@carolecoulter.bsky.social
Mom trying to make sense of it all....Long Covid, ME/CFS, CCI, EDS, MCAS, POTS.
Reposted
We know lots of you have been asking 3M for a Black Aura - like mask for consumer use.
Today we're excited to launch a new product to fill that hole in the market!
Introducing the headband version of BreatheTeq KN95.
Available in black and white.
Today we're excited to launch a new product to fill that hole in the market!
Introducing the headband version of BreatheTeq KN95.
Available in black and white.
November 6, 2025 at 1:05 AM
We know lots of you have been asking 3M for a Black Aura - like mask for consumer use.
Today we're excited to launch a new product to fill that hole in the market!
Introducing the headband version of BreatheTeq KN95.
Available in black and white.
Today we're excited to launch a new product to fill that hole in the market!
Introducing the headband version of BreatheTeq KN95.
Available in black and white.
Reposted
How do we love what we can't save — a planet, or a body?
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
Two Systems in Collapse
What illness can teach us about responding to climate change
jrehmeyer.substack.com
October 30, 2025 at 3:47 PM
How do we love what we can't save — a planet, or a body?
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
@zingermans.bsky.social I totally think you could do this in A2 and the surrounding Detroit metro area.
The people yearn for (democratic) socialism (this one will make you cry)
October 31, 2025 at 11:13 AM
@zingermans.bsky.social I totally think you could do this in A2 and the surrounding Detroit metro area.
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The updated COVID/histamine link thread because people keep tagging me in to explain it and I keep intending to update the post from 2023 (synecdochic.dreamwidth.org/805203.html) and just not having the capacity because of my own health shit so here is a thread I can pin
Captcha Check
synecdochic.dreamwidth.org
September 21, 2025 at 9:10 PM
The updated COVID/histamine link thread because people keep tagging me in to explain it and I keep intending to update the post from 2023 (synecdochic.dreamwidth.org/805203.html) and just not having the capacity because of my own health shit so here is a thread I can pin
Reposted
Disabled people are particularly vulnerable to abuse under fascism.
ICE has been neglecting the medical needs of detainees.
One disabled immigrant, Rodney Taylor, needs our help.
He's a double amputee who's been in the country since he was two years old. He's being held in solitary:
ICE has been neglecting the medical needs of detainees.
One disabled immigrant, Rodney Taylor, needs our help.
He's a double amputee who's been in the country since he was two years old. He's being held in solitary:
Help Rodney Taylor, a Disabled Double Amputee Being Held by ICE
Rodney has been in the country more than 40 years. He's in solitary confinement in Georgia, being denied disability accommodations and having his medical needs ignored. He must be released.
www.disabledginger.com
September 27, 2025 at 11:46 PM
Disabled people are particularly vulnerable to abuse under fascism.
ICE has been neglecting the medical needs of detainees.
One disabled immigrant, Rodney Taylor, needs our help.
He's a double amputee who's been in the country since he was two years old. He's being held in solitary:
ICE has been neglecting the medical needs of detainees.
One disabled immigrant, Rodney Taylor, needs our help.
He's a double amputee who's been in the country since he was two years old. He's being held in solitary:
Reposted
Just a reminder to check for your name in this list of books that OpenAI trained from. If your name is there, they probably owe you several thousand dollars.
OpenAI cried that if everyone eligible author files, the company will go bankrupt, so I'm alerting every author I have ever spoken to.
OpenAI cried that if everyone eligible author files, the company will go bankrupt, so I'm alerting every author I have ever spoken to.
Search LibGen, the Pirated-Books Database That Meta Used to Train AI
Millions of books and scientific papers are captured in the collection’s current iteration.
www.theatlantic.com
September 6, 2025 at 6:31 AM
Just a reminder to check for your name in this list of books that OpenAI trained from. If your name is there, they probably owe you several thousand dollars.
OpenAI cried that if everyone eligible author files, the company will go bankrupt, so I'm alerting every author I have ever spoken to.
OpenAI cried that if everyone eligible author files, the company will go bankrupt, so I'm alerting every author I have ever spoken to.
Reposted
There’s a special kind of grief that chronically ill and disabled folks know of watching huge parts of life pass by while your body, try as it might, simply hurts too much or is too exhausted or dysregulated to do a single thing except try to stay alive from one moment to the next.
July 24, 2025 at 3:08 PM
There’s a special kind of grief that chronically ill and disabled folks know of watching huge parts of life pass by while your body, try as it might, simply hurts too much or is too exhausted or dysregulated to do a single thing except try to stay alive from one moment to the next.
Reposted
NEW: Some #LongCOVID and #ME specialists have raised their rates to as high as $8.5k a month, making care even less accessible. Providers say insurance companies are to blame. Contributor @brittashoot.com reports for @thesicktimes.bsky.social.
thesicktimes.org/2025/07/01/p...
thesicktimes.org/2025/07/01/p...
Priced out: Some Long COVID and ME specialists charge high prices for concierge care - The Sick Times
One specialist is charging up to $8,500 a month. But the providers say insurance companies are to blame. Key points you should know: Prominent specialists treating complex infection-associated chronic...
thesicktimes.org
July 1, 2025 at 4:56 PM
NEW: Some #LongCOVID and #ME specialists have raised their rates to as high as $8.5k a month, making care even less accessible. Providers say insurance companies are to blame. Contributor @brittashoot.com reports for @thesicktimes.bsky.social.
thesicktimes.org/2025/07/01/p...
thesicktimes.org/2025/07/01/p...
Reposted
I really need to figure out the right way to get this poem tattooed on me because it has gotten me out of the hole that is not my grave entirely too many times and I think everyone needs to read it this week billmoyers.com/story/poetry...
Poetry Month: WHAT RESEMBLES THE GRAVE BUT ISN’T - BillMoyers
Always falling into a hole, then saying “ok, this is not your grave, get out of this hole,” getting out of the hole which is not the grave...
billmoyers.com
June 28, 2025 at 4:09 AM
I really need to figure out the right way to get this poem tattooed on me because it has gotten me out of the hole that is not my grave entirely too many times and I think everyone needs to read it this week billmoyers.com/story/poetry...
Reposted
Worked hard on this, and I hope it will be a useful resource for many.
A beginner’s guide to Long COVID, with a discussion of mechanisms:
www.thegauntlet.news/p/what-is-lo...
A beginner’s guide to Long COVID, with a discussion of mechanisms:
www.thegauntlet.news/p/what-is-lo...
What is Long COVID?
A Beginner's Guide
www.thegauntlet.news
February 7, 2025 at 8:59 PM
Worked hard on this, and I hope it will be a useful resource for many.
A beginner’s guide to Long COVID, with a discussion of mechanisms:
www.thegauntlet.news/p/what-is-lo...
A beginner’s guide to Long COVID, with a discussion of mechanisms:
www.thegauntlet.news/p/what-is-lo...
@costplusdrugs.com Is your website experiencing difficulties right now? Can't log in.
June 12, 2025 at 7:48 PM
@costplusdrugs.com Is your website experiencing difficulties right now? Can't log in.
Reposted
📽️“Chronically Ignored”
I really can't recommend this film highly enough
to #pwME #ME #LongCovid, Researcher, Dr, HCP & Policy Maker, it's essential viewing
Immense gratitude to @sibylledahrendorf.bsky.social
for all her incredible hard work & everyone who took part
💙
vimeo.com/ondemand/chr...
I really can't recommend this film highly enough
to #pwME #ME #LongCovid, Researcher, Dr, HCP & Policy Maker, it's essential viewing
Immense gratitude to @sibylledahrendorf.bsky.social
for all her incredible hard work & everyone who took part
💙
vimeo.com/ondemand/chr...
Watch Chronically Ignored Online | Vimeo On Demand
The medical term myalgic encephalomyelitis/chronic fatigue syndrome – in short ME/CFS – refers to a multi-systemic disease with devastating effects:…
vimeo.com
June 8, 2025 at 10:26 AM
📽️“Chronically Ignored”
I really can't recommend this film highly enough
to #pwME #ME #LongCovid, Researcher, Dr, HCP & Policy Maker, it's essential viewing
Immense gratitude to @sibylledahrendorf.bsky.social
for all her incredible hard work & everyone who took part
💙
vimeo.com/ondemand/chr...
I really can't recommend this film highly enough
to #pwME #ME #LongCovid, Researcher, Dr, HCP & Policy Maker, it's essential viewing
Immense gratitude to @sibylledahrendorf.bsky.social
for all her incredible hard work & everyone who took part
💙
vimeo.com/ondemand/chr...
Reposted
Mask up NOW
“A new COVID variant, known as NB.1.8.1, has made landfall in the United States, and it's more transmissible than other variants.”
www.huffpost.com/entry/the-mo...
“A new COVID variant, known as NB.1.8.1, has made landfall in the United States, and it's more transmissible than other variants.”
www.huffpost.com/entry/the-mo...
A New COVID Variant Is Here, And It's More Transmissible — Here Are The Signs And Symptoms
A new COVID variant, known as NB.1.8.1, has made landfall in the United States, and it's more transmissible than other variants.
www.huffpost.com
May 28, 2025 at 9:55 PM
Mask up NOW
“A new COVID variant, known as NB.1.8.1, has made landfall in the United States, and it's more transmissible than other variants.”
www.huffpost.com/entry/the-mo...
“A new COVID variant, known as NB.1.8.1, has made landfall in the United States, and it's more transmissible than other variants.”
www.huffpost.com/entry/the-mo...
Reposted
Another episode of Unraveled: Understanding Complex Illness just published. If you have or know someone with ME/CFS, Long Covid, POTS, MCAS, SIBO, and more you might want to take a look and even share and subscribe. Thanks.
youtu.be/_Squ0_-1kz8
youtu.be/_Squ0_-1kz8
Approach to the Complex Illness Patient
YouTube video by Unraveled: Understanding Complex Illness
youtu.be
May 31, 2025 at 2:17 AM
Another episode of Unraveled: Understanding Complex Illness just published. If you have or know someone with ME/CFS, Long Covid, POTS, MCAS, SIBO, and more you might want to take a look and even share and subscribe. Thanks.
youtu.be/_Squ0_-1kz8
youtu.be/_Squ0_-1kz8
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Under 65 years old? No Novovax COVID vaccine for you this year.
As expected, the Republicans have enabled RFK Jr. and his coterie of antivax grifters to take away your right to make your own medical decisions in consultation with your doctor.
Gift Link: www.nytimes.com/2025/05/17/h...
As expected, the Republicans have enabled RFK Jr. and his coterie of antivax grifters to take away your right to make your own medical decisions in consultation with your doctor.
Gift Link: www.nytimes.com/2025/05/17/h...
May 18, 2025 at 4:11 AM
Under 65 years old? No Novovax COVID vaccine for you this year.
As expected, the Republicans have enabled RFK Jr. and his coterie of antivax grifters to take away your right to make your own medical decisions in consultation with your doctor.
Gift Link: www.nytimes.com/2025/05/17/h...
As expected, the Republicans have enabled RFK Jr. and his coterie of antivax grifters to take away your right to make your own medical decisions in consultation with your doctor.
Gift Link: www.nytimes.com/2025/05/17/h...
omg, @broadwaybabyto.bsky.social nails it. This cannot be shared enough.
"Wellness is about denying the fundamental truth of being human. We all get sick. Our bodies are frail. We get older and things start to break down. If you live long enough, you will experience disability. There’s no way around that."
People who tell you otherwise are a threat to disabled lives
People who tell you otherwise are a threat to disabled lives
Why The New Surgeon General Pick Might Be The Most Dangerous One Yet
Wellness "Influencer" Casey Means has been selected as the next US Surgeon General, despite having an inactive medical license. Her viewpoints range from nonsensical to absurdly dangerous.
www.disabledginger.com
May 14, 2025 at 12:15 PM
omg, @broadwaybabyto.bsky.social nails it. This cannot be shared enough.
This GoFundMe is for my niece. She is an incredibly strong, independent woman, yet life can throw obstacles that require the support of many. Please take a moment to read about her condition and her needs. Donations much appreciated, yet so are thoughts of encouragement. Thanks! gofund.me/c9c902b6
Donate to Join Us in Supporting Amy's Cancer Battle, organized by Lenore Andujar
In January 2025, Amy Bradshaw, beautiful mother, daughter, granddaughter, sis… Lenore Andujar needs your support for Join Us in Supporting Amy's Cancer Battle
gofund.me
May 9, 2025 at 3:46 PM
This GoFundMe is for my niece. She is an incredibly strong, independent woman, yet life can throw obstacles that require the support of many. Please take a moment to read about her condition and her needs. Donations much appreciated, yet so are thoughts of encouragement. Thanks! gofund.me/c9c902b6
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🧠 Daily Feed of Brain Damage 🧠
With thanks to @harryspoelstra.bsky.social
onlinelibrary.wiley.com/doi/10.1111/...
With thanks to @harryspoelstra.bsky.social
onlinelibrary.wiley.com/doi/10.1111/...
Cognitive Sequelae of COVID‐19: Mechanistic Insights and Therapeutic Approaches
Post-COVID-19 neurological syndrome, marked by cognitive dysfunction, stems from mechanisms like neuroinflammation, cerebrovascular injury, and psychological stress. This review highlights pharmacolo...
onlinelibrary.wiley.com
March 31, 2025 at 9:25 AM
🧠 Daily Feed of Brain Damage 🧠
With thanks to @harryspoelstra.bsky.social
onlinelibrary.wiley.com/doi/10.1111/...
With thanks to @harryspoelstra.bsky.social
onlinelibrary.wiley.com/doi/10.1111/...
Reposted
Today is International Long COVID Awareness Day. Please take a moment to watch this video from the Long COVID Physio group.
www.youtube.com/watch?v=dmxp...
Long COVID and ME/CFS share many of the same symptoms. To all the patients and caregivers, we see you.
#mecfs #longcovid #longcovidawareness
www.youtube.com/watch?v=dmxp...
Long COVID and ME/CFS share many of the same symptoms. To all the patients and caregivers, we see you.
#mecfs #longcovid #longcovidawareness
March 15, 2025 at 2:34 PM
Today is International Long COVID Awareness Day. Please take a moment to watch this video from the Long COVID Physio group.
www.youtube.com/watch?v=dmxp...
Long COVID and ME/CFS share many of the same symptoms. To all the patients and caregivers, we see you.
#mecfs #longcovid #longcovidawareness
www.youtube.com/watch?v=dmxp...
Long COVID and ME/CFS share many of the same symptoms. To all the patients and caregivers, we see you.
#mecfs #longcovid #longcovidawareness
@biggretchenwhitmer.bsky.social You in?
I called Canadian Premiers Doug Ford and Wab Kinew today as we try to find a way through this unnecessary and costly trade war.
While the President may not value the partnerships that contribute billions of dollars to our economy, Minnesota does.
While the President may not value the partnerships that contribute billions of dollars to our economy, Minnesota does.
March 6, 2025 at 12:10 PM
@biggretchenwhitmer.bsky.social You in?
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It’s really hard for me as a disabled person to engage seriously with any of the calls to action around what’s happening bc of the very real trauma of being abandoned by the same people to fend for myself against the conditions that disabled me in the first place.
March 6, 2025 at 6:46 AM
It’s really hard for me as a disabled person to engage seriously with any of the calls to action around what’s happening bc of the very real trauma of being abandoned by the same people to fend for myself against the conditions that disabled me in the first place.
Reposted
If pubmed is inaccessible at the moment, try @europepmc.org
March 1, 2025 at 5:31 PM
If pubmed is inaccessible at the moment, try @europepmc.org
@peters.senate.gov I do not think your constituents agree with this vote. You are not running for reelection but right now you represent us.
If I were a Democrat, and I saw Trump do a purge of high-level generals who were women and people of color and wouldn't be "yes men," I wouldn't vote to advance JD Vance's college friend for Secretary of the Army.
And yet....16 Democrats just did so
And yet....16 Democrats just did so
February 25, 2025 at 10:54 AM
@peters.senate.gov I do not think your constituents agree with this vote. You are not running for reelection but right now you represent us.