficacy results and up to 2-year safety follow-up of ianalumab in patients with Sjögren’s disease from a phase 2b dose-finding study
In A&R
acr.tw/3CEmaUJ
#Medsky
Figures
(1) Summary of efficacy data at week 52 compared to week 24
(2) Stimulated salivary flow rate over time up to week 48
In A&R
acr.tw/3CEmaUJ
#Medsky
Figures
(1) Summary of efficacy data at week 52 compared to week 24
(2) Stimulated salivary flow rate over time up to week 48