Holly L (First Grace28 at the other place) she/her
@hollyl.bsky.social
-personal account, opinions my own
-Interested in #MyalgicEncephalomyelitis #ChronicIlness #DisabilityJustice #Spoonie & politics (by necessity not for fun). I ❤️ reading 📚 beach ⛱️ fall 🍂nature 🌳
#pwME #StillSickStillFighting #LongCovid #MECFS
-Interested in #MyalgicEncephalomyelitis #ChronicIlness #DisabilityJustice #Spoonie & politics (by necessity not for fun). I ❤️ reading 📚 beach ⛱️ fall 🍂nature 🌳
#pwME #StillSickStillFighting #LongCovid #MECFS
Pinned
Hi all. I created this account months ago but have not had time to build it up. I am the Community Engagement and Social Media Manager for @meactnet.bsky.social.
This is my personal account so opinions are my own.
This is my personal account so opinions are my own.
Reposted by Holly L (First Grace28 at the other place) she/her
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
November 7, 2025 at 5:00 PM
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Reposted by Holly L (First Grace28 at the other place) she/her
November is National Family Caregivers Month. #MEAction is bringing you 2 powerful webinars! We will also be sharing social posts & resources focusing on caregiving.
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
November 1, 2025 at 4:16 PM
November is National Family Caregivers Month. #MEAction is bringing you 2 powerful webinars! We will also be sharing social posts & resources focusing on caregiving.
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
Reposted by Holly L (First Grace28 at the other place) she/her
On day 31 of the government shutdown, Trump parties at Mar-a-Lago with his wealthy friends instead of working to reach a deal with Democrats to reopen the government.
November 1, 2025 at 2:43 AM
On day 31 of the government shutdown, Trump parties at Mar-a-Lago with his wealthy friends instead of working to reach a deal with Democrats to reopen the government.
Reposted by Holly L (First Grace28 at the other place) she/her
HCR nails it every time but love the way Neguse reframed what’s happening. Why isn’t everyone in the media doing this?
November 1, 2025 at 1:07 PM
HCR nails it every time but love the way Neguse reframed what’s happening. Why isn’t everyone in the media doing this?
Reposted by Holly L (First Grace28 at the other place) she/her
Sen. Shaheen: I had a meeting with some constituents last Friday. One was a small business owner who had cancer. He said, 'If I didn't have that insurance through the ACA, I would not have gotten my cancer treated, and I would be dead by now.' That's what this fight is about.
November 1, 2025 at 3:03 PM
Sen. Shaheen: I had a meeting with some constituents last Friday. One was a small business owner who had cancer. He said, 'If I didn't have that insurance through the ACA, I would not have gotten my cancer treated, and I would be dead by now.' That's what this fight is about.
Reposted by Holly L (First Grace28 at the other place) she/her
This is a very SCARY time! We are people with ME/CFS & Long COVID that stand against the Medicaid cuts + ACA Premium increases. $1trillion in Medicaid cuts will harm millions. ACA premium hikes will steal affordable healthcare from tens of millions.
Contact Congress: www.meaction.net/medicaid
#ACA
Contact Congress: www.meaction.net/medicaid
#ACA
October 31, 2025 at 3:41 PM
This is a very SCARY time! We are people with ME/CFS & Long COVID that stand against the Medicaid cuts + ACA Premium increases. $1trillion in Medicaid cuts will harm millions. ACA premium hikes will steal affordable healthcare from tens of millions.
Contact Congress: www.meaction.net/medicaid
#ACA
Contact Congress: www.meaction.net/medicaid
#ACA
Reposted by Holly L (First Grace28 at the other place) she/her
Don't let the grim reaper steal your health insurance!
CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases.
Congress is tackling these very issues during the govt shut-down - they need to hear from YOU!
See our call script 👇.
CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases.
Congress is tackling these very issues during the govt shut-down - they need to hear from YOU!
See our call script 👇.
October 31, 2025 at 6:33 PM
Don't let the grim reaper steal your health insurance!
CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases.
Congress is tackling these very issues during the govt shut-down - they need to hear from YOU!
See our call script 👇.
CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases.
Congress is tackling these very issues during the govt shut-down - they need to hear from YOU!
See our call script 👇.
Reposted by Holly L (First Grace28 at the other place) she/her
TeamBlueZoo's cutest member protests for Healthcare reform
Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
October 31, 2025 at 7:58 PM
TeamBlueZoo's cutest member protests for Healthcare reform
Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
Reposted by Holly L (First Grace28 at the other place) she/her
They say you don't know what you've got til it's gone. If you don't want to envision a future that doesn't #SaveMedicaid and the #ACA, join us in contacting your Congressperson. Tell them only they can save American Healthcare! @meactnet.bsky.social
October 31, 2025 at 8:11 PM
They say you don't know what you've got til it's gone. If you don't want to envision a future that doesn't #SaveMedicaid and the #ACA, join us in contacting your Congressperson. Tell them only they can save American Healthcare! @meactnet.bsky.social
Reposted by Holly L (First Grace28 at the other place) she/her
As House Republicans continue their 6 week vacation, I’m back in Washington D.C. working to re-open the government.
It is outrageous that Republicans refuse to re-open the House!
It is outrageous that Republicans refuse to re-open the House!
October 29, 2025 at 6:07 PM
As House Republicans continue their 6 week vacation, I’m back in Washington D.C. working to re-open the government.
It is outrageous that Republicans refuse to re-open the House!
It is outrageous that Republicans refuse to re-open the House!
Reposted by Holly L (First Grace28 at the other place) she/her
Thank you Congressman Neguse for laying it plain.
October 31, 2025 at 4:14 PM
Thank you Congressman Neguse for laying it plain.
Reposted by Holly L (First Grace28 at the other place) she/her
I love how Rep. Joe Neguse reframed this question.
October 31, 2025 at 8:19 AM
I love how Rep. Joe Neguse reframed this question.
Reposted by Holly L (First Grace28 at the other place) she/her
Ben also shares a photo with his notice that his healthcare marketplace plan premium subsidies are expiring - one of this season's true horror stories!
Millions of people will get kicked off of Medicaid.
ACA Health insurance premiums are expected to double if the tax credits expire. #ACA
Millions of people will get kicked off of Medicaid.
ACA Health insurance premiums are expected to double if the tax credits expire. #ACA
October 31, 2025 at 12:52 AM
Ben also shares a photo with his notice that his healthcare marketplace plan premium subsidies are expiring - one of this season's true horror stories!
Millions of people will get kicked off of Medicaid.
ACA Health insurance premiums are expected to double if the tax credits expire. #ACA
Millions of people will get kicked off of Medicaid.
ACA Health insurance premiums are expected to double if the tax credits expire. #ACA
Reposted by Holly L (First Grace28 at the other place) she/her
Creepy baby me says....Congress stop playing tricks with my healthcare!
#MEAction's Ben HsuBorger shares his self-proclaimed creepy baby photo to help spread the word that right now is a scary time!
Contact Congress today! Tell them we do not accept this HealthSCARE! www.meaction.net/medicaid
#MEAction's Ben HsuBorger shares his self-proclaimed creepy baby photo to help spread the word that right now is a scary time!
Contact Congress today! Tell them we do not accept this HealthSCARE! www.meaction.net/medicaid
October 31, 2025 at 12:52 AM
Creepy baby me says....Congress stop playing tricks with my healthcare!
#MEAction's Ben HsuBorger shares his self-proclaimed creepy baby photo to help spread the word that right now is a scary time!
Contact Congress today! Tell them we do not accept this HealthSCARE! www.meaction.net/medicaid
#MEAction's Ben HsuBorger shares his self-proclaimed creepy baby photo to help spread the word that right now is a scary time!
Contact Congress today! Tell them we do not accept this HealthSCARE! www.meaction.net/medicaid
Reposted by Holly L (First Grace28 at the other place) she/her
We just finished the amazing workshop with Marisa Renee Lee focusing on grief & chronic illness. At least 7 countries were represented & we had an amazing time together.
We touched on the importance of finding joy & taking care of ourselves in the workshop so I thought I would add this reminder!
We touched on the importance of finding joy & taking care of ourselves in the workshop so I thought I would add this reminder!
October 28, 2025 at 8:40 PM
We just finished the amazing workshop with Marisa Renee Lee focusing on grief & chronic illness. At least 7 countries were represented & we had an amazing time together.
We touched on the importance of finding joy & taking care of ourselves in the workshop so I thought I would add this reminder!
We touched on the importance of finding joy & taking care of ourselves in the workshop so I thought I would add this reminder!
Reposted by Holly L (First Grace28 at the other place) she/her
This is a blood-sucking nightmare. But we can get out of it together. Our government needs to hear from us! Save #ACA. #SaveMedicaid. @MEActNet
Thanks to our executive director, Laurie Jones, & her daughters for joining in!
Contact Congress: www.meaction.net/medicaid
#pwME #Disability #LongCovid
Thanks to our executive director, Laurie Jones, & her daughters for joining in!
Contact Congress: www.meaction.net/medicaid
#pwME #Disability #LongCovid
October 29, 2025 at 8:53 PM
This is a blood-sucking nightmare. But we can get out of it together. Our government needs to hear from us! Save #ACA. #SaveMedicaid. @MEActNet
Thanks to our executive director, Laurie Jones, & her daughters for joining in!
Contact Congress: www.meaction.net/medicaid
#pwME #Disability #LongCovid
Thanks to our executive director, Laurie Jones, & her daughters for joining in!
Contact Congress: www.meaction.net/medicaid
#pwME #Disability #LongCovid
Reposted by Holly L (First Grace28 at the other place) she/her
It’s Halloween-time, but we shouldn’t actually be living in a horror movie.
Congress is fighting over healthcare cuts that will make access to medical care a nightmare for working families, small businesses & people with disabilities.
Call Congress: www.meaction.net/medicaid
#SaveMedicaid #ACA
Congress is fighting over healthcare cuts that will make access to medical care a nightmare for working families, small businesses & people with disabilities.
Call Congress: www.meaction.net/medicaid
#SaveMedicaid #ACA
October 30, 2025 at 6:45 PM
It’s Halloween-time, but we shouldn’t actually be living in a horror movie.
Congress is fighting over healthcare cuts that will make access to medical care a nightmare for working families, small businesses & people with disabilities.
Call Congress: www.meaction.net/medicaid
#SaveMedicaid #ACA
Congress is fighting over healthcare cuts that will make access to medical care a nightmare for working families, small businesses & people with disabilities.
Call Congress: www.meaction.net/medicaid
#SaveMedicaid #ACA
Reposted by Holly L (First Grace28 at the other place) she/her
Let’s be clear. If the federal government doesn't make changes to health care during this shutdown, then a lot of Americans WILL lose access to our healthcare as we know it.
We are joining in coalition with other orgs aimed at protecting Medicaid in FLIPPING the Narrative. We need your help!
We are joining in coalition with other orgs aimed at protecting Medicaid in FLIPPING the Narrative. We need your help!
October 29, 2025 at 6:23 PM
Let’s be clear. If the federal government doesn't make changes to health care during this shutdown, then a lot of Americans WILL lose access to our healthcare as we know it.
We are joining in coalition with other orgs aimed at protecting Medicaid in FLIPPING the Narrative. We need your help!
We are joining in coalition with other orgs aimed at protecting Medicaid in FLIPPING the Narrative. We need your help!
Reposted by Holly L (First Grace28 at the other place) she/her
Oooh, this is really smart.
When I still had the physical strength to attend protests, I carried my own #MyalgicEncephalomyelitis kit w/ me.
Great to see our most prominent advocacy group laying out a blueprint for everyone w/ post-infectious illnesses.
#pwME #pwLC #LongCovid
When I still had the physical strength to attend protests, I carried my own #MyalgicEncephalomyelitis kit w/ me.
Great to see our most prominent advocacy group laying out a blueprint for everyone w/ post-infectious illnesses.
#pwME #pwLC #LongCovid
We know that there are a lot of protests happening. Stay safe everyone! We have a protest guide available! www.meaction.net/_files/ugd/b...
It includes planning an accessible protest & attending an in person protest when you have ME or similar.
#pwME #Protest #MECFS #ChronicIllness
It includes planning an accessible protest & attending an in person protest when you have ME or similar.
#pwME #Protest #MECFS #ChronicIllness
October 3, 2025 at 5:43 PM
Oooh, this is really smart.
When I still had the physical strength to attend protests, I carried my own #MyalgicEncephalomyelitis kit w/ me.
Great to see our most prominent advocacy group laying out a blueprint for everyone w/ post-infectious illnesses.
#pwME #pwLC #LongCovid
When I still had the physical strength to attend protests, I carried my own #MyalgicEncephalomyelitis kit w/ me.
Great to see our most prominent advocacy group laying out a blueprint for everyone w/ post-infectious illnesses.
#pwME #pwLC #LongCovid
Reposted by Holly L (First Grace28 at the other place) she/her
#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) again to offer creative writing workshops for people with ME and Long COVID. To learn more & get link to the application read this article:
www.meaction.net/post/apply-t...
www.meaction.net/post/apply-t...
Apply Today - Writers Guild Initiative Writing Workshops
WGI Workshops start in November. Apply today!
www.meaction.net
October 13, 2025 at 4:50 PM
#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) again to offer creative writing workshops for people with ME and Long COVID. To learn more & get link to the application read this article:
www.meaction.net/post/apply-t...
www.meaction.net/post/apply-t...
Reposted by Holly L (First Grace28 at the other place) she/her
@exceedhergrasp1.bsky.social, Ravi Ganesh, and Jen Bell and Brayden Yellman from @batemanhornecenter.bsky.social have all been guides and inspiration for me since the start of my journey in ME/CFS care. I could not think of a better experience to have with my first textbook chapter. Thank you all 💙
October 7, 2025 at 4:34 PM
@exceedhergrasp1.bsky.social, Ravi Ganesh, and Jen Bell and Brayden Yellman from @batemanhornecenter.bsky.social have all been guides and inspiration for me since the start of my journey in ME/CFS care. I could not think of a better experience to have with my first textbook chapter. Thank you all 💙
Reposted by Holly L (First Grace28 at the other place) she/her
And thank you also to everyone in the community who took the time to send thank you messages!! Wow!! We received the eCard and are so overwhelmed (in the best way) by your support and are so so grateful. 🥹 @meactnet.bsky.social
October 7, 2025 at 4:34 PM
And thank you also to everyone in the community who took the time to send thank you messages!! Wow!! We received the eCard and are so overwhelmed (in the best way) by your support and are so so grateful. 🥹 @meactnet.bsky.social
Reposted by Holly L (First Grace28 at the other place) she/her
Truly honored to have lead the inaugural chapter on #MECFS management in the @elsevierconnect.bsky.social textbook Scientific Basis of Fatigue, "Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A New Narrative." The greatest honor of all was co-authoring with my role models--
October 7, 2025 at 4:34 PM
Truly honored to have lead the inaugural chapter on #MECFS management in the @elsevierconnect.bsky.social textbook Scientific Basis of Fatigue, "Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A New Narrative." The greatest honor of all was co-authoring with my role models--
Reposted by Holly L (First Grace28 at the other place) she/her
We know that there are a lot of protests happening. Stay safe everyone! We have a protest guide available! www.meaction.net/_files/ugd/b...
It includes planning an accessible protest & attending an in person protest when you have ME or similar.
#pwME #Protest #MECFS #ChronicIllness
It includes planning an accessible protest & attending an in person protest when you have ME or similar.
#pwME #Protest #MECFS #ChronicIllness
October 3, 2025 at 5:00 PM
We know that there are a lot of protests happening. Stay safe everyone! We have a protest guide available! www.meaction.net/_files/ugd/b...
It includes planning an accessible protest & attending an in person protest when you have ME or similar.
#pwME #Protest #MECFS #ChronicIllness
It includes planning an accessible protest & attending an in person protest when you have ME or similar.
#pwME #Protest #MECFS #ChronicIllness
I got a low power mode v-neck tee in teal! Check out all the colors and options!
#spoonie #chronicIllness #disability
#spoonie #chronicIllness #disability
We are loving seeing these new designs in action! Thanks to @hospmom.bsky.social for designing and modeling for us!
Check out an amazing selection of chronic illness gear now available! www.bonfire.com/store/meacti...
#pwME #spoonie #chronicIllness #MECFS #LongCovid
Check out an amazing selection of chronic illness gear now available! www.bonfire.com/store/meacti...
#pwME #spoonie #chronicIllness #MECFS #LongCovid
October 3, 2025 at 12:55 AM
I got a low power mode v-neck tee in teal! Check out all the colors and options!
#spoonie #chronicIllness #disability
#spoonie #chronicIllness #disability