Hughie
@hugle.uk
It's the surviving that's killing me #𐑣𐑬𐑟𐑥𐑲𐑕𐑐𐑧𐑤𐑦𐑙
https://www.goodreads.com/author/show/20671806.Hughie_Carroll
https://www.goodreads.com/author/show/20671806.Hughie_Carroll
Guillermo del Toro's Frankenstein strikes a chord. I too am a creature stuck between not living and not dying #chronic-illness #mecfs #frankenstein
November 7, 2025 at 9:46 PM
Guillermo del Toro's Frankenstein strikes a chord. I too am a creature stuck between not living and not dying #chronic-illness #mecfs #frankenstein
www.sciencedaily.com/releases/202... - here it says that mecfs is NOT a genetic disorder, but I thought that the DecodeME study (to which I gave my DNA) showed that it was. Are there any science explainers out there? What's the story?
Breakthrough blood test finally confirms Chronic Fatigue Syndrome
A team of scientists has developed a highly accurate blood test for Chronic Fatigue Syndrome. The test reads tiny DNA patterns that reveal the biological signature of the illness. For millions who’ve ...
www.sciencedaily.com
November 4, 2025 at 10:50 AM
www.sciencedaily.com/releases/202... - here it says that mecfs is NOT a genetic disorder, but I thought that the DecodeME study (to which I gave my DNA) showed that it was. Are there any science explainers out there? What's the story?
@xathoron.bsky.social just so you know, I don't do private chat because of the age verification thing in the UK. I can be contacted via hugle.uk
November 2, 2025 at 3:09 PM
@xathoron.bsky.social just so you know, I don't do private chat because of the age verification thing in the UK. I can be contacted via hugle.uk
Scarf and cardigan worn together for the first time, now ready to be given as a present. All my #knitting ends up baggy, I've got a ton more learning to do. Still, I'm pleased with these two :)
October 27, 2025 at 10:42 AM
Scarf and cardigan worn together for the first time, now ready to be given as a present. All my #knitting ends up baggy, I've got a ton more learning to do. Still, I'm pleased with these two :)
BIIIG scarf finished with some comedy modelling daaarling :) hugle.uk/images/stuff... hugle.uk/images/stuff... #knitting
October 26, 2025 at 6:24 PM
BIIIG scarf finished with some comedy modelling daaarling :) hugle.uk/images/stuff... hugle.uk/images/stuff... #knitting
Finished a #knitting project for a chum :) hugle.uk/images/stuff...
October 26, 2025 at 12:02 PM
Finished a #knitting project for a chum :) hugle.uk/images/stuff...
Reposted by Hughie
We're stargazing with Hughie Carroll today.
Hughie Carroll – “Orion”
Orion hanging over the neighbour’s roof Orion winter’s a-comin then his glittering belt of nebulae solid proof of magic as I gawp and try to remember the old names I twiddle my beard other hand on hip and wonder if some far distant ancestor had ever done this exact same thing just before an Autumn dawn not sleeping his dog…
blacknorereview.wordpress.com
October 20, 2025 at 4:38 AM
We're stargazing with Hughie Carroll today.
theanarchistlibrary.org/library/benj.... Deep inside I say a big thank you to the wonderful and sadly lost, #BenjaminZephaniah. I saw and really heard him do a poetry gig in my teens and was genuinely inspired. May he rest in peace.
Why I Am an Anarchist
Benjamin Zephaniah Why I Am an Anarchist June 2019
theanarchistlibrary.org
October 12, 2025 at 9:49 AM
theanarchistlibrary.org/library/benj.... Deep inside I say a big thank you to the wonderful and sadly lost, #BenjaminZephaniah. I saw and really heard him do a poetry gig in my teens and was genuinely inspired. May he rest in peace.
www.kilkennybaysteamers.com next show at The Siren's Calling, Portishead, Sunday 28th at noon :)
Kilkenny Bay Steamers | Choir | Portishead, UK
Kilkenny Bay Steamers. Four part mixed voices sea shanty choir based in Portishead
www.kilkennybaysteamers.com
September 27, 2025 at 8:08 AM
www.kilkennybaysteamers.com next show at The Siren's Calling, Portishead, Sunday 28th at noon :)
So nice to see you here on our social notwork :) #chronicillness
September 26, 2025 at 12:16 PM
So nice to see you here on our social notwork :) #chronicillness
Wow, Slow Horses is some crackin' tv - www.imdb.com/title/tt5875...
Slow Horses (TV Series 2022– ) ⭐ 8.3 | Drama, Thriller
50m | TV-MA
www.imdb.com
September 19, 2025 at 10:12 PM
Wow, Slow Horses is some crackin' tv - www.imdb.com/title/tt5875...
@mishellbaker.bsky.social best of luck with all things linux! I'm a long time user and will gladly help if I can when questions come up that searching doesn't answer. Just for the neovim editor alone linux is just wondrous :)
September 16, 2025 at 11:10 AM
@mishellbaker.bsky.social best of luck with all things linux! I'm a long time user and will gladly help if I can when questions come up that searching doesn't answer. Just for the neovim editor alone linux is just wondrous :)
About a quarter of the posts I see have a title, a picture and a blurb which repeats the title. It's redundant and annoys, just venting..
September 6, 2025 at 8:26 AM
About a quarter of the posts I see have a title, a picture and a blurb which repeats the title. It's redundant and annoys, just venting..
"He who learns must suffer. And even in our sleep pain that cannot forget falls drop by drop upon the heart, and in our own despair, against our will, comes wisdom to us by the awful grace of God."
~ Aeschylus
~ Aeschylus
September 2, 2025 at 9:50 AM
"He who learns must suffer. And even in our sleep pain that cannot forget falls drop by drop upon the heart, and in our own despair, against our will, comes wisdom to us by the awful grace of God."
~ Aeschylus
~ Aeschylus
Reposted by Hughie
Huge congrats to Chris Ponting and the whole Decode ME team on their preprint on #genetics of people with #MECFS!
Pre-print plus li'l video before we get into a deeper dive.
Vid: www.youtube.com/watch?v=0S5u...
Preprint: www.pure.ed.ac.uk/ws/portalfil... 🧪 🧵
Pre-print plus li'l video before we get into a deeper dive.
Vid: www.youtube.com/watch?v=0S5u...
Preprint: www.pure.ed.ac.uk/ws/portalfil... 🧪 🧵
www.pure.ed.ac.uk
August 7, 2025 at 3:15 PM
Huge congrats to Chris Ponting and the whole Decode ME team on their preprint on #genetics of people with #MECFS!
Pre-print plus li'l video before we get into a deeper dive.
Vid: www.youtube.com/watch?v=0S5u...
Preprint: www.pure.ed.ac.uk/ws/portalfil... 🧪 🧵
Pre-print plus li'l video before we get into a deeper dive.
Vid: www.youtube.com/watch?v=0S5u...
Preprint: www.pure.ed.ac.uk/ws/portalfil... 🧪 🧵
Yesterday, some kids asked me "how are you so old?". Today I have their answer - "It's taken me over 60 years to find that out!"
August 6, 2025 at 11:16 AM
Yesterday, some kids asked me "how are you so old?". Today I have their answer - "It's taken me over 60 years to find that out!"
