Amy M. Russell
@amymrussell.bsky.social
Associate Professor Health Inequalities @UniversityLeeds #Qualitative health research to improve inclusion in research & healthcare. Working with people with a learning disability to innovate in creative methods for inclusion. https://linktr.ee/amymrussell
Delighted to see WHO Director-General Dr Tedros join us on Bluesky @drtedros.who.int
Welcome Dr Tedros!
Welcome Dr Tedros!
March 28, 2025 at 4:21 PM
Delighted to see WHO Director-General Dr Tedros join us on Bluesky @drtedros.who.int
Welcome Dr Tedros!
Welcome Dr Tedros!
Launching today ‘Creating knowledge together’ – a collection of 13 essays on the power of community engaged research, published by British Science Association. Read our essay ‘How to ethically share power with public research partners: AKA keeping blobs blobby’ and explore the full collection here:
Explore the power of community engaged research.
We've published essays amplifying voices often left out of traditional research, created with fantastic communities & organisations, sponsored by UKRI.
#CreatingKnowledgeTogether
Read here:
www.britishscienceassociation.org/News/creatin...
We've published essays amplifying voices often left out of traditional research, created with fantastic communities & organisations, sponsored by UKRI.
#CreatingKnowledgeTogether
Read here:
www.britishscienceassociation.org/News/creatin...
‘Creating knowledge together’ essay series explores power of community-engaged research
A new series of essays published by the British Science Association explores the power of community-engaged research, and the importance of bringing missing voices into the research process for the be...
www.britishscienceassociation.org
March 26, 2025 at 2:03 PM
Launching today ‘Creating knowledge together’ – a collection of 13 essays on the power of community engaged research, published by British Science Association. Read our essay ‘How to ethically share power with public research partners: AKA keeping blobs blobby’ and explore the full collection here:
Reposted by Amy M. Russell
The figures haven't changed in the past few years
1/3 🚨 The latest NHS data shows there are 2,065 people with a learning disability and/or autism in mental health hospitals.
👉 It’s time for change. Join us in campaigning for a better future. Sign up to become a Mencap campaigner, brnw.ch/21wRhxA
#HomesNotHospitals #MentalHealthActReform
👉 It’s time for change. Join us in campaigning for a better future. Sign up to become a Mencap campaigner, brnw.ch/21wRhxA
#HomesNotHospitals #MentalHealthActReform
March 13, 2025 at 12:41 PM
The figures haven't changed in the past few years
Great summary of the day by @peterlangdon.bsky.social It felt like it was one of those talks that resonated with a lot of people. Lots of break time discussion about recruitment, ethics, gatekeepers and funding. So much energy and desire for improvement gives me a kick up the bum to keep going!
We’re back again this year showcasing excellent research involving people with intellectual disabilities and autistic people taking place across the Midlands! Thank you to our partners: NHS England, ADASS, NIHR RDN East and West Midlands, Reach-Out, University of Birmingham
March 12, 2025 at 4:19 PM
Great summary of the day by @peterlangdon.bsky.social It felt like it was one of those talks that resonated with a lot of people. Lots of break time discussion about recruitment, ethics, gatekeepers and funding. So much energy and desire for improvement gives me a kick up the bum to keep going!
Reposted by Amy M. Russell
We’re back again this year showcasing excellent research involving people with intellectual disabilities and autistic people taking place across the Midlands! Thank you to our partners: NHS England, ADASS, NIHR RDN East and West Midlands, Reach-Out, University of Birmingham
March 12, 2025 at 10:07 AM
We’re back again this year showcasing excellent research involving people with intellectual disabilities and autistic people taking place across the Midlands! Thank you to our partners: NHS England, ADASS, NIHR RDN East and West Midlands, Reach-Out, University of Birmingham
Reposted by Amy M. Russell
30 Charts That Show How Covid Changed Everything (US)
30 Charts That Show How Covid Changed Everything in March 2020 (Gift Article)
It can be easy to forget, or look away from, the pain and disruption of the pandemic. The numbers will be there to remind us.
www.nytimes.com
March 11, 2025 at 6:20 PM
30 Charts That Show How Covid Changed Everything (US)
Reposted by Amy M. Russell
Reposted by Amy M. Russell
How should you respond to a regime that has disregard for health and wellbeing, ignores the central role of inequalities in poor health outcomes, and believes science and scholarship to be enemies of progress?
@kamranabbasi.bsky.social in the latest Editor's Choice
www.bmj.com/content/388/...
@kamranabbasi.bsky.social in the latest Editor's Choice
www.bmj.com/content/388/...
February 16, 2025 at 6:43 PM
How should you respond to a regime that has disregard for health and wellbeing, ignores the central role of inequalities in poor health outcomes, and believes science and scholarship to be enemies of progress?
@kamranabbasi.bsky.social in the latest Editor's Choice
www.bmj.com/content/388/...
@kamranabbasi.bsky.social in the latest Editor's Choice
www.bmj.com/content/388/...
Gary Boulet and I are the keynotes today for the Midlands Learning Disability and Autism Research event. Our talk is on the contribution people with learning disabilities make to research; as participants, advisors & as research leaders.
March 12, 2025 at 6:08 AM
Gary Boulet and I are the keynotes today for the Midlands Learning Disability and Autism Research event. Our talk is on the contribution people with learning disabilities make to research; as participants, advisors & as research leaders.
Reposted by Amy M. Russell
Great write up at @thetransmitter.bsky.social on the seeming erasure of SABV in the new era of NIH. Gotta say The Transmitter is killing it the last few weeks, first to report on the Federal Register block and now this. Leading the charge! 💪 www.thetransmitter.org/policy/exclu...
Exclusive: NIH appears to archive policy requiring female animals in studies
Such a shift would “put us back in the dark ages in terms of our science,” says neuroscientist Anne Murphy, who helped to formulate the original policy.
www.thetransmitter.org
February 25, 2025 at 1:14 AM
Great write up at @thetransmitter.bsky.social on the seeming erasure of SABV in the new era of NIH. Gotta say The Transmitter is killing it the last few weeks, first to report on the Federal Register block and now this. Leading the charge! 💪 www.thetransmitter.org/policy/exclu...
Reposted by Amy M. Russell
Why is measles such a big deal? Here's why:
February 25, 2025 at 4:53 PM
Why is measles such a big deal? Here's why:
Reposted by Amy M. Russell
"Amanda Jones, a librarian in Louisiana, has received death threats since speaking out against book bans. She was labelled a paedophile and filmed by strangers in public. She fears going out alone. “I can name a librarian in every state this has happened to — and I fear it’s only going to get worse”
I am the ‘Michael Jordan of book banning’. This is why I do it
Bruce Friedman has challenged 1,200 books since the pandemic, alarming free speech advocates — and librarians who face death threats
www.thetimes.com
February 19, 2025 at 12:54 AM
"Amanda Jones, a librarian in Louisiana, has received death threats since speaking out against book bans. She was labelled a paedophile and filmed by strangers in public. She fears going out alone. “I can name a librarian in every state this has happened to — and I fear it’s only going to get worse”
Reposted by Amy M. Russell
More to add to the trial methodology starter pack @amymrussell.bsky.social (and lots to follow here @trialforge.bsky.social @streweek.bsky.social) in not already!
I’ve done a starter pack for people working in inclusivity in trial methodology but I can’t see some of the key people I’d like to include. Feel free to share
@vickylshepherd.bsky.social
@katiegillies.bsky.social
@markjayes.bsky.social
@kerryhood.bsky.social
@willjcragg.bsky.social
@vickylshepherd.bsky.social
@katiegillies.bsky.social
@markjayes.bsky.social
@kerryhood.bsky.social
@willjcragg.bsky.social
February 19, 2025 at 4:51 PM
More to add to the trial methodology starter pack @amymrussell.bsky.social (and lots to follow here @trialforge.bsky.social @streweek.bsky.social) in not already!
Reposted by Amy M. Russell
One of our supporters shared this with us—people are getting creative tonight!
February 14, 2025 at 4:25 AM
One of our supporters shared this with us—people are getting creative tonight!
Reposted by Amy M. Russell
Currently low response rates from CTU Directors (n=5), Programmers/Data Managers (n=0), & QA Managers (n=3) working in clinical trials. We need to know what these groups think the challenges are for greener trials.
forms.office.com/e/fkeLD8HbMA
Please complete &RT
@ukctunetwork.bsky.social
forms.office.com/e/fkeLD8HbMA
Please complete &RT
@ukctunetwork.bsky.social
February 12, 2025 at 8:59 AM
Currently low response rates from CTU Directors (n=5), Programmers/Data Managers (n=0), & QA Managers (n=3) working in clinical trials. We need to know what these groups think the challenges are for greener trials.
forms.office.com/e/fkeLD8HbMA
Please complete &RT
@ukctunetwork.bsky.social
forms.office.com/e/fkeLD8HbMA
Please complete &RT
@ukctunetwork.bsky.social
Reposted by Amy M. Russell
This is just so cruel. My wife works at a school attended by many kids with disabilities, and one of my daughters is neurodivergent. I am at a loss for words. This state just keeps disappointing me.
Utah is among the states suing for the right to discriminate against disabled people & that your disabled child can be discriminated against in school in school
"The lawsuit says that no one should have to follow any part of Section 504"
Call Governor Cox & the Atty General 801 366-0260 #utpol
"The lawsuit says that no one should have to follow any part of Section 504"
Call Governor Cox & the Atty General 801 366-0260 #utpol
February 11, 2025 at 3:20 PM
This is just so cruel. My wife works at a school attended by many kids with disabilities, and one of my daughters is neurodivergent. I am at a loss for words. This state just keeps disappointing me.
Reposted by Amy M. Russell
"It’s particularly egregious as a women’s health product to be deceiving about what it can and can't do and could prevent women from getting proper treatment."
#FemTech #WomensHealth #COI #CDoH
www.forbes.com/sites/cyrusf...
#FemTech #WomensHealth #COI #CDoH
www.forbes.com/sites/cyrusf...
Procter & Gamble’s Menopause Test Kit Is A ‘Fraud,’ Lawsuit Claims
A urine stick test isn’t the best way to determine a woman’s menopausal status.
www.forbes.com
February 7, 2025 at 6:14 AM
"It’s particularly egregious as a women’s health product to be deceiving about what it can and can't do and could prevent women from getting proper treatment."
#FemTech #WomensHealth #COI #CDoH
www.forbes.com/sites/cyrusf...
#FemTech #WomensHealth #COI #CDoH
www.forbes.com/sites/cyrusf...
Let deregulate children catching fire and botulism. It doesn’t sound like unnecessary red tape when you look at it that way…
We had a house fire once. This makes my blood run cold.
Let’s deregulate the flammability of children’s pyjamas to improve growth says @economist.com
www.economist.com/leaders/2025...
www.economist.com/leaders/2025...
February 2, 2025 at 8:28 AM
Let deregulate children catching fire and botulism. It doesn’t sound like unnecessary red tape when you look at it that way…
On the 5 year anniversary of the shambles that half the country didn't want and now its hard to find anyone who still thinks it was a good idea I felt this was worth a repost #brexit
Pity Farage wasn’t asked about this - he should be forced to own it @bbclaurak.bsky.social @theneweuropean.bsky.social
January 31, 2025 at 11:49 AM
On the 5 year anniversary of the shambles that half the country didn't want and now its hard to find anyone who still thinks it was a good idea I felt this was worth a repost #brexit
Reposted by Amy M. Russell
How can anyone in their right mind ignore this letter from Caroline Kennedy about her cousin, RFK Jr.?
January 29, 2025 at 3:10 AM
How can anyone in their right mind ignore this letter from Caroline Kennedy about her cousin, RFK Jr.?
I did not see this one coming
Did you have ‘exacerbation of antimicrobial resistance’ on your Gaza bingo card? If not, add it. #medsky
Wars accelerate AMR by disrupting healthcare, increasing antibiotic misuse, and poor sanitation. Combating this requires rebuilding healthcare systems, regulating antibiotic use, improving sanitation, and ensuring access to vaccines and clean water.
www.medicalrepublic.com.au/every-blast-...
www.medicalrepublic.com.au/every-blast-...
January 28, 2025 at 1:58 PM
I did not see this one coming
Reposted by Amy M. Russell
Really feeling for US colleagues and students and knowledge and society right now...
This fellowship was announced one week and taken down the next. The number of funding and job opportunities for graduate students being eliminated right now is staggering.
UPDATE: We have been informed that funding is no longer available for the Latino Studies Program Dissertation Completion Fellowship. We deeply apologize for any inconveniences.
January 27, 2025 at 9:07 PM
Really feeling for US colleagues and students and knowledge and society right now...
Reposted by Amy M. Russell
I think some people hear “grants” and think that without them, scientists and government workers just have less stuff to play with at work. But grants fund salaries for students, academics, researchers, and people who work in all areas of public service.
“Pausing” grants means people don’t eat.
“Pausing” grants means people don’t eat.
White House pauses all federal grants, sparking confusion
The Trump administration has put a hold on all federal financial grants and loans, affecting tens of billions of dollars in payments.
www.washingtonpost.com
January 28, 2025 at 3:03 AM
I think some people hear “grants” and think that without them, scientists and government workers just have less stuff to play with at work. But grants fund salaries for students, academics, researchers, and people who work in all areas of public service.
“Pausing” grants means people don’t eat.
“Pausing” grants means people don’t eat.
Reposted by Amy M. Russell
Trump Reinstated the Global Gag Rule. Here’s What’s at Stake.
Trump Reinstated the Global Gag Rule. Here’s What’s at Stake.
In his first term, Trump oversaw an unprecedented expansion of the gag rule. Its reinstatement could decimate global reproductive and sexual health.
rewirenewsgroup.com
January 25, 2025 at 2:42 AM
Trump Reinstated the Global Gag Rule. Here’s What’s at Stake.
Reposted by Amy M. Russell
Of course we expected this, but it’s still not widely known about among non specialists. The damage done to women’s health by the global gag rule can’t be understated. The GOP/US government have been doing this for decades
www.theguardian.com/us-news/2025...
www.theguardian.com/us-news/2025...
Trump signs order to reinstate ‘global gag rule’ on abortion aid
Federal rule also known as ‘Mexico City policy’ halts US funds to overseas groups that provide abortion services
www.theguardian.com
January 25, 2025 at 8:38 AM
Of course we expected this, but it’s still not widely known about among non specialists. The damage done to women’s health by the global gag rule can’t be understated. The GOP/US government have been doing this for decades
www.theguardian.com/us-news/2025...
www.theguardian.com/us-news/2025...