Cathy Sergi
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cjsergi9.bsky.social
Cathy Sergi
@cjsergi9.bsky.social
30 followers 52 following 5 posts
M.E. Dx 2015. Since 2016 no longer able to work as a teacher due to this life-changing debilitating illness 😔Need a wheelchair if I do manage to go out. 95% housebound.
Still love music, films, TV & having a laugh. And 😺
Infrequent but interested 🦋user
Posts Replies Media Videos
cjsergi9.bsky.social
Pls take a minute to vote for Invest in ME Research & help them receive a share of £500,000 in grants at MyGivingCircle.org.
Every vote counts, so let's rally together & make an impact. It’s free to vote so go on… pls
🙏🏻
mygivingcircle.org/invest-in-me...

#pwME #MECFS
Vote for the charities you love to share $500,000
Each year MyGivingCircle gives $1,500,000
MyGivingCircle.org
January 5, 2025 at 11:56 AM
Reposted by Cathy Sergi
tomkindlon.bsky.social
Coping Over Christmas
chronicpain.ie/information-...

Written by a chronic pain group but relevant for anyone who needs to pace their activities.

#ChronicPain #LongCovid #MEcfs
Chronic Pain at Christmas Christmas can be especially challenging for those managing chronic pain. It's crucial to: Pace Yourself: Plan ahead and make decisions that minimize stress and physical demands. Communicate with Confidence: Have a prepared one-liner if you need to set boundaries or say no, e.g., "I'm taking a short rest now so that I'm able to take part again later. Thanks for your understanding." < Chronic Pain Ireland
December 22, 2024 at 2:03 AM
cjsergi9.bsky.social
Please vote for free for the small volunteer-run charity INVEST in ME RESEARCH & help them receive a share of £300,000 in grants at MyGivingCircle.org at the end of the year. Every vote counts, no pressure to donate #VoteForImpact #MECFS #pwME
mygivingcircle.org/invest-in-me...
December 22, 2024 at 11:55 AM
cjsergi9.bsky.social
#MECFS #PwME
Pls vote for Invest in ME Research at MyGivingCircle.org
It’s free to vote & will help Invest in ME Research win a share of £300,000 in grants.
It’s easy! This is the page you get to when you click on this link:

mygivingcircle.org/invest-in-me...
December 1, 2024 at 10:44 AM
Reposted by Cathy Sergi
meactnet.bsky.social
This #SmallBusinessSaturday, we are excited to share new items in our store!

We have a new design, Strength in Community, featuring our logo in a heart!

We also have a new item- joggers! Our #MillionsMissing & #StillSickStillFighting are also available! www.bonfire.com/store/meacti...

#pwME
Square image that features 9 squares with images of clothing. The top 3 squares feature sweatshirts with different sayings, strength in community in red, still sick still fighting in navy, and #MillionsMissing in black. The 2nd row of squares feature the strength in community design, small business Saturday, and #MEAction logo in a heart. The 3rd row features jogger pants with different sayings, the meaction logo in a heart in red, still sick still fighting in navy & #MillionsMissing in black.
November 30, 2024 at 7:22 PM
Reposted by Cathy Sergi
rfh1955.bsky.social
The Calgary Herald, Canada. 30th November 1996. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 30, 2024 at 6:22 PM
Reposted by Cathy Sergi
me-cfs.bsky.social
The We&Me foundation is funding a large healthcare study in people with #MECFS and #PAIS (including #LongCOVID). The larger the sample size, the better, so fill it in if energy permits and share.

s2survey.net/pais/index.p...

[It’s quite long but it lets you pause; better to open in browser]
Questionnaire | page 1
s2survey.net
November 17, 2024 at 4:29 PM
Reposted by Cathy Sergi
colleensteckel.bsky.social
I wrote an article to help people with #MyalgicEncephalomyelitis connect on Bluesky. Feel free to share. (My Substack is free)

open.substack.com/pub/colleens...
Connecting via Bluesky
Building a stronger ME community
open.substack.com
November 16, 2024 at 9:01 PM
Reposted by Cathy Sergi
cabruce.bsky.social
Very helpful article especially for #ME #LongCovid people testing the water here. 👇
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · Nov 13
Discover the ins & outs of navigating the vibrant community of Bluesky. From accessibility to finding your tribe. This guide has you covered.

🧵adapted to an article so it can be easily shared with individuals & across platforms.

⏳5 min read
www.longcovidadvoc.com/post/navigat...
Navigating the Bluesky 101
Discover the ins and outs of navigating the vibrant community of Bluesky. From accessibility to finding your tribe, this guide has got you covered!
www.longcovidadvoc.com
November 13, 2024 at 12:53 PM
cjsergi9.bsky.social
Thanks for sharing this Carole, so helpful! 👍🏻👏🏻 x
cabruce.bsky.social Carole Bruce @cabruce.bsky.social · Nov 13
Very helpful article especially for #ME #LongCovid people testing the water here. 👇
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · Nov 13
Discover the ins & outs of navigating the vibrant community of Bluesky. From accessibility to finding your tribe. This guide has you covered.

🧵adapted to an article so it can be easily shared with individuals & across platforms.

⏳5 min read
www.longcovidadvoc.com/post/navigat...
November 17, 2024 at 1:46 PM
Reposted by Cathy Sergi
physiosforme.bsky.social
👀 👀 have a look at how you can help improve physiotherapy education
michelleb4.bsky.social DrMichelleBull💙 @michelleb4.bsky.social · Nov 14
There is a survey on improving physiotherapy education, with opportunity for service users to input.

Follow this link, click "complete a survey", and scroll to "Charities and Patient Groups- Patient Advocates"

A great opportunity to be heard!

www.csp.org.uk/networks/hig...
Transforming Quality in Pre-Registration Physiotherapy Education
www.csp.org.uk
November 14, 2024 at 8:54 PM
Reposted by Cathy Sergi
paulkeeble.co.uk
The 250,000 figure for ME sufferers is now ancient, from research done in the 1980s. There are 750,000 - 1.2 million ME patients in the UK from recent research. Funding wise the only biological research I can find since 2000 is decodeME@3.9mil, making it about 13p per patient a year.
October 21, 2024 at 12:42 PM
Reposted by Cathy Sergi
tomkindlon.bsky.social
Earlier, ME Research UK highlighted that there are major limitations of taking existing prevalence estimates and applying them to the UK population in 2024. The next article in this series explains why this is the case in more detail:

www.meresearch.org.uk/what-are-the...

#MEcfs #CFS #PwME
Why might existing ME/CFS prevalence estimates not apply to the UK population today? Rates of ME/CFS differ by factors including age, Different ethnicity, and sex. If populations differ in terms of these populations factors, rates of ME/CFS are not directly comparable e.g. between studies, areas of a country, or across countries. The impact of COVID-19 and long COVID Different methods • Medical records: only captures those accessing health care, accuracy can vary. • Self-report: Whilst people who self-report may indeed have the disease, it is important to remember that this may not always be the case e.g., due to misdiagnosis. Application of diagnostic criteria: Differences between ME/CFS criteria limit comparability e.g., Fukuda for "CFS" does not require post exertional malaise while Canadian Consensus Criteria for "ME/CFS" does. • Research suggests that the symptoms of long COVID and ME/CFS overlap - and evidence from the USA has suggested that the number of people self-reporting symptoms of ME/CFS has increased since the COVID-19 pandemic. Nevertheless, not everyone with long COVID meets the diagnostic criteria for ME/CFS. INFORM. INFLUENCE. INVEST. SC036942 ME RESEARCH UK
October 31, 2024 at 5:05 PM
Reposted by Cathy Sergi
tomkindlon.bsky.social
It's been great to see the influx of people from the ME/CFS and long Covid community in the last week.

Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...

It lists interesting people to follow and also has a feed

#MEcfs #CFS #PwME #LongCovid

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October 20, 2024 at 11:19 PM
Reposted by Cathy Sergi
midcatecrisis.bsky.social
Please take the time to sign this - one link for USians and one link for the rest of us.
meactnet.bsky.social #MEAction Network @meactnet.bsky.social · Nov 14
The last day to sign our letter to the NIH calling on the director to fund the ME/CFS Research Roadmap is this Friday, Nov. 15th!

US signers: bit.ly/FundRoadmapUS

International signers: bit.ly/FundRoadmapG...

It will take all of us to show that we are united!

#PwME #MECFS #LongCovid
Black square with white text and red accents. Text: NIH, fund the ME/CFS Research Roadmap! Deadline to sign 11/15/24.
November 15, 2024 at 5:32 PM
Reposted by Cathy Sergi
sunsopeningband.bsky.social
Just a gentle reminder that fear of movement doesn’t correlate with cardiopulmonary exercise test results in people with ME/CFS. The cause of exercise/physical activity intolerance in living with PEM/PENE isn’t that they are afraid to move. A 20-year-old study. pubmed.ncbi.nlm.nih.gov/15283620/
Chronic fatigue syndrome: lack of association between pain-related fear of movement and exercise capacity and disability - PubMed
These results indicate a lack of correlation between kinesiophobia and exercise capacity, activity limitations, or participation restrictions, at least in patients with CFS who are experiencing widesp...
pubmed.ncbi.nlm.nih.gov
November 17, 2024 at 1:10 AM
Reposted by Cathy Sergi
gvnett.bsky.social
There are not enough words to describe life with a chronic illness. #notjusttired #mecfs #longcovid
Plain white background with the words Bausted- language of the chronics- to the exist in a state so far beyond exhausted that you cannot be compared to someone who is just tired.
November 17, 2024 at 1:03 AM
Reposted by Cathy Sergi
andrewgiffordphoto.bsky.social
Mike Harley runs marathons to raise funds for ME research.

A well good human. Def worth a follow! :)
mikeseumarathons.bsky.social Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Nov 16
Thanks for following if you don't know me.

I've just passed the 10 year anniversary of when I began running marathons for ME research.

I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet

🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪
November 17, 2024 at 12:45 PM
Reposted by Cathy Sergi
annakwood.bsky.social
Lovely people of bluesky - if you are looking for gifts this season, my book - 25 birds, one year one garden is reduced on Amazon!

All profits to biomedical research (#mecfs)
#ukbirding

25 Birds amzn.eu/d/cxOGiEg
25 Birds : Wood, Anna K: Amazon.co.uk: Books
25 Birds : Wood, Anna K: Amazon.co.uk: Books
amzn.eu
November 15, 2024 at 1:16 PM
Reposted by Cathy Sergi
investinmeresearch.bsky.social
We have been here a while
From Broken Wings to (hopefully) Clearer Skies
www.investinme.org/iimer-newsle...
November 19, 2024 at 5:41 PM