Holly Schofield
@hollscho.bsky.social
Patient and Public Involvement Officer and Adviser. Clinical trials PPIE and inclusive research.
Experienced PPI lead in stroke research. Personal interest in mental health and neurodiversity research
Love music, visual arts, nature walking and gaming
Experienced PPI lead in stroke research. Personal interest in mental health and neurodiversity research
Love music, visual arts, nature walking and gaming
I'll be speaking at this event on what makes a good Chief Investigator, focusing on the role of meaningful PPI and embedding EDI from the start. Looking forward to it! 🌟
🚀 Exciting News! 🚀
Interested in or leading a clinical trial?
Want to be the best Chief Investigator you can be?
This updated course is for you!
tinyurl.com/HTBAGCI
#ClinicalTrials #CITraining
@leedsctru.bsky.social @amandafarrin.bsky.social
Interested in or leading a clinical trial?
Want to be the best Chief Investigator you can be?
This updated course is for you!
tinyurl.com/HTBAGCI
#ClinicalTrials #CITraining
@leedsctru.bsky.social @amandafarrin.bsky.social
April 4, 2025 at 8:42 AM
I'll be speaking at this event on what makes a good Chief Investigator, focusing on the role of meaningful PPI and embedding EDI from the start. Looking forward to it! 🌟
Reposted by Holly Schofield
PhD Student, Ella Howes, has just released the latest episode of the Trials Methodology podcast with our very own @willjcragg.bsky.social , covering all things to do with the 'how' of trials methodology💡
Give it a listen here (or on Apple podcasts if you prefer): open.spotify.com/episode/04JZ...
Give it a listen here (or on Apple podcasts if you prefer): open.spotify.com/episode/04JZ...
March 25, 2025 at 3:48 PM
PhD Student, Ella Howes, has just released the latest episode of the Trials Methodology podcast with our very own @willjcragg.bsky.social , covering all things to do with the 'how' of trials methodology💡
Give it a listen here (or on Apple podcasts if you prefer): open.spotify.com/episode/04JZ...
Give it a listen here (or on Apple podcasts if you prefer): open.spotify.com/episode/04JZ...
Reposted by Holly Schofield
Following on from our very popular December webinar on 'the invisible labour of #PublicInvolvement' registrations are now open for the second webinar in the series, on Emotions in #PPI, led by colleagues from @penarc.bsky.social.
Come join us!
@arceastofengland.bsky.social @elspethma.bsky.social
Come join us!
@arceastofengland.bsky.social @elspethma.bsky.social
What role do emotions play in public involvement? To what extent is PPI labour emotional labour? Join us to explore how we can recognise, value and make space for this kind of labour in research.
arc-sl.nihr.ac.uk/events-train...
arc-sl.nihr.ac.uk/events-train...
March 11, 2025 at 12:05 PM
Following on from our very popular December webinar on 'the invisible labour of #PublicInvolvement' registrations are now open for the second webinar in the series, on Emotions in #PPI, led by colleagues from @penarc.bsky.social.
Come join us!
@arceastofengland.bsky.social @elspethma.bsky.social
Come join us!
@arceastofengland.bsky.social @elspethma.bsky.social
I had an enjoyable time presenting at the RadResearch Conference in Leeds today, hosted by RadResearch and the NIHR-supported Incubator for Diagnostic and Therapeutic Radiographers. I really hope my presentation inspired attendees to embed #PPIE #PublicInvolvement into their research plans 🌟
March 12, 2025 at 3:09 PM
I had an enjoyable time presenting at the RadResearch Conference in Leeds today, hosted by RadResearch and the NIHR-supported Incubator for Diagnostic and Therapeutic Radiographers. I really hope my presentation inspired attendees to embed #PPIE #PublicInvolvement into their research plans 🌟
Reposted by Holly Schofield
#PPIE and ethics
"Public involvement and engagement in scientific research and higher education: the only way is ethics?"
researchinvolvement.biomedcentral.com/articles/10....
"Public involvement and engagement in scientific research and higher education: the only way is ethics?"
researchinvolvement.biomedcentral.com/articles/10....
Public involvement and engagement in scientific research and higher education: the only way is ethics? - Research Involvement and Engagement
Background Involving and engaging the public in scientific research and higher education is slowly becoming the norm for academic institutions in the United Kingdom and elsewhere. Driven by a wide ran...
researchinvolvement.biomedcentral.com
October 19, 2024 at 8:19 AM
#PPIE and ethics
"Public involvement and engagement in scientific research and higher education: the only way is ethics?"
researchinvolvement.biomedcentral.com/articles/10....
"Public involvement and engagement in scientific research and higher education: the only way is ethics?"
researchinvolvement.biomedcentral.com/articles/10....
Reposted by Holly Schofield
There's already one at bsky.app/profile/did:... - @brynphd.com kindly directed me to this yesterday
November 21, 2024 at 4:41 PM
There's already one at bsky.app/profile/did:... - @brynphd.com kindly directed me to this yesterday
Reposted by Holly Schofield
Only today in an ARC sesssion on #evaluatingPPI we were talking about invisible work and emotional labour in #PPI and #co-production. Great to see @louca-mai.bsky.social will be speaking about this next month.
It’s labour that is not recognised, costed or valued - yet it’s essential
It’s labour that is not recognised, costed or valued - yet it’s essential
@nihrarcs.bsky.social webinar: 'the invisible labour of #PublicInvolvement' with me & Stan Papoulias, chaired by @elspethma.bsky.social. Thurs 5/12/24 15:30-17:00
Info & booking: url.uk.m.mimecastprotect.com/s/Fcz7CzBW2u...
@arceastofengland.bsky.social @nihrarcs.bsky.social
@penarc.bsky.social #PPI
Info & booking: url.uk.m.mimecastprotect.com/s/Fcz7CzBW2u...
@arceastofengland.bsky.social @nihrarcs.bsky.social
@penarc.bsky.social #PPI
November 19, 2024 at 9:59 PM
Only today in an ARC sesssion on #evaluatingPPI we were talking about invisible work and emotional labour in #PPI and #co-production. Great to see @louca-mai.bsky.social will be speaking about this next month.
It’s labour that is not recognised, costed or valued - yet it’s essential
It’s labour that is not recognised, costed or valued - yet it’s essential
Reposted by Holly Schofield
So pleased to see this adapted version of the #EQ5D for people with a #LearningDisability we began this work in 2014 & @johnodwyer.bsky.social made it happen.
If research is going to be inclusive we need to think about #Inclusion at every step, design, process, recruitment, measures
rdcu.be/d0YUL
If research is going to be inclusive we need to think about #Inclusion at every step, design, process, recruitment, measures
rdcu.be/d0YUL
Adapting the EQ-5D-3L for adults with mild to moderate learning disabilities | Health and Quality of Life Outcomes
rdcu.be
November 21, 2024 at 9:54 AM
So pleased to see this adapted version of the #EQ5D for people with a #LearningDisability we began this work in 2014 & @johnodwyer.bsky.social made it happen.
If research is going to be inclusive we need to think about #Inclusion at every step, design, process, recruitment, measures
rdcu.be/d0YUL
If research is going to be inclusive we need to think about #Inclusion at every step, design, process, recruitment, measures
rdcu.be/d0YUL
Reposted by Holly Schofield
I've started a second University of Leeds starterpack! go.bsky.app/HUKJ7bK
November 21, 2024 at 9:52 AM
I've started a second University of Leeds starterpack! go.bsky.app/HUKJ7bK
Reposted by Holly Schofield
November 19, 2024 at 8:09 PM
Just a few autumn pics to brighten up your feed 🍂
November 20, 2024 at 5:15 PM
Just a few autumn pics to brighten up your feed 🍂
Starter pack on #PublicInvolvement #PPI #PPIE #Coproduction and #ParticipatoryResearch.
Kindly put together by @louca-mai.bsky.social 🌟
Kindly put together by @louca-mai.bsky.social 🌟
November 20, 2024 at 5:01 PM
Starter pack on #PublicInvolvement #PPI #PPIE #Coproduction and #ParticipatoryResearch.
Kindly put together by @louca-mai.bsky.social 🌟
Kindly put together by @louca-mai.bsky.social 🌟
Reposted by Holly Schofield
First post on Bluesky. I’ve made a film. It’s going to be screened @leedsunimedia.bsky.social in December. #aicinema
November 15, 2024 at 2:10 PM
First post on Bluesky. I’ve made a film. It’s going to be screened @leedsunimedia.bsky.social in December. #aicinema
Reposted by Holly Schofield
Over 200k people waiting (on NHS waiting lists) for an autism, surely this is the point at which something has to change.
The current models have never been sustainable and are only becoming less so.
The current models have never been sustainable and are only becoming less so.
The waiting list for NHS autism assessments has surpassed 200,000 for the first time.
Today's data shows that as of Sept 2024, 204,876 people were waiting. That's more than the population of Reading.
Children face a median wait time of a year for *first contact*.
digital.nhs.uk/data-and-inf...
Today's data shows that as of Sept 2024, 204,876 people were waiting. That's more than the population of Reading.
Children face a median wait time of a year for *first contact*.
digital.nhs.uk/data-and-inf...
Autism Statistics, October 2023 to September 2024 - NHS England Digital
Autism statistics; waiting times; autism diagnosis; autism referral; diagnostic pathways; autism; Wait between referral and first care contact for patients with suspected autism; Wait between referral...
digital.nhs.uk
November 14, 2024 at 12:19 PM
Over 200k people waiting (on NHS waiting lists) for an autism, surely this is the point at which something has to change.
The current models have never been sustainable and are only becoming less so.
The current models have never been sustainable and are only becoming less so.
Great to get so many new follows from health researchers here on Bluesky! But I hope you’ve actually left X—because if you still have an account, you're supporting Elon Musk, who continues to back Trump. We all have a moral duty to choose platforms that reflect our values 🌍💙 #LeaveX #HealthResearch
November 6, 2024 at 2:21 PM
Great to get so many new follows from health researchers here on Bluesky! But I hope you’ve actually left X—because if you still have an account, you're supporting Elon Musk, who continues to back Trump. We all have a moral duty to choose platforms that reflect our values 🌍💙 #LeaveX #HealthResearch
Reposted by Holly Schofield
New blogpost on the 'invisible labour' of #PublicInvolvement for @nihrarcs.bsky.social based on a recent paper by me and Stan Papoulias: arc-sl.nihr.ac.uk/news-insight...
November 1, 2024 at 8:12 AM
New blogpost on the 'invisible labour' of #PublicInvolvement for @nihrarcs.bsky.social based on a recent paper by me and Stan Papoulias: arc-sl.nihr.ac.uk/news-insight...
Reposted by Holly Schofield
Do you know what happens at the end of a clinical trial?
Once we've collected all the info we need, we analyse this data. This allows us to find out:
📈 How effective a treatment is
🚨 How safe it is
🤢 If there are side effects
⚖️ Whether it is better than the current treatment or placebo
Once we've collected all the info we need, we analyse this data. This allows us to find out:
📈 How effective a treatment is
🚨 How safe it is
🤢 If there are side effects
⚖️ Whether it is better than the current treatment or placebo
October 24, 2024 at 9:44 AM
Do you know what happens at the end of a clinical trial?
Once we've collected all the info we need, we analyse this data. This allows us to find out:
📈 How effective a treatment is
🚨 How safe it is
🤢 If there are side effects
⚖️ Whether it is better than the current treatment or placebo
Once we've collected all the info we need, we analyse this data. This allows us to find out:
📈 How effective a treatment is
🚨 How safe it is
🤢 If there are side effects
⚖️ Whether it is better than the current treatment or placebo
Reposted by Holly Schofield
🆕This new diagram explains how young people can get involved in research.
Co-designed by our amazing public contributor @louiseting.bsky.social and our Young People's Advisory Group, we hope it helps young people understand the contribution they can make.
bit.ly/3C7oTW4
Co-designed by our amazing public contributor @louiseting.bsky.social and our Young People's Advisory Group, we hope it helps young people understand the contribution they can make.
bit.ly/3C7oTW4
October 23, 2024 at 8:45 AM
🆕This new diagram explains how young people can get involved in research.
Co-designed by our amazing public contributor @louiseting.bsky.social and our Young People's Advisory Group, we hope it helps young people understand the contribution they can make.
bit.ly/3C7oTW4
Co-designed by our amazing public contributor @louiseting.bsky.social and our Young People's Advisory Group, we hope it helps young people understand the contribution they can make.
bit.ly/3C7oTW4
Reposted by Holly Schofield
Thinking about involving public contributors in your
#qualitative data analysis? You will need to:
➡️identify their learning needs
➡️send out materials in advance
➡️be responsive to their needs
➡️read AliceMoult's paper on how her team did it!
#PPI
News tinyurl.com/2rt6ucz8
Paper tinyurl.com/28wr3usf
#qualitative data analysis? You will need to:
➡️identify their learning needs
➡️send out materials in advance
➡️be responsive to their needs
➡️read AliceMoult's paper on how her team did it!
#PPI
News tinyurl.com/2rt6ucz8
Paper tinyurl.com/28wr3usf
Involving public contributors in qualitative data analysis - ARC West
Researchers working on the Personalised primary care for patients with multiple long-term conditions study successfully involved public contributors in analysing data obtained during interviews with s...
tinyurl.com
October 7, 2024 at 2:05 PM
Thinking about involving public contributors in your
#qualitative data analysis? You will need to:
➡️identify their learning needs
➡️send out materials in advance
➡️be responsive to their needs
➡️read AliceMoult's paper on how her team did it!
#PPI
News tinyurl.com/2rt6ucz8
Paper tinyurl.com/28wr3usf
#qualitative data analysis? You will need to:
➡️identify their learning needs
➡️send out materials in advance
➡️be responsive to their needs
➡️read AliceMoult's paper on how her team did it!
#PPI
News tinyurl.com/2rt6ucz8
Paper tinyurl.com/28wr3usf
Last Thursday wrapped up the ICTMC conference in Edinburgh. I had the opportunity to present two posters on PPIE, which sparked some great conversations and meaningful discussions.
#ICTMC2024 #ICTMC #Edinburgh #PPIE #ClinicalTrials
#ICTMC2024 #ICTMC #Edinburgh #PPIE #ClinicalTrials
October 8, 2024 at 11:59 AM
Last Thursday wrapped up the ICTMC conference in Edinburgh. I had the opportunity to present two posters on PPIE, which sparked some great conversations and meaningful discussions.
#ICTMC2024 #ICTMC #Edinburgh #PPIE #ClinicalTrials
#ICTMC2024 #ICTMC #Edinburgh #PPIE #ClinicalTrials
Reposted by Holly Schofield
Jama summit : is the clinical trial enterprise broken? #ictmc2024 lots of food for thought. We need to conduct better and more impactful research. Efficient designs, core outcome sets, patient and staff involvement, implementation science - all discussed as solutions.
October 2, 2024 at 1:43 PM
Jama summit : is the clinical trial enterprise broken? #ictmc2024 lots of food for thought. We need to conduct better and more impactful research. Efficient designs, core outcome sets, patient and staff involvement, implementation science - all discussed as solutions.
Reposted by Holly Schofield
“The [autism is a] superpower myth is damaging because it overlooks the humanity of neurodivergent individuals. We are not mutant X-Men somehow endowed with special powers. Like everyone, we deserve empathy, humanity and understanding." -Rebecca Brenner Graham:
www.salon.com/2024/09/22/a...
www.salon.com/2024/09/22/a...
Autistic people are tired of fetishization
Stereotypes about autism, whether positive or negative, take their toll on people
www.salon.com
September 23, 2024 at 5:20 AM
“The [autism is a] superpower myth is damaging because it overlooks the humanity of neurodivergent individuals. We are not mutant X-Men somehow endowed with special powers. Like everyone, we deserve empathy, humanity and understanding." -Rebecca Brenner Graham:
www.salon.com/2024/09/22/a...
www.salon.com/2024/09/22/a...
Reposted by Holly Schofield
Important blog post from @nihr.bsky.social on the continuing underreporting of #PPI in #research publications. Thanks to @bmj.com who asked us to expand on the PPI in our last publication! We must report the learnings when PPI works and when it doesn't! www.linkedin.com/pulse/report...
Reporting PPI in research publications is the exception and not the rule
Kevin J Munro is Programme Director of NIHR's Research for Patient Benefit Programme (RfPB), Dr Jennie Hejdenberg is Assistant Director of RfPB. Dominique Capostagno is a Senior Programme Analyst at N...
www.linkedin.com
September 22, 2024 at 7:17 PM
Important blog post from @nihr.bsky.social on the continuing underreporting of #PPI in #research publications. Thanks to @bmj.com who asked us to expand on the PPI in our last publication! We must report the learnings when PPI works and when it doesn't! www.linkedin.com/pulse/report...